I'm so sorry for your loss Kim. I HATE this disease! My mom says it's the most evil of cancers. I don't know about that, but it's pretty wicked.

I'm glad the cc was able to give you some support.

Again, I'm sorry for the loss for your family.

Terry

I'm so sorry for your loss Kim. I HATE this disease! My mom says it's the most evil of cancers. I don't know about that, but it's pretty wicked.

I'm glad the cc was able to give you some support.

Again, I'm sorry for the loss for your family.

Terry

So I saw the radiation oncologist yesterday because this tumor in this nose has taken on a life of it's own. I'm sure because they cut into it to biopsy it, for some reason you cut into MY cancer and it gets really pissed off and says "I'll show you" and spreads! Anyway, I go and get fitte...

I'm going to do something that I don't usually do. Look at my signature. Part of it is missing because there isn't enough room. I was diagnosed 7/3/07 stage TWO, TWO!!!!! I begged for chemo after my surgery. I had them take it to the tumor board and they still wouldn't give me mop up chemo. Now back...

Tracy I couldn't be more thrilled for you both:) I'm so happy to see the cyberknife work!

HAHAHAHAHAHAHAHAHAHAHAHAHAH! That's really a good one:)

With or without chemo, cancer can and when advanced does cause fatigue. Maybe some vitamins will help. I take Graviola and have slept less than ever before on chemo, it might be worth a try.

I'm sorry for your diagnosis. This disease sucks:(

Prayers and hugs!
Terry

I see your lucky 47, just like me when I was diagnosed! Grr!

I wish I could blow all the snot out, but not so easy with the tumor in the nose and the tears kill my eyeballs. I'm usually O.K. I'm hoping it's a 24 hr. thing that goes away!!!!!

I don't think it's meant to be interpreted that way. Think of it as, getting the docs off their butts and paying attention to signs and symptoms and what their patients have to say. If caught early it's curable. The preventable part, well maybe. In my case I have six people that have had cr or cc ca...

WOE JAYNEE, WTF:)???? That's not like you!LOL! Snowing, yuck!

I really hate to rub it in but here in WI (northeast noless), it's suppose to be 77 today.

It certainly has been wierd. Signs of the times in my opinion. Come on rapture, I'm ready!

As Bob mentioned if your on 5FU I didn't think you were suppose to take any excess folate. The D, make sure it's D3 and not just plain old D.

So I've never had the pump with oxi before. Is the crash and burn an emotional thing besides the gut pain I have? I am so emotional today (somewhat yesterday to). I'm not a crier and can't seem to stop today whenever I talk to anyone that calls.

I thought it looked less vacscular too. I would think that's a good thing, but what do I know. All I know is it scares me, I'm afraid it' going to go to the brain. Only thing good about that is that I'll probably go into a coma, hopefully, pretty quick or not know what's going on. Hard for my family...

Gaelen do you know that if Mayo (for example) has this drug for compassionate use, would we have to go and get it there every couple of weeks or would they make sure our onc. gets it and we just go there possibly monthly or every other?

Thanks for posting MIke, I'll have to give it a read:)