If you're MSI-high, you don't need to be in a clinical trial to get immunotherapy. At least in the states, Keytruda is already approved for MSI-high CRC (and all MSI-high cancers). If you can't get it in Canada, any cancer hospital in the states should be able to give it to you. The only hurdle is ...

Don't know if you've been following Celine's journey, butt at one time she was given months to live, today she is NED. Her thread is helping other people get to the trial that saved her life. Here it is, a bit long, butt worth reading. http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t...

I am curious whether immunotherapy offers a cure or if it is a long term treatment. I am msi-h and am looking into immunotherapy for recent growth spread in lymph nodes near the pancreas. I live in Canada and a fair distance from any centres running immunotherapy trials. I would be willing to travel...

On a side note, I had my first ever mammogram on Friday. The technician had had breast cancer for which she did chemo. Based on her bad experience with chemo, when she developed uterine cancer, she refused chemo and instead did the Budwig diet and supplements. Apparently, she "birthed" th...

So everyone talks about the slow growing nature of colon cancer but my body seems to want to disprove that! Finished folfox the middle of February. Had a CT at the end of February which showed a slightly enlarged lymph node (this was enlarged all through treatment with only slight reduction). Dr. se...

Hi Basil, I finished 12 rounds in the middle of February. Recovery for appetite and taste was about a month. I started to get more energy and joy in life once I started enjoying food again. :) I still have low hemoglobin so I don't feel 100%. The neuropathy in my feet has gotten worse since stopping...

Thanks Maia and TxLiz. If I do have a recurrence I do plan to fight for immunotherapy! The folfox did virtually nothing on the infected lymph node that was left (it is out of the normal operating range). But I think I would rather have it surgically removed now. I guess I like the idea of getting ri...

Hello all, I am wondering about other MSI-high patients and Folfox. I did the 12 rounds of Folfox (stage 3) and the one lymph node that was showing up on the scans didn't respond. I will be having surgery to remove it in a couple of months. I am just curious how Folfox worked for others MSI-high. Th...

She will probably need imodium at some point. When I was feeling nauseous the melt under the tongue type were really great. So much easier to take than the large generic pills that you have to swallow. I don't know if you have to take steroids with Xeloda but I would get constipated on those days so...

My kids were older but I continued lots of hugging,kissing and cuddling throughout my chemo. I just refrained if they were visibly sick. I did remind them to do lots of handwashing. I think maintaining lots of physical contact is important because there are so many other areas that change. I wanted ...

Well no fertility drugs here. Stage 3 colon cancer at age 42 when kids were 12 and 10.

So I think with the blood in the stool is that it gives the stool a darker colour. I was asked a lot if my stool was black or tarry looking. Since I was on iron supplements it was and I didn't notice before that. I was anemic before any abdominal pain began. No pain until 2 months before diagnosis a...

Something I learned in regard to hemoglobin through this journey. The results can vary depending on how hydrated you are. If you are a dehydrated your hemoglobin will test higher. This was explained to me as I was confused by varying numbers during my hospital stay. I finished chemo in mid February ...

Hi Scott, I didn't use edibles but used the CBD oil. I was first attracted to it because a friend told me it helped her with sleep. I had already started chemo and was having issues with sleep (steroids and worry). I found that it helped with nausea, appetite and sleep. This was my first experience ...

My surgery (right hemi colectomy) started laparoscopically but then they needed to open me up to achieve clean margins on the posterior. When we got the results the surgeon was most excited by the 1cm margins on the backside than the 15-19cm on the sides. :) Doing much of the procedure laparoscopica...