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by kellywin
Mon Jun 12, 2017 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today is my last day of Chemo!
Replies: 24
Views: 3937

Re: Today is my last day of Chemo!

Congrats Beckster! Time to get on with the rest of your life!
by kellywin
Mon Jun 12, 2017 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you drink during cold sensitivity?
Replies: 15
Views: 3433

Re: What do you drink during cold sensitivity?

Room temp Guinness...everything else tastes like shit. Honestly, water tasted like shit. I would advise trying different kinds of bottled water, try Figi, Dasani, Aquafina, etc. They all have a slightly different taste and one may be more tolerable than the others.=m but damn water was so hard to dr...
by kellywin
Thu Jun 08, 2017 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pills vs. Pump
Replies: 18
Views: 5554

Re: Pills vs. Pump

Pills. I took them during 5.5 weeks of radiation and after surgery with Oxi. I had zero problems/zero side effects with the pills. I also chose not to have a port, took the Oxi straight into the vein. It wasn't a picnic, but I didn't have to have the surgery to put the port in or out. I was only pla...
by kellywin
Tue May 16, 2017 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo / Radiation "breaks"?
Replies: 4
Views: 1325

Re: Chemo / Radiation "breaks"?

BUTT ..... you just knew there had to be at least ONE !!!! :mrgreen: regarding the side effects / discomfort etc. You should be all over the Oncs and their assistants about that ! There are and can be a number of things which can be done to relieve problems. Let them know and keep BUGGING them unti...
by kellywin
Tue May 16, 2017 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation induced menopause
Replies: 31
Views: 14344

Re: Radiation induced menopause

Radiation induced menopause here. And while I love the no period thing - I'd take it back in a heartbeat to get back normal sex (eg not crying in pain) and the hot flashes. The hot flashes are so overwhelming. Initially, I struggled with upwards of 30 night sweats each night for months. I ended up t...
by kellywin
Thu May 11, 2017 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is bowel regularity possible after reversal?
Replies: 15
Views: 9550

Re: Is bowel regularity possible after reversal?

Hi Judy, The key is using a small amount of water with the Metamucil (the other products just don't work for me, I know it tastes like shit, but I just chug the 8 oz of it quick). The smaller the amount of water, the more it will slow down your bowels. There used to be a section or download on the M...
by kellywin
Thu May 11, 2017 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is bowel regularity possible after reversal?
Replies: 15
Views: 9550

Re: Is bowel regularity possible after reversal?

Hi Judy, You're still really early since your surgery, and it does take time to find the right routine. I will preface that I didn't have a reversal, as I didn't have a temp ileo - but I can tell you it was some rough times after surgery. Part of it is just time. I'm 4 years out and I think I do pre...
by kellywin
Tue May 09, 2017 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 22189

Re: what should I expect on the first day of chemo?

Ditto as Julie regarding the steroids. They actually cut mine way back after the first round - I felt like I was going to jump out of my skin. The side effect was the chemo hit me like a freight train right away. I'm sure someone else mentioned this, take the anti-nausea even if you don't think you ...
by kellywin
Thu Apr 20, 2017 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prep question
Replies: 10
Views: 2445

Re: Prep question

I'll add my 2 cents for Suprep. It's easy, definitely a lot like cherry cough syrup - but I had a spoon of lemon sorbet right after and it cuts the heavy cherry taste. It's a small amount at one sitting, so you can just chug it and go. It's a 2 part and works really fast, so it's over with quickly a...
by kellywin
Fri Apr 14, 2017 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CURED!
Replies: 42
Views: 9985

Re: CURED!

Congrats Diane! So good to hear.
by kellywin
Mon Apr 10, 2017 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant - colon vs rectal cancer
Replies: 34
Views: 9184

Re: Rant - colon vs rectal cancer

I totally get it Kristi! And the funny part is that I just had this same problem last week! I was filling out the damn questionnaire that I fill out every fricking year for my CT scans and this time I noticed where they type in the reasons why you are there said "follow up for colon cancer"...
by kellywin
Mon Apr 10, 2017 6:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Surgery and Syndrome
Replies: 8
Views: 2317

Re: LAR Surgery and Syndrome

I'll chime in that it was rough at times for awhile, and you make yourself aware of bathroom locations everywhere you go, but for me it got better with time and Metamucil. I never had the temp ileo - so I can't speak to that. Now things are pretty good - there are frustrating times, but it doesn't s...
by kellywin
Tue Apr 04, 2017 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Venting !!
Replies: 20
Views: 4442

Re: Venting !!

I just saw your other topic and linked you back here. Lol. Get a great gynecologist and start there. You need premarin cream and vagafem.

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