I'll be at MSK tomorrow (Tuesday) at around 10am till ??
I have appointments at 10 and at 11. Happy to meet for an afternoon coffee/quick bite to eat (or a chat over graham crackers in the waiting room! ) depending on the wait, of course.
Thanks so much for sharing the blog- it was great to read! I'm also stage 4, a mom, recently diagnosed AND was (until today) at NYU as well. I had my colon resection done there, but I'm getting my liver resection done at MSK.
So I met with a surgeon and oncologist at MSK today, and after reviewing my CT Scan, they said they wanted to get rid of the liver tumor before doing chemo. They scheduled my liver resection surgery for September 7th (EEK! :shock: So soon!) and I'll start chemo shortly after. The surgeon said he mig...
Love this thread! I've found that the people in my life have been largely supportive and wonderful. But these... Before colon resection: "You don't need surgery. You need to meditate and eat [insert rare root]." This was followed by the usual rant against the scam of western medicine. &quo...
Thanks so much for all this great info. I'm going to see Dr. Jarnagin at MSK, and I'm going to call today about seeing Dr. Kemeny. I will ask about the HAI pump.
Bev, good luck on your scan today. I'll be thinking of you.
Hi, I asked for my port to be placed on the left side because I wanted to be able to flush it out by myself (I'm right handed), but the radiologist said it would be easier to put it in on the right because of where the vein is. I went ahead with having it on the right, but reading these posts of tro...
Well, I guess that brings me to stage IV now. I have one met (2cm) at the top of my liver. I'm devastated and still, I think, in shock at how rapidly this has all progressed- like a bad news barrage- every report has been bad these past few months. Meeting with my oncologist from NYU tomorrow, then ...
I got my port installed yesterday. I had a local anesthesia (3-4 injections at the site) and sedation. I felt no pain at all. Today it feels slightly tender. I was told to get numbing cream before the port is accessed and to put the cream on 45 min to an hour before insertion. I'm so sorry your mom ...
I second the recommendation for the POD hotel. Both locations are in midtown (not sure how far down you wanted to be), but the rooms are certainly affordable.. I would also recommend the Marriott on west 57th street. The rooms are reasonably priced for NYC, and the bonus there is the outdoor, roofto...
Well, I had the liver biopsy today. I also had my port installed during the same procedure. I had a local anesthesia with a "side" of sedation (versed and fentanyl) and I didn't feel a thing. It was tough to decide whether to do the biopsy- I hadn't considered the issue of seeding at first...
Hi Kathryn, Thank you for responding! The radiologists were looking at the hemangioma on my recent CT scan (from this past Friday). I'm not sure why they couldn't make a determination. I do know there was a lot of discussion- at first the consensus was hemangioma, but then today they feel there's st...
Well, more bad news from the CT Scan. Now that the scan has been passed around to numerous radiologists, there is a question that the spot that was previously classified as a hemangioma might actually be a met because it increased in size over the last month or so. I have to get it biopsied. The fir...