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by Eleda
Thu Jan 04, 2018 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Thanks Beth, I posted a reply but in the wrong place I'll rectify it later Same as I replied to u Mac lol I'm technology retarded sorry lol NHMike, I tried to send u a message and I dump what I've done :roll: Mike I've been reading up on the MSS MSI KRAS AND BRAF, TO THE POINT I'M TOTALLY CONFUSED N...
by Eleda
Wed Jan 03, 2018 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Might take my kids, on holiday when I get a timeframe, Someone said don't book anything far ahead as if u have to cancel the disappointment is, worse so I'll hold off booking anything yet,,, already had to cancel 2 holiday Jan and feb :cry: Can I ask was the aquaphor for ur skin or bum or both,,, or...
by Eleda
Tue Jan 02, 2018 11:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Oh I know Mike I won't actually know until about 6/10 weeks after radiation finishes,,, That will b a long night before meeting the surgeon,,, Probably do a DRE, and he should pretty much know from that, with the MRI to confirm, But still depends on the actual day of surgery, as I'm also aware it's ...
by Eleda
Tue Jan 02, 2018 11:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 6785

Re: Facing a permanent stoma

Thanks for ur reply Beth, in n the same position,,, starting radiation tomorrow, well today now as its 4.15 am lol, I think I'm willing to take the chance if it shrinks and if it doesn't work then I'll go for the other at a, later stage I will have a temp one anyway for 6 months while the resection ...
by Eleda
Tue Jan 02, 2018 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Thanks, Mike I think he's thinking colostomy as he was checking my left side,,, I'm going to ask to see my file tomorrow when I'm not It's like the holy grail,,, they hate parting with it lol I'll just take photos, Like I do with my sons lol Work for me is a total stress So has, my past 6 years with...
by Eleda
Tue Jan 02, 2018 9:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Can I also ask why ur surgeon chooses illistomy over colostomy????? What's the reason for choosing one over the others, of imagine an illistomy is much harder to manage
Thanks
by Eleda
Tue Jan 02, 2018 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Hi Basil Thanks for ur reply, No I'm not for a second avoid surgery, it's, not an option TBH, I'm just nervous of all the radiation damage to them still be left with a bag at the end, eg menopause bladder skin etc My surgeon is confident he can reconnect afterwards as long as it shrink with the radi...
by Eleda
Tue Jan 02, 2018 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Jesus that was a, shock to wake up to!!! Anne Prep is easy, for me on this theres none Ware my own clothes, pull them down below the tattoos and lie there,,, Again must be different machines I asked about the back and they said the machine will move around so it will do all 4 spots, My first nurse s...
by Eleda
Tue Jan 02, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Absolutely Mike but it's near impossible to not worry and the more I Reaserch, the more it worries me lol Viscous circle, I just hate not having control over this situation,. My youngest son has cystic fibrosis, so I'm used to treatments, watching trials and reserching Intergrative meds etc!!!!! So ...
by Eleda
Tue Jan 02, 2018 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

We have similar situations Mike!!! I've noticed u are Kras positive I've asked to be tested and apparently they won't until tumor is, completely removed Haven't asked about Lynch yet, I'm assuming it's, not positive or they would have mentioned it But I do have another pylop 15cm away from tumor whi...
by Eleda
Tue Jan 02, 2018 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 6785

Re: Facing a permanent stoma

Beth I'm sort I'm of no help in this regard but can I please ask why u have to have a permanent colostomy???
I seem to have similar stage Rectal cancer 2.5/3 cm AV, And still hopful of the resection and connection again afterwards
Thanks Adele
by Eleda
Tue Jan 02, 2018 6:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

Re: SWF, so many uncertainties NOW!!!!

Thanks for all ur replys, I had a, draft and then lost it ( tech chalanged lol) Sorry but I'll get all the names wrong for a while, Mike it's great to see u still hanging n there,,,, I'm n no was Nieive of what's, ahead, but I'm hoping to join ur anniversary at some point ( I'm greedy, 10 years just...
by Eleda
Mon Jan 01, 2018 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SWF, so many uncertainties NOW!!!!
Replies: 34
Views: 5986

SWF, so many uncertainties NOW!!!!

As I write this on on a plane to Spain for my last bit of fun before my treatment starts on WED, 3.55 PM RADIOCHEMOTHERPY 5.5 WEEKS 1650MG ORAL ZELODA , Quick background I'm 47 single parent to 3 boys 6/9/12 and self employed ( hairdresser) I hadL2ttle blood in stool over summer of 2017, nothing I w...

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