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by JDMNYC
Thu Sep 15, 2016 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

I don't think that's horrible news, Jim. What happened with the lymph node they had been talking about before? Six mets may be able to be removed by SBRT. They may not grow which would mean that they're possibly not cancer.(except that one) There are many possibilities. Was the oncologist hopeful? ...
by JDMNYC
Thu Sep 15, 2016 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Great philosophy, Jim! Stay strong and stay aggressive. You have to be your own advocate if you're a Stage IV patient. I believe that not having hope is an insult to God. Let us know when they come up with a treatment plan. Sending prayers, as always. Juiliej Thank you Julie - met yesterday with cu...
by JDMNYC
Wed Sep 14, 2016 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

LPL wrote:My DH's Philosophy is:
'You can only play the ball from where it is (located)'
I hope that makes sense? It sounds much better in my language..
All the Best to You! /LPL


Thanks LPL - we say "play it where it lies," and it is certainly true, and it does make sense. Thank you :)
by JDMNYC
Tue Sep 13, 2016 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Jim, I am new to the 4Club too, and so far they seem to be the best, most caring, loving people in the world. I am sorry about your diagnosis, but we have this great group of 4'ers that will be around to help, advise, commiserate, and maybe get a smile out of you too. Hi Marejenny - thank you. I'm ...
by JDMNYC
Tue Sep 13, 2016 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Jim: I'm sorry you have to join us in the Stage IV club, but there are many long-timers here, as you have noted. You have a wonderful sense of calm and logical thinking. I find that doing research and staying on top of/consulting about trials and new treatments helps give me a sense of control when...
by JDMNYC
Mon Sep 12, 2016 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Sorry you're joining us Stage IVrs :( Fingers crossed along with prayers. I'm sure your treatment plan will be aggressive and will get rid of the #4 stuff. ox Thank you Pita - I'm a big fan of prayers myself. I'm going to approach this as confidently as I can, and keep moving forward. I can't reall...
by JDMNYC
Mon Sep 12, 2016 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Damn, didn't want to hear that. :roll: Thanks Sally - I was hoping not to hear it myself (but then, I suppose none of us were hoping to be here). I propose we all do everything we can to win, and then tell stories about how we did it. That's all the planning I've been able to do since I found out, ...
by JDMNYC
Mon Sep 12, 2016 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Jim, any news on the biopsy results? I totally agree with you about "twilight" anesthesia needing a new name. Some people call it "conscious sedation" instead, which sounds sinister to me. You were tough handling it with no anesthesia though! I"m glad you signed up for the ...
by JDMNYC
Sat Sep 10, 2016 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interpretation Question
Replies: 5
Views: 1241

Re: Interpretation Question

I want to add that over 90% of us are MSS. MSI are the lucky few, but also more likely to have lynch, as I understand, so there are pros and cons. Although Immunotherapy doesn't work as well for those who are MSS, since we are the vast majority, they are working very hard to figure out how to make ...
by JDMNYC
Sat Sep 10, 2016 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 6 years NED
Replies: 24
Views: 3902

Re: Stage IV 6 years NED

LPL wrote:Hubby had his liver mets surgery 9 days ago, no result of surgery- or pathology report yet But we hope it will be good news and that we csn follow in your footsteps.


Good luck LPL!
by JDMNYC
Sat Sep 10, 2016 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interpretation Question
Replies: 5
Views: 1241

Re: Interpretation Question

mypinkheaven wrote:You're right - you're MSS rather than MSI. There are fewer immunotherapy clinical trials for MSS, but more are coming up.


Thanks Sally - thought so, but wanted to be sure.

Jim
by JDMNYC
Sat Sep 10, 2016 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interpretation Question
Replies: 5
Views: 1241

Interpretation Question

Hi - My initial colonoscopy slide biopsy report included the following: 1. Rectosigmoid; biopsy (DS-15-0000010, A, 1/2/15, 1 H&E): Results of immunohistochemical staining for DNA mismatch repair proteins are as follows: MLH1: Staining present in tumor MSH2: Staining present in tumor MSH6: Staini...
by JDMNYC
Fri Sep 09, 2016 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 6 years NED
Replies: 24
Views: 3902

Re: Stage IV 6 years NED

Clean scan. Just letting stage IV folks know that there is hope out there for long term NED status and hopefully cure. I feel that I've overcome this challenge, but part of me will be happier when I'm 10 years out! Peace and love to all. Al - biopsy on possible lung mets yesterday; results next wee...
by JDMNYC
Fri Sep 09, 2016 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad CT Scan
Replies: 78
Views: 10016

Re: Bad CT Scan

Dear Jim, Just want you know that I am sending good thoughts for your Biopsy result. 'We' (=hubby) are not at the same place as you now, but I read and learn.. it is a Unknown Journey for all of us. All the Best to You ! Kind Regards /LPL LPL - thank you! That's very kind. It is an unknown journey ...
by JDMNYC
Fri Sep 09, 2016 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lightening wouldn't strike twice would it? UPDATE
Replies: 24
Views: 3492

Re: lightening wouldn't strike twice would it? UPDATE

exaussie wrote:She has been diagnosed with E. Coli
Bland diet if no improvement then antibiotics.
While I am glad it's not worse it is something unexpected


Although I can't say I'm glad to hear she has E. Coli, I can say I'm very glad to hear it's not a second strike. God bless and have a great weekend.

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