Saw the oncologist today. My lab work was good. My CEA has gone down to 113 from 400 in March when this all began. Dr. Wants to drop the 5-fu and reduce Ironateacan to 120. He says he wants to give this a try before he scraps the plan and has to come up with another. He wants me to get fluids if non...

Awesome. Thank goodness for you.
Kpjpmom

That is freaking awesome!,,so happy for you.
Kpjpmom

Hope you get some relief Frenchie! I have been pulling for you and an so glad you are living your life your way! The dex makes me shaky and my left leg get so weak and I am sure that I am not on what you take. Keep us posted if you can, We care!

Bev, Doctor says no more for me as it is causing so many issues. He will try something else although I do not know what that will be. I do not want to revisit Folfox as that was hard on me also. I only get fluids at infusion center or at hospital outpatient center or they admit me. They may have to ...

Thanks Kenny. I am glad things are going okay for you. Are you having any problems?
Kpjpmom

I hate this Bev,
There are no words.
Cancer sucks and pisses me off!
Kpjpmom

I have been battling with Folfri for the last two infusions. I have had to get fluids every time for several days in a row. My colon has started dumping every thing out .last week I was in the hospital for four days due to severe dehydration which happened all in 20 minutes. The doctor is perplexed ...

I have been on atropine and Imodium for the last 8 days.i have also been on the brat diet. The big d finally has slowed down. This has been quite a trial. I had done this regime in 2012 and did not have these problems. I am feeling more like myself. Thanks for the responses!
Kpjpmom

I have been MIA due to this first Folfri infusion. I have been having to get fluids several times and they think I may be having radiation inflammation causing severe diarrhea. I have been down since the 16th.This has been a mess. Irrotecan is not my friend this time around. Anyone out there stop th...

So I am home fished first folfri to help with pain from met. I have had the I run to the can symptoms today. Woke up that way at 5. Pain in spine is controlled by patch . My oncologist thinks the chemo will help with pain down the road. I am hating the side effects of chemo but my big fear is uncont...

I completed my radiation treatments yesterday. Today bee meet with the oncologist to talk about next steps. Prayers welcomed for us to come to a place about how I want this to go. I have had to make so many end of life issues in the last weeks,I am beyond worn out. Pain control is much better! Anyon...

Kenny
I do not have lung or liver involvement at this time. So I guess I am in that 1 percent that peanut speaks of. My cancer has been found always in the left side it just decided to go to the bone first lots of hard questions to ask the oncologist next week about QOL. Take care.
Kpjpmom

Kenny, CT scan and bone biopsy were what they used to confirm. Targeted the one area that was giving me fits. I kept pointing to lower spine, tailbone area...that is where the met was on the spine. Spine eroding and small cracks around the bone. The tumor is up in the spinal column and eating away. ...

Well, I made it so far through radiation : So far it has been very easy. Fatigue just being a issue in the evening. Play time with the grandsons has to wait. Living while dying: dying by degrees. That would be my book title. We do have advantages, in that we get to plan our services,state what we wa...