So far I have been responding to the Oxaliplaten infused over 2 hours with minimal side effects. I believe if it ain't broke don't "fix" and will request to continue with my original chemo regimen. They have done a pilot study that appears to indicate change is safe, but I think ability to...

MSKCC is changing the infusion protocol from 2 hours to 68 minutes for Oxaliplatin. They say it shouldn't cause any problems. Any comments or thoughts about this?
Leslie

Hi Bev

Would using a walker enable you to walk greater distances? Don't worry about being embarrassed to use one,if it keeps you safe and prevents falls. You don't need to add a broken hip to your list of medical problems.

Stay well
Leslie

I will be there Nov. 10 for for my 8th round of FOLFIRINOX chemo, butt not until 2 pm.

Leslie
Lynch Syndrome
2014 Pancreatic Cancer Stage 4 -FOLFIRINOX
2003. Colon Cancer Stage 3 - Right Hemicolectomy, 6mos. 5FU bolus & Leucovorin Infusion
1995. Endometrial Cancer Stage 1 - TAH BSO

Jaynee
Hope you are in a little less pain today and heal quickly. Try to stay off your feet as much as possible and keep the foot elevated.
Wishing you well,
Leslie

At MSKCC, they recommend taking a Claritin antihistamine the day before, the day of and the day after a Neulasta shot prevents side effects from occurring. So far, after 4 Neulasta treatments it works -no side effects felt.
Leslie

CAT scan showed about 20% shrinkage of the liver met and pancreas tumor. No new mets. The FOLFIRINOX appears to be doing it's job, though of course I would have preferred a greater percentage shrinkage, I am pleased with the results. I will continue on same regimen for the forseeable future. Leslie ...

I have been using the Miralax prep. Its half the volume of go litely and it is tasteless. I mix it with a clear pneaple drink and alittle mango tea and it is palatable thru the entire prep. Before the Miralax 2 Ducolax tablets are taken. In addition, the day prior to prep i fllow a low residue diet ...

Having CAT of abd/pelvis/chest on Tuesday October 14th. First scan after 5 rounds of Folfirinox, which I have tolerated remarkably and unexpectedly well. Since my CA19-9 and CEA were within normal limits prior to treatment, and I had no symptoms, the CAT will tell us if the cancer is responding to t...

Research on the genetic mutations that greatly increase a person's chance of developing colon or other related cancers is still in its early stages. Not all mutations have been identified yet. With a family history that you described, it would be prudent to follow the surveillance protocol recommend...

Greg Sending you and your wife condolences on the loss of your daughter. She will live on forever in your heart and memories of her. The "old person's disease" colon cancer claims another young victim. It's so sad. We need more awareness that colon cancer can affect anyone at any age. Take...

Belle Rooting for you to qualify for the clinical trial. There have been good results with immunotherapy in other cancers. Wishing you well, admittance to the clinical trial and having good results from it.. Leslie Lynch Syndrome 2014 Stage IV Pancreatic Cancer 2003 Stage III Colon Cancer 1995 Stage...

What about someone with undetected Lynch syndrome. With Lynch a polyp can develop very quickly into a colon cancer within within the space of one year. Waiting three years may result in an advanced colon cancer, when just removing the polyp ay the time of discovery could nip the potential problem in...

i tried to access the article link but it doesn't go through. Could you recheck it? I am interested, because many years before developing my assorted cancers, I had psoriasis on one foot, which spontaneously cleared up after 1 year. Leslie Lynch Syndrome PMS2 mutation 2014 Pancreatic Cancer Stage IV...

Lynch colon cancer is slow to metastacize and studies have shown that through Stage III, surgery alone is usually curative and the risks from chemo outweigh any potential benefits. However, these studies were done when the only treatment was 5FU. I don't believe there are research studies that inclu...