Jolene: Your night sweats and temperature dysregulation could well be correlated to the corticosteroids you are receiving (dexamethasone). Your insomnia and interrupted sleep and heightened energy could also be correlated to the corteocosteroids. You may want to discuss with your oncologist a dose r...

I have posted about dexamethasone before and will do so again, as a “public safety announcement” of sorts. I am not a cancer patient. I am an individual with adrenal failure (Addison’s disease) and know well the unfortunate consequences that glucocorticosteroid use can ravage on the body. Dexamethas...

Jolene: The addition of local Premarin cream seems like a wise strategy. It will provide the vaginal and labial tissues with the “nourishment” that they need. I used Premarin cream 3 x a week for about 9 months, and then went on a low dose birth control pill for an additional nine months. Then no fu...

Jaynne:
Thinking of you this morning . . .

Sending you comfort and prayer.
Karen

Diane: You have always written so lovingly of your immediate family and the close relationships shared between each of you, so it is especially meaningful that you have shared this photograph of you and your family. You and your mother are “Two Peas in a Pod.” The resemblance between the two of you ...

Jay Anne: I am totally in synch with your post and narrative. I am a HUGE animal lover and have found the human-canine bond to be a sustaining and comforting presence in living with compromised health. In saying good-bye to Roxy . . . There is no way to prepare for that which is unpreparable. But kn...

Punky: There are packets that you can add to an ostomy pouch that aide in changing the liquid ileostomy output to a thicker consistency (like jello), which can be successful in reducing the incidence of leaks. These packets go by different names. Ileo-sorb is one product name. Emptying and draining ...

Jolene: I find your oncologist’s negative connotations of hormone replacement therapy concerning. I read a recent article in Medscape just this week discussing the importance of EARLY intervention of localized/vaginal estrogen or low dose systemic birth control for menopausal symptoms. Especially re...

Punky44 wrote:MissMolly is this the one you have?

https://www.coloplast.us/sensura-mio-1- ... en-us.aspx

Yep this is the one I have. !

Punky: I am glad that Lee has posted with her input and suggestions. Thanks for hoping onboard to this thread, Lee. You can certainly use the Hollister adaptic rings that you have with another competing brand of wafer. Given that leaks are your mother’s nemesis (and, honestly, leaks are the nemesis ...

Plunky: I adore Coloplast and have been a loyal customer. I was started on Hollister in the hospital and had problems from the get-go with leaks and always having a slight odor to me. Coloplast was like a shining rainbow for me. I can now live my life without worry about my ostomy. Here is the Colop...

Punky: Gatorade with no added sugars may be fine. I am not a fan of foods where I cannot understand a list of ingredients or foods with chemical additives. I purchase at Whole Foods. Your mother’s intestinal tract has been traumatized by the recent surgery. Keep in mind that foods that are highly pr...

Punky: A word of caution on Gatorade and PowerAide . . . . Energy drinks with high added sugars and high fructose corn syrup will add to problems with diarrhea and excessive water loss for those with a new ileostomy. Gatorade and Powerade and similar are NOT your mother’s friends. Do NOT place these...

Punky: Come on over to the United Ostomy Association of America support forum for assistance from its ranks of stoma-sporting members. http://www.uoaa.org A few ideas to get you through the immediate crisis of leaks: 1. Ostomy nurses are not all knowledgeable. You will find a number of individuals w...

Jolene: Your gynecologist does seem to hold to a high level of caution regarding consideration of systemic hormone replacement therapy and/or local vaginal application of estrogen/Premarin. Remember . . . Systemic hormone replacement therapy (HRT) need not be a lifelong dosing regimen. There are low...