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by keepcalmcarryon
Sun Jul 31, 2011 11:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erik J. Rupard, M.D.
Replies: 68
Views: 5789

Re: Erik J. Rupard, M.D.

Just to be a gadfly, I'd like to know if its ok to give positive opinions of physicians on this forum? And if so, if have a different, and negative opinion, must I refrain from rebuttal for fear of libel? For example, assume Gaelen writes glowingly of Dr. Kemeny but I had a terrible experience with ...
by keepcalmcarryon
Sun Jul 31, 2011 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My XP with total colectomy via IRA (ileorectal anastomosis)
Replies: 6
Views: 2693

Re: My XP with total colectomy via IRA (ileorectal anastomos

I'm glad you found a surgeon you are happy with and are doing well.
I join with you in warning people away from the Thomas Jefferson surgeon.
by keepcalmcarryon
Mon Jul 25, 2011 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: incontinent--please help!
Replies: 4
Views: 2005

Re: incontinent--please help!

Many thanks for your reply. I think you are right that it is triggered by movement; I never would have thought of that. I have an email in to my trial onc's nurse practitioner to ask her to contact the urologist--i don't have much luck with them. (The oncology staff are wonderful very helpful and pa...
by keepcalmcarryon
Sun Jul 24, 2011 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: incontinent--please help!
Replies: 4
Views: 2005

incontinent--please help!

the following is a bit graphic. Several months ago I had a ureteric stent put in, since my pelvic tumor was cutting off the ureter and the kidney functioned only about 8%. Recently, I had some trouble with the stent–a couple of times bedwetting, sore, etc. Since my kidney only functions at about 8%,...
by keepcalmcarryon
Thu Jul 14, 2011 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Help in Philadelphia
Replies: 2
Views: 530

Re: Need Help in Philadelphia

I sent you a p.m.,just wanted give you a heads-up.
by keepcalmcarryon
Wed Jun 29, 2011 1:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hiccups and Zofran?!?!
Replies: 8
Views: 3826

Re: Hiccups and Zofran?!?!

I read a study that showed swallowing a gritty substance stopped the hiccups. I use sugar but salt or sand (if desperate) work too. It's worked for me and is worth a try
by keepcalmcarryon
Mon May 23, 2011 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A POLL How would you want to spend your last few weeks.
Replies: 23
Views: 2251

Re: A POLL How would you want to spend your last few weeks.

Can I pick two options? I'd like in-home hospice for as long as I'm coherent and not in uncontrollable pain. But then, once it appears likely I'll die in the next week or so, I'd like to be moved to an in-patient hospice facility or even a hospital. I don't want my husband to remember me dying in ou...
by keepcalmcarryon
Sun May 22, 2011 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Letting Go, by Atul Gawande
Replies: 82
Views: 8046

Re: Letting Go, by Atul Gawande

It's interesting how people reading the same article come away with such differing understandings of its themes. I didn't think that the main point of the article concerned doctors or caregivers giving advice to end-stage patients. Rather, I think the author was suggesting the importance of the pati...
by keepcalmcarryon
Sat May 21, 2011 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Letting Go, by Atul Gawande
Replies: 82
Views: 8046

Re: Letting Go, by Atul Gawande

I would like to thank Hanna for posting a link to the article. It's not just that I founf it interesting and thought provoking. My husband is incredibly supportive in most ways but is in total denial of my probable outcome. He shies away from my attempts to discuss end of life decisions. But I was a...
by keepcalmcarryon
Thu May 19, 2011 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ablation/s
Replies: 4
Views: 737

Re: Ablation/s

I had proton therapy at the U or Pennsylvania on my pelvic node. Just finished at the end of March. Very early days but so far MRi and Ct show no new growth, which we're hoping means its dead.

I'd be happy to answer any questions anyone has about the Protons.
by keepcalmcarryon
Sat May 14, 2011 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some good news
Replies: 61
Views: 4754

Re: Some good news

Congratulations. I hope the RFA goes well and gets all of the nasty tumors.
My onc talked me out of RFA/VATs and into a clinical trial instead. If its not working in 2 months I'm going to insist on RFA.
I think you're absolutely right to go for what YOU feel is best, not what your onc wants
by keepcalmcarryon
Wed May 11, 2011 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical trials
Replies: 2
Views: 577

Re: Clinical trials

I also am 'saving' Erbitux. My onc's reasoning is that trials tend to have lots of exclusions, such as cardiac or nervous system problems caused by mets,how recently and what type of chemo you've had, etc. As standard therapies like Erbitux don't have exclusions, they can be saved to use if the tria...
by keepcalmcarryon
Sat May 07, 2011 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung thingies:should they stay or should they go?
Replies: 9
Views: 1149

lung thingies:should they stay or should they go?

I've created a debate between the intereventional radiologist and thoracic surgeon on one side and my onc on the other. The interventional guy thinks that a combination of RFA and video thoracotomy (VATS) could remove my thingies. They say the number of nodes (6) has not changed in 6 months on scans...
by keepcalmcarryon
Fri Apr 29, 2011 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone taking Xeloda?
Replies: 27
Views: 3882

Re: Anyone taking Xeloda?

When I've had xeloda my onc recommended taking "preemptive" action against hand-foot syndrome by sliming my hands and feet several times a day with something like uidderly sMooth cream. Also, gargling with a liTtle salt and baking soda in water helpsprevent mouth sores. I always take probi...
by keepcalmcarryon
Fri Apr 29, 2011 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: scan tomorrow
Replies: 46
Views: 3224

Re: scan tomorrow

Here's wishing you a perfectly, crystal clear scan.

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