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by vilca11
Thu Mar 10, 2016 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA Seen to Promote Immune Response in Advanced Colorectal Cancer Patients
Replies: 4
Views: 1179

Re: RFA Seen to Promote Immune Response in Advanced Colorectal Cancer Patients

Ooops! Sorry, jortego... I did not read the article, just dismissed it right away, b/c of my experience with RFA, my bad... That is interesting then...
Hugs, vilca
by vilca11
Thu Mar 10, 2016 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: invading peritoneal lining....
Replies: 6
Views: 1345

Re: invading peritoneal lining....

Agree with Diane... did they mention what surgery on 3/28 will involve - is it debulking or less extensive?
What a horror this disease is... my heart goes to you... Hugs, Vilca
by vilca11
Thu Mar 10, 2016 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and pedicures
Replies: 5
Views: 1117

Re: Folfiri and pedicures

I think, it is your individual reaction to 5FU. My feet and toes and fingers are actually turning black while on Xeloda or 5FU, face too.. So, you are in a "better situation" :lol: I too love pedicure and wear it thru whole year, but either do it myself, or, mainly, my daughter does it for...
by vilca11
Thu Mar 10, 2016 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ??? to FUDR patients/MSK liver mets - PET's experience
Replies: 21
Views: 3061

Re: ??? to FUDR patients/MSK liver mets - PET's experience

Forgot to mention - need to take the LN out of the signature, they suspected it, but when cut out, it was clean, same with all others - all clean...
Vilca
by vilca11
Thu Mar 10, 2016 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ??? to FUDR patients/MSK liver mets - PET's experience
Replies: 21
Views: 3061

Re: ??? to FUDR patients/MSK liver mets - PET's experience

Thanks Lois and Marianne, valuable inputs, I appreciate. No, I have no lymph nodes involvements, never had. But did have visceral involvement on Stage 1 and now. The bile duct stenosis situation I had last Oct did resolve by itself, they did not put a stent in Hopkins after the CT scan, I flew back ...
by vilca11
Thu Mar 10, 2016 12:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ??? to FUDR patients/MSK liver mets - PET's experience
Replies: 21
Views: 3061

Re: ??? to FUDR patients/MSK liver mets - PET's experience

Thank you, Marianne and JM, big hug to both of you... Marianne, I've been thinking the same way yesterday - visceral spread... I am allergic to Oxi, so no combination with it for me. Dr. K did mention that after clarifying with surgeons, supposedly today, she might put me on a different drug, did no...
by vilca11
Thu Mar 10, 2016 1:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ??? to FUDR patients/MSK liver mets - PET's experience
Replies: 21
Views: 3061

Re: ??? to FUDR patients/MSK liver mets - PET's experience

Thanks much, Sha, Radnyc, Ann and CR for your kind words and support. Your right, Radnyc, I should not drink, but I do it very rarely - this month was tough for so many reasons, not just CRC, so I indulged a 3 times...not good, I know... but I also know how much damage mental condition does - it is ...
by vilca11
Thu Mar 10, 2016 12:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA Seen to Promote Immune Response in Advanced Colorectal Cancer Patients
Replies: 4
Views: 1179

Re: RFA Seen to Promote Immune Response in Advanced Colorectal Cancer Patients

Yeap, it provided great response in my liver - got 2 mets, instead of one, on the place where RFA was done - in 6 mo.... :shock: Vilca
by vilca11
Wed Mar 09, 2016 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ??? to FUDR patients/MSK liver mets - PET's experience
Replies: 21
Views: 3061

Re: ??? to FUDR patients/MSK liver mets - PET's experience

Well... the magician (fakir in Russian, as saying goes) was drunk and focus-pocus did not happen... MRI showed tons of little well rounded lesions (I saw all comparisons on all 3 scans) along with the PET lighting, the one I asked to measure was 5mm, it was somewhat bigger than many others, but not ...
by vilca11
Wed Mar 09, 2016 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: question about low wbc/neutropenia
Replies: 10
Views: 1650

Re: question about low wbc/neutropenia

JM, my dear friend, this IS concerning... What did dr.S. say - "did not seem concerned" does not cut the mustard - did you question him what to expect with chemo continuation? Read Immunoscore thread I posted - Lpas has a good post there about the immune system management. It looks to me t...
by vilca11
Wed Mar 09, 2016 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunoscore Predicts Metastasis, Survival
Replies: 21
Views: 4838

Re: Immunoscore Predicts Metastasis, Survival

Wow, lpas! Very interesting - thank you! That ND of yours sounds absolutely great! You took wonderful approach - being proactive with our gift is so important... Where is he located? Can you please pm to me and Mariane his phone # and name? Worth a trip while I am in the USA... Mariane, endometriosi...
by vilca11
Tue Mar 08, 2016 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Silly Question on Disability or Life Insurance
Replies: 10
Views: 1899

Re: Silly Question on Disability or Life Insurance

No matter what they say, but with cancer dx you are NOT going to find insurance. I tried 10 different companies to get a supplemental to Medicare - NOPE! - what is stated in the law, is not really functioning in real life... So, i pay my 20%, which is a lot when it comes to cancer treatments... SSN ...
by vilca11
Tue Mar 08, 2016 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunoscore Predicts Metastasis, Survival
Replies: 21
Views: 4838

Re: Immunoscore Predicts Metastasis, Survival

No, Mariane, what I mentioned to you in the pm is about absolutely different thing, I am waiting for a 4th part to come to my email box to post it here all together. This was just today's article in the MedScape....
by vilca11
Tue Mar 08, 2016 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wheezing - NO Dr. can figure it out...
Replies: 4
Views: 1092

Re: Wheezing - NO Dr. can figure it out...

CR, I swear, I often think that DO and Vets know much more than MDs... Your great analysis, I bet, is what Grace's doctors did not even think about... It puzzles me how restricted their thinking is - well, for vast majority of them.... And it really saddens me a lot that majority of patients look up...

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