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by crazylife
Sun Oct 29, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ct scans
Replies: 5
Views: 1394

Re: Ct scans

It drives me mad! 7 lung nodules one scan and now only 3. I am grateful for that, but it drives me mad. I do think it depends on the radiologist.
by crazylife
Wed Oct 18, 2017 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 8
Views: 1530

Re: Family history

Tell your GP to stick it! Get checked ASAP and often.
by crazylife
Sun Oct 15, 2017 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: vacation, travel, whatever...just do it!
Replies: 12
Views: 2275

Re: vacation, travel, whatever...just do it!

Puerto Rico, Greece, Italy, Walt Disney world, lake George Maine, Vermont all since DH's diagnosis.

Plan to keep on going for as long as he is able :)
by crazylife
Sat Oct 14, 2017 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What did you tell the kids?
Replies: 14
Views: 3355

Re: What did you tell the kids?

We have a 10 year old and a 7 year old. Just 8 and 5 1/2 a husbands diagnosis. We have been completely honest with them about what is going on and they have handled it amazingly well. We answered all of their questions honestly. My son asked me the other day if dads cancer was back. I said yes and w...
by crazylife
Sun Sep 03, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung cancer spots ... Chemo for life?
Replies: 11
Views: 4799

Re: Lung cancer spots ... Chemo for life?

My DH was initially told inoperable as well. When we mentioned going to Dr. Rolle they changed their tune a bit and said if they see stability, meaning no new mets, they will go in and remove them. I would keep pushing until someone says yes. It seems to me like your mom has showed stability so I th...
by crazylife
Thu Aug 10, 2017 7:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met cryoablation tomorrow
Replies: 12
Views: 3317

Re: Lung met cryoablation tomorrow

What's the difference between cryoablation and RFA? Congrats on getting those suckers evicted!
by crazylife
Thu Aug 10, 2017 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo or No ?
Replies: 17
Views: 4873

Re: Maintenance Chemo or No ?

DH has been off chemo since June 2016. That's 14 months. Scans are showing a few tiny spots in lungs but they are still keeping him off chemo for now.
by crazylife
Fri Aug 04, 2017 9:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coughing up Blood with Lung Mets??!!
Replies: 3
Views: 1246

Re: Coughing up Blood with Lung Mets??!!

Surgeon thinks it's the RFA too. He did say very uncommon to see effects two months out but CT showed nothing amiss. Blood work and vitals were great. Thinking to take a look down his throat to see if it's something there.

Scared the hell out of us! Thanks for the advice ❤️
by crazylife
Thu Aug 03, 2017 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coughing up Blood with Lung Mets??!!
Replies: 3
Views: 1246

Coughing up Blood with Lung Mets??!!

DH has a few tiny lung mets. So tiny they are t even being treated yet. He went to ER last night because he coughed up a mouth full of blood. All checked out ok, but doc said it can happen with mets. Is this something we can expect? He also did have RFA about 8 weeks ago to one of the mets But would...
by crazylife
Mon Jul 31, 2017 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV for 4.5 years.....NED again!!
Replies: 12
Views: 2716

Re: Stage IV for 4.5 years.....NED again!!

Congrats!!!! Would love to hear your thoughts on the laser lung surgery as well. DH is in same boat with 5 lung mets too scattered to be removed surgically. They mentioned RFA when they grow. Also, how does on get on the ADAPT protocol? Do you need to see dr. Lin or just ask your oncologist about it...
by crazylife
Sun Jul 16, 2017 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT protocol
Replies: 4
Views: 1732

Re: ADAPT protocol

Thanks Sophy! DH has low Tumor burden. Few mets to lungs that are tiny. I think four or five right now. I suggested laser lung surgery to the oncologist and she didn't see the point of it. She said they can RFA them as they become an issue. They did RFA to one six weeks ago that worked well. Why did...
by crazylife
Sat Jul 15, 2017 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT protocol
Replies: 4
Views: 1732

ADAPT protocol

I've seen this mentioned many times on this board. What is it? Is it only through Dr. Lin?

Thanks!
by crazylife
Mon Jun 19, 2017 3:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met treatment experience
Replies: 6
Views: 1800

Re: Lung met treatment experience

[quote="Maia"]I don't know if this helps but just came across today with an immuno trial, combination with Avastin and Folfox. It is for just diagnosed metastatic CRC BUT allows also those who had chemo more than one year ago. Thanks Maia! We have an appt with the trial people at MSK and I...
by crazylife
Mon Jun 19, 2017 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met treatment experience
Replies: 6
Views: 1800

Re: Lung met treatment experience

There are 4 in total. One was removed via RFA about a month ago. One is growing and other two are new nodules just discovered.
by crazylife
Sun Jun 18, 2017 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met treatment experience
Replies: 6
Views: 1800

Lung met treatment experience

DH has a few lung mets under a cm. He had one ablated a few weeks ago due to size. Currently no plans to put him back on chemo. He's been off chemo since June 2016. Is this normal? We went to sloane and Yale and they said the same thing - wait and maybe put him back on chemo in 6 months or so. Anyon...

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