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by NHMike
Mon Jul 26, 2021 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A series of unfortunate events
Replies: 18
Views: 6832

Re: A series of unfortunate events

Good luck on the scan.

I recall a CT for diagnosis but just lower body, then a CT upper body afterwards, then an MRI before surgery. Then a CT after 7 months of chemo.
by NHMike
Tue Jun 29, 2021 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal - My Journey
Replies: 20
Views: 10575

Re: Ileostomy Reversal - My Journey

What kind of scar tissue and where? I had a ton in my abdomen from my earlier surgery that my doc had to clean out. At the temporary illesostomy site. Could you describe the surgery and how long it took to recover from it? I'm considering it but am kind of a chicken on another surgery and recovery.
by NHMike
Mon Jun 28, 2021 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal - My Journey
Replies: 20
Views: 10575

Re: Ileostomy Reversal - My Journey

One thing that I forgot to mention is the potential for scar tissue. This can show up about six months after surgery. It can result in a hit at Quality of Life.
by NHMike
Sat Jun 26, 2021 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A series of unfortunate events
Replies: 18
Views: 6832

Re: A series of unfortunate events

Chemo during the winter is brutal, particularly if temperatures are freezing, it's windy and there's snow around. I think that there has been research to determine optimal number of rounds but I have not looked at results. My oncologist told me that four is minimum, eight is to be sure, six is optim...
by NHMike
Sat Jun 26, 2021 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal - My Journey
Replies: 20
Views: 10575

Re: Ileostomy Reversal - My Journey

You've had a rough time for a very long time. I've been through what you're going through and things get somewhat better with time but part of that is managing things better. Things that I've found helpful: - A bag or kit to deal with emergencies - Supplements that work for you (I use VItamin D3, No...
by NHMike
Thu Jun 24, 2021 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had my 10th colonoscopy today
Replies: 4
Views: 1474

Re: Had my 10th colonoscopy today

That's a lot of colonoscopies.

I do the Gatorade/Miralax Prep and I'm generally fine with that.
by NHMike
Wed Jun 23, 2021 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 497582

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, It has been almost a year since I last posted. Can’t believe it’s been four years on this journey. You were just a little ahead of me at each step so I read your words as a guide. Just checking in, wishing you well. Wondering what’s next? Susan I've been learning some new skills and thinki...
by NHMike
Thu Jun 10, 2021 5:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 497582

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, Glad you finally got in to see your surgeon. That is a tough call on whether or not to do the additional surgery. I haven’t had the obstructions like you have. It would be hard to have an additional surgery and go through all of that again. I hope you are able to get that interview. I thin...
by NHMike
Wed Jun 09, 2021 5:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 497582

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I went to see the surgeon yesterday. My original appointment was scheduled for August 2020 but it was canceled by the hospital. I rescheduled for several months afterwards but there was a COVID outbreak at the hospital. I was going to try early 2021 but COVID numbers spiked over 700%. So I scheduled...
by NHMike
Tue May 25, 2021 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rise during chemo for stage III
Replies: 8
Views: 2071

Re: CEA rise during chemo for stage III

I had the rise as well. Also started in December and it rose through six or seven months of chemo. The oncologist ordered a CT and it was clear. In my case, it was most likely due to working out as my workouts increased as my chemo progressed.
by NHMike
Wed May 19, 2021 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 497582

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I stopped running for several weeks which was difficult and replaced it with spinning, stretching and the weight machines at the gym and bodyweight and barbells at home. I then started running 1/2 mile last week (that was my limit before injury) and have been running 1.5 miles/day this week without ...
by NHMike
Sun May 16, 2021 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Research Colostomy
Replies: 3
Views: 1248

Re: Research Colostomy

Education plays a big part. There are a lot of products out there but discovery is challenging. You wake up out of surgery with this thing attached to you and you have to do care and maintenance of it for six months or the rest of your life depending on your situation. You get some training in the h...
by NHMike
Mon Apr 05, 2021 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh - Here we go again
Replies: 8
Views: 3109

Re: Sigh - Here we go again

I did XELOX starting December 2017 in New Hampshire so it was pretty challenging. I think that keeping warmer clothes around during the day is helpful. The cold can affect your eyelids, mouth, throat, fingers and toes - those were the worst areas for me. The chest port is a bit of a pain as it's har...
by NHMike
Sat Apr 03, 2021 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 104
Views: 42945

Re: Covid 19 vaccine

NH opened appointments to everyone yesterday. I had to reschedule my second dose because Walgreens screwed up and they don't have second appointments available. I found something but it's not ideal. First dose of Pfizer this past Thursday. My arm was sore Thursday night until Friday afternoon. It wa...

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