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by Jacques
Mon Mar 20, 2017 4:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exploring HIPEC Surgery and How to Choose A Surgeon
Replies: 5
Views: 2018

HIPEC surgeons, and HIPEC topics on ColonTalk

To choose a surgeon for HIPEC you might want to have a look at the directory of the American Society for Peritoneal Surface Malignancies (ASPSM). There are several members in Florida and southeast USA: ASPSM Directory http://www.americansocietypsm.org/Directory.html HIPEC topics on ColonTalk: https:...
by Jacques
Mon Mar 20, 2017 3:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Difficulty passing stool
Replies: 5
Views: 1839

NWgirl's 3-part blog on colostomies - Direct links

... You can do a search of Belle's insightful blog on this forum where she writes on her decision making process and life with her permanent colostomy. I believe her writings are archived on this forum, titled "Colundrum of a permanent colostomy" or something similar. Her writing is a 3 p...
by Jacques
Sun Mar 19, 2017 5:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: just had surgery - questions
Replies: 8
Views: 2444

Re: just had surgery - questions

If you just had surgery, then you must be in the one-month rest period between surgery and the beginning of adjuvant chemotherapy. You didn't mention it, but I assume that you will be continuing on with adjuvant chemotherapy in a month or so. I had an ileostomy, so I cannot answer your main question...
by Jacques
Sat Mar 18, 2017 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI Pump Folks - Insight Appreciated
Replies: 5
Views: 2415

Re: HAI Pump Folks - Insight Appreciated

... no one is more experienced than Dr. Kemeny and MSK in HAI treatment... Here is some additional information on Dr Kemeny: Dr. Nancy Kemeny http://www.mskcc.org/sites/www.mskcc.org/files/imagecache/small/node/327/image/kemeny-nancy.jpg Dr. Nancy Kemeny - Biography Dr. Nancy Kemeny - VIDEO . .
by Jacques
Sat Mar 18, 2017 3:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2017 “Featured Survivor” Models – 12 Inspirational Stories
Replies: 1
Views: 978

2017 “Featured Survivor” Models – 12 Inspirational Stories

Here are the write-ups for the 12 “Featured Survivors” that were announced earlier this week in Washington. These stories are also posted on the main Colon Club website under the menu rubric “On The Rise”. Abbey Schnell - Stage IV http://colonclub.com/2017-featured-survivors/abbey-schnell/ Christoph...
by Jacques
Fri Mar 17, 2017 6:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2017
Replies: 167
Views: 90436

Colon Cancer Survivor to Speak in D.C. on Sunday

Colon Cancer Survivor to Speak in D.C. on Sunday
http://www.tristateupdate.com/story/34726358/colon-club-visiting-dc-on-sunday

2017 “Featured Survivor” Jamie Orth
by Jacques
Thu Mar 16, 2017 3:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hard questions & an introduction
Replies: 6
Views: 1827

Re: Hard questions & an introduction

... Have any of you experienced anything like this? Did you stop folfox? If he only has three treatments, does his long-term survival rate go way down? If it were you, what would you do? ... Renée - I'm very sorry to hear about our DH's problems. Yes, I did experience something very much like this ...
by Jacques
Tue Mar 14, 2017 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biofeedback and PT for LARS
Replies: 18
Views: 6170

Re: Biofeedback and PT for LARS

My biofeedback and PT uses the YsY Medical system described here: YsY Evolution brochure in English http://ysy-medical.fr/wp-content/uploads/YSY-EST-EVOLUTION-2-EN.pdf It allows for a baseline to be recorded and for session averages to be saved and compared to the original baseline. The PT involves ...
by Jacques
Tue Aug 23, 2016 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gratitude Thread
Replies: 120
Views: 18486

Re: Gratitude Thread

I'm grateful for the old-timers who still come around and post messages here from time to time. These are the members that were frequent contributors here 3 or 4 years ago but who do not post much anymore. They are the members of my reference group because they were the ones who were here posting me...
by Jacques
Tue Aug 23, 2016 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about Surgery
Replies: 15
Views: 2038

Re: Questions about Surgery

You have received some very good suggestions already. If you need more, you can check some of the prior threads on that topic here:

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50471&p=387437#p387437
by Jacques
Sun Aug 21, 2016 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR surgery - what to expect
Replies: 20
Views: 4168

LARS and Sphincter Sparing Operations

may I ask what should I expect. ... but I'm more interested in the procedure itself and its effects afterwards. If you are having a procedure to remove a tumor in the rectum, then the effects after the procedure will likely fall in the area they call LARS (Low Anterior Resection Syndrome). The effe...
by Jacques
Sun Aug 21, 2016 2:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR surgery - what to expect
Replies: 20
Views: 4168

Re: LAR surgery - what to expect

If you're in Australia, you might be interested in this document, which is an Informed Consent for Rectal Cancer LAR https://www.health.qld.gov.au/consent/documents/colorectal_19.pdf Also: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=54658&p=433493#p433493
by Jacques
Sat Aug 20, 2016 3:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - all ok?
Replies: 23
Views: 3259

Happy Birthday

Nik Colon wrote:... My bday is this Sat ...


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