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by DBF
Mon Sep 02, 2013 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 53rd street gang! labor day
Replies: 7
Views: 969

Re: 53rd street gang! labor day

I'll be at MSK tomorrow (Tuesday) at around 10am till ??

I have appointments at 10 and at 11. Happy to meet for an afternoon coffee/quick bite to eat (or a chat over graham crackers in the waiting room! :-)) depending on the wait, of course.
by DBF
Tue Aug 27, 2013 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed With Stage IV Colon Cancer
Replies: 24
Views: 5529

Re: Just Diagnosed With Stage IV Colon Cancer

Julie,

Thanks so much for sharing the blog- it was great to read! I'm also stage 4, a mom, recently diagnosed AND was (until today) at NYU as well. I had my colon resection done there, but I'm getting my liver resection done at MSK.

Please feel free to PM me if you'd like to chat!

DB
by DBF
Tue Aug 27, 2013 9:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver resection scheduled!
Replies: 2
Views: 474

Liver resection scheduled!

So I met with a surgeon and oncologist at MSK today, and after reviewing my CT Scan, they said they wanted to get rid of the liver tumor before doing chemo. They scheduled my liver resection surgery for September 7th (EEK! :shock: So soon!) and I'll start chemo shortly after. The surgeon said he mig...
by DBF
Tue Aug 27, 2013 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My go at a things people say that irritate me post
Replies: 57
Views: 8500

Re: My go at a things people say that irritate me post

Love this thread! I've found that the people in my life have been largely supportive and wonderful. But these... Before colon resection: "You don't need surgery. You need to meditate and eat [insert rare root]." This was followed by the usual rant against the scam of western medicine. &quo...
by DBF
Mon Aug 26, 2013 7:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver resection update!
Replies: 11
Views: 1035

Re: Liver resection update!

Thanks for the update- so glad to hear the surgery went well! I hope you have a very quick recovery.
by DBF
Thu Aug 22, 2013 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan today
Replies: 53
Views: 4300

Re: Scan today

Yay!!! I was looking for a post from you about the scan. Awesome news! :-)
by DBF
Wed Aug 21, 2013 6:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver biopsy result: Met
Replies: 19
Views: 8374

Re: Liver biopsy result: Met

Thanks so much for all this great info. I'm going to see Dr. Jarnagin at MSK, and I'm going to call today about seeing Dr. Kemeny. I will ask about the HAI pump.

Bev, good luck on your scan today. I'll be thinking of you.
by DBF
Wed Aug 21, 2013 6:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port placement left or right?
Replies: 17
Views: 2379

Re: Port placement left or right?

Hi, I asked for my port to be placed on the left side because I wanted to be able to flush it out by myself (I'm right handed), but the radiologist said it would be easier to put it in on the right because of where the vein is. I went ahead with having it on the right, but reading these posts of tro...
by DBF
Tue Aug 20, 2013 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver biopsy result: Met
Replies: 19
Views: 8374

Liver biopsy result: Met

Well, I guess that brings me to stage IV now. I have one met (2cm) at the top of my liver. I'm devastated and still, I think, in shock at how rapidly this has all progressed- like a bad news barrage- every report has been bad these past few months. Meeting with my oncologist from NYU tomorrow, then ...
by DBF
Sat Aug 17, 2013 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about port implantation
Replies: 13
Views: 983

Re: Questions about port implantation

I got my port installed yesterday. I had a local anesthesia (3-4 injections at the site) and sedation. I felt no pain at all. Today it feels slightly tender. I was told to get numbing cream before the port is accessed and to put the cream on 45 min to an hour before insertion. I'm so sorry your mom ...
by DBF
Sat Aug 17, 2013 6:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - URGENT - Hotel in NYC???
Replies: 5
Views: 849

Re: O/T - URGENT - Hotel in NYC???

I second the recommendation for the POD hotel. Both locations are in midtown (not sure how far down you wanted to be), but the rooms are certainly affordable.. I would also recommend the Marriott on west 57th street. The rooms are reasonably priced for NYC, and the bonus there is the outdoor, roofto...
by DBF
Fri Aug 16, 2013 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemangioma vs met on liver
Replies: 7
Views: 1495

Re: Hemangioma vs met on liver

Well, I had the liver biopsy today. I also had my port installed during the same procedure. I had a local anesthesia with a "side" of sedation (versed and fentanyl) and I didn't feel a thing. It was tough to decide whether to do the biopsy- I hadn't considered the issue of seeding at first...
by DBF
Wed Aug 14, 2013 8:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: News about Anji (Larry's wife) 5th UPDATE
Replies: 76
Views: 11460

Re: News about Anji (Larry's wife) 5th UPDATE

So happy to hear this news! Sending good wishes for a speedy recovery.
by DBF
Tue Aug 13, 2013 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemangioma vs met on liver
Replies: 7
Views: 1495

Re: Hemangioma vs met on liver

Hi Kathryn, Thank you for responding! The radiologists were looking at the hemangioma on my recent CT scan (from this past Friday). I'm not sure why they couldn't make a determination. I do know there was a lot of discussion- at first the consensus was hemangioma, but then today they feel there's st...
by DBF
Tue Aug 13, 2013 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemangioma vs met on liver
Replies: 7
Views: 1495

Hemangioma vs met on liver

Well, more bad news from the CT Scan. Now that the scan has been passed around to numerous radiologists, there is a question that the spot that was previously classified as a hemangioma might actually be a met because it increased in size over the last month or so. I have to get it biopsied. The fir...

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