Not Keytruda but Nivolumab.
Working well.

https://clinicaltrials.gov/ct2/show/NCT03631641

A clinical trial for maintenance/prevention dose of Nivolumab for Lynch Syndrome patients.
They are giving it for 2 years every 3 months.

Where has 2 years figure come from?

Hello My story is similar to Plastikos except that I am on Nivolumab and not Keytruda. I am approaching 2 year mark and have been NED for almost a year. In my case , intervals between infusions has been increased to 6 weeks from original 2 weeks. But what is to be done after 2 years is still up in t...

I was 35 at the time of stage IV DX with a 20 month old daughter. At the time I managed to stay positive, yet deep down expected the worst. Next week will mark 7 years since diagnosis, over 6 of which have been NED. My doctors now tell me I am most likely cured, but I still remain vigilant. We adde...

Hi, I have been NED since June 2018 . I am Lynch positive. Two thoughts regarding future course of action are going on by my oncologists . 1. Stop infusions at two year mark in June 19. Logic: further infusions don't have much effect other than increased chances of toxicity. 2. Continue maintenance...

This is such great news for you! I am so happy to read this. It’s been along time since I’ve been on this site but I read occasionally. As with everyone with this diagnosis or a family member who has colon cancer, it’s been a very tough year. My mom did not respond well to chemo, in fact it almost ...

Hi, I have been NED since June 2018 . I am Lynch positive. Two thoughts regarding future course of action are going on by my oncologists . 1. Stop infusions at two year mark in June 19. Logic: further infusions don't have much effect other than increased chances of toxicity. 2. Continue maintenance ...

That's good news if a new biomarker is found that indicates potentially immunotherapy could work for some CRC patients.

Plastikos, Regarding removal of stent. I assume it involves surgery to remove it. If so , as per my understanding surgery of any type should be avoided if you are undergoing immunotherapy. This is because surgery can cause autoimmune reaction by the immune system. I was forbidden explicitly even the...

Thanks Herry123. I am apparently starting on the 31st, barring any unexpected occurrences. Would love to hear from folks who have been involved with this particula combination of immunotherapy drugs, with or without radiation—or who know more about this trial or other similar trials. Seems promisin...

Thanks everyone for your feedback.

Hi All, What were the foods you have been told to avoid during chemotherapy, specifically during FOLFOX? We all know about the negative effects of chemo on the body, how it can not only kill the cancer cells but also the healthy cells in the body thus impairing one's immune system and disabling it ...

Hello
Can anyone advise which would be a better option between PMH and Sunnybrook Hospitals in Toronto with regards to CRC.
Any recommendations for medical oncologist who specialises in immunotherapy at these centres.
Thanks.

The only restrictions I can recall are raw fruits and veggies & milk due to compromised immune system during chemos.
Bananas were ok though.
I found light foods like curd-rice easy to handle.