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by mackswife
Wed May 13, 2015 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm thinking of a lilacbreastedroller
Replies: 20
Views: 2065

Re: I'm thinking of a lilacbreastedroller

Kenny and Jeff - I wish we would hear something soon. It's been a month since we've sent DH's records in...two weeks since we sent the results of his latest scans. Research nurse requested those last reports and said, "they will help us firm up eligibility." Since then....nothing! DH is st...
by mackswife
Wed May 13, 2015 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm thinking of a lilacbreastedroller
Replies: 20
Views: 2065

I'm thinking of a lilacbreastedroller

A shout out to Karin (lilac breastedroller) who is hopefully nearing the end of her first week in the TIL immunotherapy trial and NCI. Karin, if you are able to check in to the board, we'd love to hear how your doing. In the meantime, just know that I am one of may who are cheering you on. I admire ...
by mackswife
Tue May 12, 2015 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really??!!?? UNEXPECTED GOOD NEWS!
Replies: 185
Views: 20078

Re: Really??!!??

Bev - My DH and I have been blessed with friends who have been "holding us up" these past 3 years. Even from afar, we can feel their prayers and their support. I call them our stretcher bearers, and stand amazed at their willingness to bear our stretcher over the long haul. I want to be on...
by mackswife
Fri May 08, 2015 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220646

Re: TIL Immunotherapy at NCI

Karin - I woke up thinking of you this morning. Hope you're doing O.K. At this point, I can't quite imagine how frightened/hopeful/excited/anxious you must be, but I hope DH and I will have a better idea soon. We're in the same boat (I think) as Ceebo and her DH....just waiting to hear SOMETHING fro...
by mackswife
Thu May 07, 2015 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really??!!?? UNEXPECTED GOOD NEWS!
Replies: 185
Views: 20078

Re: Really??!!??

Bev - I cannot wrap my mind around this news. I have no words other than you are very much in my thoughts and prayers.
May all the encouragement, strength and support you've given to others on this board come back to you, 1,000 times over.

Pattie
by mackswife
Sat May 02, 2015 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pollo. . . miss you too
Replies: 10
Views: 1119

Re: pollo. . . miss you too

Dear Pollo, Thank you for your bittersweet post. I'm so very happy to hear that you are feeling well these days, with a good quality of life. I'm happy to hear that you're able to work in your garden, and do some shopping, and that you think your nurse is wonderful. I'm happy that the palliative med...
by mackswife
Thu Apr 30, 2015 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220646

Re: TIL Immunotherapy at NCI

Karin, We did hear from the clinical research nurse, Jessica. She told DH that it was OK to go on chemo if he needed to, in order to keep from getting too sick from disease progression to be in the trial. But, if we hear soon, DH wants to be ready to have the tumor extraction done ASAP. Then, he wou...
by mackswife
Thu Apr 30, 2015 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Passing of my father
Replies: 35
Views: 5241

Re: Passing of my father

I'm so sorry to hear of your loss. It sounds as if you did everything you could to make your father's journey as soft and gentle as possible. My heart goes out to you and your family during this time of grief.
Pattie
by mackswife
Wed Apr 29, 2015 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220646

Re: TIL Immunotherapy at NCI

Karin - Wow! I am so excited for you, and feel remarkably blessed by your willingness to share, and your skill in explaining things so clearly. My DH's paperwork and scans have been sent in. NIH contacted us today to request the CD of a CT scan done this past Monday (which showed progression in size...
by mackswife
Fri Apr 24, 2015 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Blog
Replies: 19
Views: 2039

Re: My Blog

Thanks for sharing your blog Celine. You have a gift for writing and sharing the depth of emotion in the journey. I'll be your most regular reader, and cheer-leader. We have a caring bridge post which I haven't shared on this forum. "Our" cancer journey has been hemmed in on all sides by o...
by mackswife
Fri Apr 24, 2015 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220646

Re: TIL Immunotherapy at NCI

I'm so very excited for you Karin! My DH and I are grateful to you and Sleen for keeping us posted on your experience. We're in process of sending all the required reports, scans and biologics into NIH now. Hope to hear from them soon....a little worried as DH has been off chemo for 4 weeks now as t...
by mackswife
Thu Apr 23, 2015 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm K- RAS Mutant and K- RAS Wild!
Replies: 20
Views: 3096

Re: I'm K- RAS Mutant and K- RAS Wild!

Where else, but on this forum, could one be introduced to a "Wild Mutant"? I hope things continue to work out well for you Christine. By the way, my husband's skin also "looked like leather". We tried everything, but the thing that works the best for him is Aquafor. It feels like...
by mackswife
Thu Apr 16, 2015 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 220646

Re: TIL Immunotherapy at NCI

To DH2Sleen and Karin - Thanks for your well-wishes. We are currently in Italy visiting family and hope to have a message from NIH waiting when we return next week. To answer your question Karin - no, DH has not had stirvarga. Xeloda and Erb and Folfiri and Erb have both failed to stop progression. ...
by mackswife
Thu Apr 16, 2015 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Working that bucket list...
Replies: 6
Views: 1108

Re: Working that bucket list...

To Celine - We're so early in this process, and don't understand all the specifics yet. It sounds like the timeline is much longer than we thought, based on what you're telling me. DH's cancer is progressing rapidly, and he wouldn't be able to go that long without chemo. We're actually in Italy visi...
by mackswife
Tue Apr 14, 2015 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Working that bucket list...
Replies: 6
Views: 1108

Re: Working that bucket list...

Thanks for the suggestion Celine. I just submitted a post on the TIL thread. I've been checking in on a regular basis to see how you are doing. If you don't mind my asking, where are you in the process right now? And how are you doing over-all?

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