Sorry if this is discussed elsewhere but I’m MSS and my oncologist is suggesting I try a clinical trial where I’ll get either nivolumab or Nivo plus something.
Has anyone had luck with Nivo who is MSS??

Thanks
Steph -getting desperate as folfiri no longer working

I had hipec in Toronto and was NED and off chemo for 9 months before the cancer came back. Tough recovery but no regrets, Id do it again if I could.
Happy to answer any questions.

Tobermory is such a beautiful area!!! Henry, here is the link about Keytruda, not sure if it answers your question: https://lungdiseasenews.com/2017/09/26/metastatic-non-small-cell-lung-cancer-nsclc-therapy-keytruda-approved-canada/ Steph20021, last summer I went to Tobermory, what a beutyfull place...

I am so sorry for the loss of your friend. I've read peri mets are bad in terms of prognosis. Im in a similar boat. *hug* please don't have survivors guilt, I know easier said than done.

Irinotecan is not giving me any diarrhea trouble, and very little tingles in my hands, usually it's with warm or hot water that I may feel a bit of tingles. Mostly it's sleepiness for me. My vision has also gotten worse, but I've been on it for a year now. I didn't notice change in vision right away...

I don't have experience with rejecting oncologists suggested treatment, but I can share with you that irinotecan as part of my folfiri cocktail has been helping keep me stable for over a year and the side effects for me have been tolerable. I'm still able to work part time in a desk job that require...

Sending all the good vibes your way lady! Surgery has been a long time coming for you and I'm so glad for you that it's finally here. We will be thinking of you! Let us know how you are doing afterwards when you can of course.

Judi it sounds like you are on a good road ahead! Wahoo! Congrats on finishing treatment and thanks for still popping by and sharing your experiences.

They did some vision tests and an ultrasound (?!) for my dad's eyes today and confirmed it's nothing to worry about!! They said it's a freckle behind his eye?! He has do have a followup in a year to check on it and see that it's made no changes but they think it's been there a while. His last eye ch...

Thank you CR, DE and Cdndaughter, I'll post with an update tomorrow with whatever news they get. I'll be at work but my older brother is coming in to town tonight so he can drive them in the morning. They were told to expect to be there 3-5 hours. My fingers and toes are crossed.

my ct scan this week showed continued stability, still no lung and liver involvement for which I'm grateful. It's just in my abdomen wall and some lymph nodes. But I got worrying news about my dad. When he went for an eye checkup to get new glasses, they found something behind his eye. He has a past...

I'm stage 4 and a chemo lifer too. I've had about a combined total of 1.5 years of chemo, 6 months of folfox and now 1 year in folfiri. Diagnosed Jan 2014. No liver or lung mets.just lymph nodes and abdominal wall mets. My current issue: I'm on 100mg of morphine a day and doctor wants me to try and ...

Any results yet on your colonoscopy?

Going to my Gi surgeon Friday for fecal disimpaction. I hope it helps get rid of this bloated feeling and the leakage I'm having. Of course he is limited by what he can reach with his finger. I have a loop ileostomy and he suggested going forward that I try enemas from the top down. Not too keen on ...

Hope it went well for you today Claire!