I'm sorry about the recent diagnosis and spread. As you will see on this site many people do get better even with significant obstacles facing them. I would suggest getting a second opinion at a major cancer center. I have found that second opinions are extremely helpful in treatment options. You al...

At my age it is hard to tell if it is genetics or chemo however my joints hurt like hell and walk funny most of the time. I believe the chemo is beating my body up.

Mayo county I take it. I was there last year with family and loved it. I am undergoing cryo-ablation for my lung mets. Three have been frozen gone and have one more next month. Reducing tumor burden is the best way to go in my opinion. There is cryoablation, microwave, and radio frequency in additio...

Beansmama, I am glad that surgery is on the horizon and the Keytruda did the trick. My 2 cents-Go slow on all the other loose issues. Move at a pace that feels natural and right. At this stage you probably go between shock and disbelief with a little bit of betrayal and are pissed as all get out-rig...

I talked with my assistant ONC today. She is actually my ONC's assistant. He wasn't out of office. I asked and she said "oh no, he's here - just in the other room with another patient. We trade off sometimes." I was a bit peaved as I was discussing low blood count with his assistant rathe...

I got some lab first to see what my baseline vitamin d levels were. Ask your doc to get your levels.

Peace and God's Blessing to you and your family. This truly has been a long, painful, and difficult journey that begs more questions from the universe than provides answers. May you be surrounded in light. Your wife is free from the body that held her in pain. Prayers sent your way. Bob D

Anyone have any experience or knowledge they can share? I have three lung mets removed via cryo-ablation. I had a chest tube insert for the collapsed lung. I was discharged last Sunday after four days in the hospital. My lymph nodes are swollen in my arm pit regions and are good size and painful. No...

Hello everyone, I am bouncing my plan off the universe for feedback. I have four areas on my pet that light up. Two are seen on ct and all believed to be mets 1 cm and 6 mm). I have been on Avastin and Xeloda "for life." I have pushed and pushed to get my tumor burden reduced and after num...

Thanks for this info. If I hit the lottery, I will be going there. I wonder if anyone has ever had insurance cover the procedure?

Some people have what is called cymbalta discontinuation syndrome and covers some of your symptoms.

I am getting a second opinion at Cleveland Clinic next Tuesday and just got my records from James Cancer in Columbus. I just discovered via my paperwork I am BRAF V600E MSS. I have been pushing my onc for RFA for a couple lung nodules and headed up. I didn't know this piece of information. I am stil...

I became a diabetic because of the steroid infusion. I had to use the insulin on a whole new schedule and still do since I am on Xeloda and it screws with my blood sugar. Take a lot of meter readings and adjust accordingly with docs oversight. B

Rob, Glad you are hanging in there. Your posts in the past have been helpful to me. What you say makes perfect sense. Some people really want to know how you are doing and do so from the heart, others want to satisfy their curiosity which is the human nature element, and others like to report the &q...

Amen I tell you for clean imaging!!!!!!!!!! This stuff is traumatic and a roller coaster ride.