I am on second week of Irinotecan + Cetuximab. The flood gates opened this week with pretty significant diarrhea for the past two days. I called oncologist office and was told to double up my immodium dosage and see how that works for me. I have a colostomy so I can only gauge by how often and quick...

Thank you for all the suggestions. We met with our covering oncologist today since our old oncologist was just promoted to a new position at a different hospital and the new oncologist has not begun yet. We had to fight to get an appointment today because my husband wants to begin his leave of abse...

Hi Jesse, My CEA level at diagnosis was very very high, like 2900 January 2017. I haven't seen anything close to that on here. My most recent test on July 10th showed a CEA of around 1600 which is still very high but lower than where I started. I was in and out of the hospital so much before having ...

Awesome news, Mike! Hope things keep improving quickly, that is very positive

Hi Mike, I just caught up on all of your posts and learned even more from them, especially the genetic tests. I didn't know tha tthe staging for Rectal cancer is different than for Colon. I can only imagine your discomfort, I was lucky in that respect and really had very little pain until my blockag...

Congratulations! Yes you must celebrate to mark this date.

Hi Jaynee, I am in California so can't help you with support groups in Atlanta. I have yet to find an in person one here. Your question about how to handle BM's at the work place isn't quite clear to me. Do you have a colostomy or poor control? You might want to ask that question in the general foru...

Welcome and I always appreciate the experiences of others. I'm glad that you got the quality of care so that you're still around and were able to attend the wedding. Hi Mike, Thank you for the welcome. I think sharing our experiences good and bad will help us all fight this battle. I have learned t...

Welcome to the forum. I have only been signed up for a couple of weeks but have learned a lot in that short amount of time. I am a caregiver to my wife who is going through this battle. Keep up the fight. Thank you Tater, I hope your wife is doing well with her new treatment. Folfox is very effecti...

Hi Shana Hi and welcome, sorry for the reason you are here. So glad you were able to make it to your daughter's wedding. I believe you have already learned something about Dr.(s), and that thy are not all are equal. Some are better than others. I so glad you did not have to listen to the one who sa...

Hello everyone, This is my first post after just joining this site. I've learned so much already from members who openly and graciously share their knowledge and experience with all of us. I spent the first 6 months of this year in and out of the hospital due to severe toxic reaction to 5 FU and als...