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by crazylife
Mon May 15, 2017 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED 4.5 year after lung recurrence
Replies: 10
Views: 2119

Re: NED 4.5 year after lung recurrence

You are my guardian angel today! Scan and appt with DH oncologist and lung surgeon next week to discuss next steps for some suspicious spots. We are both so nervous! So nice to know maybe after this he can be NED again.
by crazylife
Wed Mar 15, 2017 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bruising around port
Replies: 5
Views: 1325

Re: Bruising around port

My husband has his flushed every few months too. He actually went in once just for that. Definitely ask about it.
by crazylife
Fri Mar 10, 2017 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA and lung mets size question?
Replies: 3
Views: 1109

Re: RFA and lung mets size question?

My multiple lung mets are all small, 7mm or less. No one seems to give me any hope of removing them, just chemo for life. It's frustrating to me too. I've done really well on Folfiri + Avastin for last year. But I'm thinking I need to look seriously into some trials since I feel like I'm just waiti...
by crazylife
Wed Mar 08, 2017 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more scans, feeling scared
Replies: 17
Views: 5300

Re: No more scans, feeling scared

Did you have 37 lymph nodes positive? That seems like a lot to stop scanning but what do I know. Honestly, I have no clue and was just asking.
by crazylife
Wed Mar 08, 2017 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom gained her angel wings
Replies: 21
Views: 5804

Re: Mom gained her angel wings

I am so sorry Natalie. My heartbreaks for you. Though you are too young to lose your Mom, try and remember all of the wonderful memories you have mad with her over the years. Try not to focus on what you are missing. So much easier said than done, but I think it will make sense to you once time goes...
by crazylife
Sat Mar 04, 2017 10:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung thingys
Replies: 6
Views: 1586

Re: Lung thingys

[quote="Redtexa5"]I am afraid it is not unusual to have the hide and seek lung thingy. I have been having this experience for eight years now. Yes, it is no fun at all, and NO it does not get any easier as time goes by. However, there is just not much to do about it. I don't know if this w...
by crazylife
Sat Mar 04, 2017 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung thingys
Replies: 6
Views: 1586

Re: Lung thingys

So I am guessing this wait and see is pretty normal? I was I kinda want them to determine what's happening and go after it now.
by crazylife
Thu Mar 02, 2017 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung thingys
Replies: 6
Views: 1586

Lung thingys

My husbands lung things have literally been playing hide and seek since diagnosis. They show up on one scan, but not the next, then show up again. It is literally sending me over the edge. Yesterday's scan showed 3 spots but 2 were already there so it's a watch and wait game. Ugh.
by crazylife
Thu Feb 09, 2017 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice/Insight Please - Wife Just Diagnosed
Replies: 27
Views: 6191

Re: Advice/Insight Please - Wife Just Diagnosed

I would like to reiterate that you should get her to Sloane Kettering in NY asap. Ask for Dr. Kemeny as your oncologist, Dr. DeMatteo for liver surgery. They have saved many lives and hers too.

Good luck!
by crazylife
Sat Feb 04, 2017 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disability
Replies: 3
Views: 1184

Re: Disability

Wow Bev G! DH has been nervous about finding a job since he's been NED since surgery. He has some side effects from chemo still but slowly starting to get better. Will let him know he still has some time to recover before jumping back into the workforce.
by crazylife
Thu Feb 02, 2017 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Enzymes out of whack after chemo
Replies: 5
Views: 1365

Re: Liver Enzymes out of whack after chemo

Nicks were normal by his October appointment. He finished up chemo in June.

Glad he is doing well!!
by crazylife
Mon Jan 16, 2017 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC metastasis to lungs first?
Replies: 15
Views: 4743

Re: CRC metastasis to lungs first?

Thank you for your prompt replies. The worst part about this is the waiting. Its terrible. Im trying to be as positive and optimistic as possible but I am scared and worried of course. I just don't understand how 3 months ago there was no nodule but in just 12 weeks they find a nodule thats 7mm alr...
by crazylife
Tue Jan 10, 2017 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad news yesterday
Replies: 140
Views: 19173

Re: Bad news yesterday

Prayers for you! I so wish you could see dr. Kemeny from MSK. She may be able to shrink that one met with hai and get it respectable. So many have had luck with her.
by crazylife
Wed Dec 21, 2016 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a stupid test
Replies: 23
Views: 6856

Re: CEA is a stupid test

True, many of us can't rely on CEA. Mine was 4.9 at dx (stage 4). Once again only 4.9 with lung mets. What really pissed me off, CA19-9 is another of these, used to be used (still is in some countries) but no more in the US unless you pay. Imo, it should be if CEA shows nothing. It should be auto b...

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