Great news Celine! I think they will take you. Well, I hope they do! I am at NCI now and have been asking lots of questions. While they do not discriminate, they are very interested in healthy stage IVs just because there is so much lag time (surgery, cell growth, tumor analysis...) that patients ne...

In one week, I will have surgery to remove two lung mets for TIL (tumor infiltrating lymphocytes) harvesting. First time I"ll ever have had surgery for my cancer. Met with the surgeon today - he said he would do VATS. Gosh, I feel like all the rest of you people who have gotten to have surgery!...

JJ - maybe I"ll put this on a t-shirt. "Stivarga - beats being dead. And that's about it." Yup. My bar is pretty low. Your comment made me laugh! DrEbay - no hand and foot yet? That's great if it hasn't hit you. Mine started o/a month three, and a googling confirmed that other takers ...

HI, all. I had good results with Stivarga. My onc says I"m his only patient who seems to have done well on the drug. My CEA dropped from 500 to 90 after three months of taking it. But my scans showed mixed results, some growth and some shrinkage. I was supposed to be dead by Christmas... and I&...

Yes. It is possible to survive. For how long, it's anybody's guess. I have several large lung Mets and "innumerable " small ones (the scan techs don't bother counting them anymore), plus liver mets, an adrenal met, a primary rectal tumor plus at least one lymph node the size of a gumball I...

I'm interested in your progress as well. While I can't afford off-label drugs as treatment, Ive gotten them for free in exchange for being a lab rat in clinical trials! I'm interested in the specifics of your case - most people include this in their message tag (I need to update mine.) When were you...

Arrgh re: hostage taking. How frustrating Maia - thanks!!! Re: metronomic. The onc at the time believed in metronomic doses and that's just what he prescribed. It was easy. Also re: exclusions. This trial,didn't exclude prior treatments. I checked other immunotherapy trials and some has very specifi...

Yup - you're doing it already. Library 2 go is still from the public library system, just Oregon's version, right? My library system has ordered more audio books than e-books. Not sure why. I like both but I think I prefer e-books. Both are good and in many places... Free! Free is good.

I was actually in this trial https://clinicaltrials.gov/ct2/show/NCT01714739?term=Nivolumab+lirilumab&rank=2 Nivolumab (anti pd-1) and lirilumab (anti KIR). Didn't work for me. I have rectal cancer, so maybe colon cancer responds differently. Dr. Sharfman (the PI) told me that not many mcrc pati...

Hi. If you didn't know this already, free e-books can be checked out from many U.S public libraries and can be read on computers and many types of portable electronic devices such as Kindle and iPad which uses software called overdrive which uses Adobe. E-books are great for people with weakened imm...

I just got into this trial. Celine if you're in, pm me. I did the paperwork, went to nci for the physical and interview, and have been accepted as a white mouse :-), so I'm just at the beginning stages. Next step is to have tumor extraction so that they can harvest the TILs. It's not a complete gree...

Hotdogs were the chicken nugget of the 60s and 70s. yup. We all ate them as kids. Caused by hotdogs and nitrates. I'm only halfway serious, but I was diagnosed with MCRC at 45, and did eat a lot of hotdogs. I think I can even sing all of the armor hotdogs commercial even today. I wish earlier colono...

[****oops - sorry. I reread your original post and saw that you were looking for information about a specific clinic in Cologne. Sorry, I didn't go there. Below is info about other German clinics. To evaluate yours, as a suggestion, you could research what type of dendritic cell therapy they offer, ...