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by mike1965
Tue Apr 05, 2016 12:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Watch and Wait - 2 years on...
Replies: 8
Views: 1561

Re: Watch and Wait - 2 years on...

Great news glad it is working. I tried that approach did not work for me.
by mike1965
Tue Mar 29, 2016 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling Fortunate! - 4+ Years NED after Stage 3C Diagnosis
Replies: 14
Views: 1534

Re: Feeling Fortunate! - 4+ Years NED after Stage 3C Diagnosis

Congrats !!!! Great News. Like to hear positive news as I start the battle.
by mike1965
Wed Mar 23, 2016 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin D3, What is your daily dose?
Replies: 30
Views: 3111

Re: Vitamin D3, What is your daily dose?

Nik. I was taking 5000 units. I stopped before my surgery. I have to ask oncologist if okay to go back. It did help. I went from 20 to 33 in 3 months. Still low but better.
by mike1965
Wed Mar 23, 2016 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Re: Chemo Question

Nik. Thanks for the info. I have bad veins also so the port sounds like it will be very helpful. They have trouble finding my veins. I will ask the doctor about possible difference in dosage.
by mike1965
Wed Mar 23, 2016 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Re: Chemo Question

Thanks for all the input from everyone. All these decisions are very stressful. So many choices and each choice has its own set of consequences. Plays with your mind and emotions. I will sit down with my oncologist and talk to him about both options.
by mike1965
Wed Mar 23, 2016 1:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Re: Chemo Question

Mike, if you choose Xeloda, but want to be as aggressive as possible, as a stage 3, of course you'll need to add Oxaliplatin. It can be given intravenously, but can be really hard on the veins. I can attest to the fact that it was hard on my veins via IV, but much easier via the port. If you have a...
by mike1965
Wed Mar 23, 2016 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Re: Chemo Question

Thanks for the input. The doctor said it would be on Monday. I emailed him and asked about xeloda. He responded that I could do xeloda but I would have to do oxaliplatin by IV therefore would need a port.
by mike1965
Tue Mar 22, 2016 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Re: Chemo Question

Hi Mike, I am fairly new to this forum too but I can tell you that is the exact same treatment for my DH. In the furture, they can teach someone how to remove the infusion for you after 48 hours so you don't have to always go back in the Wednesday after. Good luck and lots of prayers for you. Thank...
by mike1965
Tue Mar 22, 2016 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Re: Chemo Question

Mike, there are always options, butt 6 months of folfox with 46 hour pump is standard care. One other option you may want to investigate/discuss with onc is Xeloda instead of the pump. I never did xeloda so can't offer much of an opinion, butt use the search feature and you will find discussions on...
by mike1965
Tue Mar 22, 2016 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Question
Replies: 27
Views: 3137

Chemo Question

I saw oncologist today. He wants to start Chemo on Apr. 18th. He wants to do six months of chemo with Folfox every other week. He wants to implant a port in my chest. He stated that I would go in on Mondays for six hours for chemo and then they would hook up a chemo pump to run while at home for unt...
by mike1965
Tue Mar 22, 2016 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Chemo/Radiation notes
Replies: 35
Views: 7550

Re: My Chemo/Radiation notes

Wish you well. Thanks for sharing. I saw oncologist today and he wants to start chemo in April.
by mike1965
Fri Mar 18, 2016 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2 vs Stage 3
Replies: 17
Views: 2597

Re: Stage 2 vs Stage 3

Thanks for all your input. Regardless of what the current stage is. It has shown me that I need to be much more aggressive in my approach toward this cancer. My first Surgeon was very lax and I was uneducated. That is now longer the case. I am upset he wasted valuable time with his lax approach. But...
by mike1965
Wed Mar 16, 2016 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2 vs Stage 3
Replies: 17
Views: 2597

Re: Stage 2 vs Stage 3

Thanks for the info Del.
by mike1965
Wed Mar 16, 2016 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2 vs Stage 3
Replies: 17
Views: 2597

Re: Stage 2 vs Stage 3

thanks Nik for the info. It is just a lot of info it can get crazy. I have not seen the oncologist yet but I will ask him about this. I am just pissed off that my original surgeon suggested no surgery and I wasted six months. But I am moving on from that and trying to educate myself on this ffing di...
by mike1965
Wed Mar 16, 2016 9:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2 vs Stage 3
Replies: 17
Views: 2597

Re: Stage 2 vs Stage 3

I have pathology report in front of me. Maybe Lymph node involvement not sure. I am confused. Hopefully you can help me understand this info Stage (pTNM) Primary Tumor (pT): PT1: Tumor invades submucosa Regional Lymph Nodes (pn) PN1c: Tumor deposits in the subserosa or non peritonealized pericolic o...

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