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by sdino
Thu Apr 20, 2017 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox.. ugh
Replies: 11
Views: 2564

Re: Folfox.. ugh

Hi Meg – I honestly think you are moving in a good direction by working out. Please make sure you are hydrated, My Wife got in some chemo effects med problems by not drinking enough fluids. I threaten her with everything and even threaten to jump her bones (hehehe) if she did not comply. I enlisted ...
by sdino
Thu Apr 20, 2017 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Box
Replies: 7
Views: 1893

Re: The Box

Thank you MyPink for your response, exactly what Im thinking. That mindset has gotsta change in my opinion. Im going to TRY in the near future to change my Onc’s mindset on this. They should be pulling all stops when the iron is hot. What the hell am I going to wait till she has 45 nodules ???? Ther...
by sdino
Thu Apr 20, 2017 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox.. ugh
Replies: 11
Views: 2564

Re: Folfox.. ugh

Hi Meg – My Wife’s experience went this way: Rounds 1-3 of FolFox+Avastin with Oxaliplatin – weak, cold sensitivity, out of work for 3 days. Rounds 4-6 of FolFox+Avastin with Oxaliplatin - Very weak, cold sensitivity worsen, nausea, tingling in digits, constipated, out of work for 5 days. Rounds 6-8...
by sdino
Wed Apr 19, 2017 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Box
Replies: 7
Views: 1893

Re: The Box

Hi Achilles, yes FolFox+Avastin currently has been very good to us. As of today, visit w/Onc, we will do 1 more chemo treatment at end of April then a CT scan in May. Then it will be a decision with our Onc at Roswell with Final approval from the MSKCC Onc on the treatment Plan moving forward. (poss...
by sdino
Tue Apr 18, 2017 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Box
Replies: 7
Views: 1893

The Box

Im going to throw this out here. We have been to 2 good Cancer Centers. I get the impression that they follow certain protocol and if that’s not good enough, then it “feels” to me, that they cash their chips in. This how I honestly feel about my Wife’s situation. To me in this day and age that is un...
by sdino
Mon Apr 17, 2017 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VATS surgery complete
Replies: 8
Views: 2091

Re: VATS surgery complete

Hi Teri3, good news ! Just wondering, my wife has bilateral mets 15 total, with the largest measuring 1.2 cm left lung w/14 other nodules measuring less than 9 mm. Currently seeing oncologists @ Roswell Cancer Inst. and Sloan Kettering which neither have not mentioned anything about addressing these...
by sdino
Thu Apr 13, 2017 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling scared about urgent pet scan
Replies: 17
Views: 5258

Re: Feeling scared about urgent pet scan

Welcome sammer, its Ok to be scared. Im also scared for my wife - because of the unknowns. Get your results of your PET from your Onc, then methodically come up with a plan together with him... Hoping for the best.
by sdino
Mon Apr 10, 2017 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope for lifers: Shrinkage on xeloda and avastin
Replies: 3
Views: 1485

Re: Hope for lifers: Shrinkage on xeloda and avastin

Hi Kt and MDK, just wondering is your tumors profile ? MSS or MSI, KRAS Mut or not. Thanks, and hoping for the best !
by sdino
Tue Apr 04, 2017 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 55
Views: 34773

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Thank you for the **Bump**. I'm very concerned with my Wife's Lung mets (total 14). We have seen shrinkage on the colon tumor and some shrinkage on lung mets. However, the latest CT scan on 3/20/17 the mets have stayed the same in size and shape. To be honest that is currently my deepest concern. Bo...
by sdino
Wed Mar 29, 2017 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2nd Set of Eyes
Replies: 2
Views: 905

2nd Set of Eyes

Hello – Quick introduction, I’m the husband to my lovely wife (52 yrs old). We have two daughters ages 25 and 19. My Wife was Dx with Stage IV Sigmoid Colon Cancer w/bilateral mets to lungs. Routine colonoscopy in Early Nov 2016 detected the tumor. CT scan of pelvis and chest revealed the bad news. ...

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