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by prs
Sat Sep 16, 2017 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just to update, beceause of neuropathy my oncologist switched me to xeloda pills twice a day, 2 weeks on , 1 week off, 2 rounds, my picc line is out, that part feels good. MRI and CT both came back negative, gonna see my surgeon next week. mozart, I hope this works for you as well as it did for me....
by prs
Tue Sep 05, 2017 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Sreekanth, in my case it was the oxaliplatin infusions that caused all my blood counts to fall. Are you sure it's the 5FU causing your problem? I took Xeloda pills instead of 5FU and for my weight and height the official Xeloda dose should have been 2,300 mg twice per day. In fact my oncologist star...
by prs
Sun Aug 27, 2017 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thx prs for asking, I will try to push myself to complete chemo, this time I ask for 3 weeks between, my oncologist agreed, should make life a bit easier. I did 18 weeks of Xelox and then was put on hold because of low blood counts. After three weeks delay the blood counts were still too low so my ...
by prs
Sun Aug 27, 2017 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

mozart13, hope all is well. How are you holding up to the chemo?
by prs
Sat Aug 26, 2017 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 360816

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My Xeloda dose during radiation was only 1,000 mg twice per day, although my weight was 165 lbs. I understand, that based on experience, my oncologist preferred to prescribe a lower dose that his patients could more easily tolerate, rather than have patients stop taking the pills altogether because ...
by prs
Wed Aug 23, 2017 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi vip, I think the various Kaiser regions are somewhat autonomous. I know for sure the only reason I'm on W&W is because my colorectal surgeon at Kaiser Sunset got permission from the powers that be to introduce it at that facility. Given it's not an approved treatment I understand Kaiser South...
by prs
Tue Aug 22, 2017 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 36
Views: 6917

Re: More chemo?

Basil, I don't know anything about the PROSPCT trial you were in. Is it possible they are starting to get results from the trial that are leading them to re-evaluate the treatment?
by prs
Mon Aug 21, 2017 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 360816

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm having the typical radiation issues but at least I'm mostly regular. It's not diarrhea but it's not hard either. It is actually nice as I seem to be having fewer false urges. I'm using toilet paper that I run under the faucet for two seconds to clean up and still thinking about the sitz bath. M...
by prs
Sat Aug 19, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

For future reference here is the link to determine if a colorectal surgeon is board certified, for best results enter the last name only and click on Submit:

http://www.abcrs.org/verify-a-physician-2/

Mike yes, your surgeon is very well qualified.
by prs
Sat Aug 19, 2017 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

At Kaiser they wouldn't even give me an appointment until six weeks after radiation ended. I was told any earlier my rectum would be too swollen and inflamed from the radiation for them to make a good determination of the results. It was the longest six weeks of my life!! That appointment was a phys...
by prs
Wed Aug 16, 2017 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 432
Views: 138051

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Sree, lots of good information in your post, thank you for contributing to the thread. I think it's very important to note it took the full ten weeks for your tumor to finish shrinking.

We often see people who have their surgery only six weeks after radiation and that's too soon!!!
by prs
Wed Aug 16, 2017 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 360816

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The way I discovered I had a tumor was I started having pain in my rectum during exercise. The pain started as my pulse began to increase. At the tumor board meeting all the Drs felt obliged to stick their fingers up my ass and feel my tumor. I guess actually touching a cancer tumor was a new experi...
by prs
Wed Aug 16, 2017 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 360816

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike, your treatment journey is going to be a bitch, but it sure beats the alternative. :)

I firmly believe it's good to be prepared for the worst, but keep on hoping for the best, and that hope helps you keep battling on thru the treatment.

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