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by Soccermom2boys
Wed Jun 29, 2016 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 rounds FOLFOX done - 1/2 way there . . . .need encouragement
Replies: 14
Views: 1500

Re: 6 rounds FOLFOX done - 1/2 way there . . . .need encouragement

As for staying hydrated, I think I do pretty well on that front. A few days before infusion, I'll drink coconut water and I usually drink a Propel water the day of, in addition to lots of regular water. I've also been using one of those infuser bottles, adding lemon wedges or cucumber slices. Oddly...
by Soccermom2boys
Tue Jun 28, 2016 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 rounds FOLFOX done - 1/2 way there . . . .need encouragement
Replies: 14
Views: 1500

Re: 6 rounds FOLFOX done - 1/2 way there . . . .need encouragement

I am so feeling for you--have been exactly where you are now wondering how I would finish all of my (eight) rounds of chemo, so I would imagine twelve rounds really are looking daunting. I was told by my onc I needed to do eight rounds which they equate to four months and when added to the xeloda I ...
by Soccermom2boys
Mon Jun 27, 2016 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of chemo
Replies: 14
Views: 2330

Re: Scared of chemo

Awww, sorry to hear the worry and fear of chemo in your post. Had to be tough when the doctor thought your results would be fine and then came back that there was lymph node involvement, sorry. Well, I am a month out from completing 8 rounds of Folfox and I would describe it as miserable, but tolera...
by Soccermom2boys
Thu Jun 23, 2016 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR TOMORROW FISTULA REPAIR - SO SCARED
Replies: 12
Views: 1576

Re: APR TOMORROW FISTULA REPAIR - SO SCARED

Count me in the APR club! Yeah, it's by no means what anyone wants to have, but I am six months out and doing fairly well. Just went to the pool for the first time yesterday with the colostomy pouch--was a big mental milestone for me that no one else would know about. Every time you hit a milestone ...
by Soccermom2boys
Fri Jun 10, 2016 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: An Original Member
Replies: 51
Views: 6763

Re: An Original Member

(I wish I was tech savvy and could figure out how you people do quotes, but not there yet!) Nik--you have helped probably hundreds I am willing to bet! Not a day goes by where you aren't offering support and advice that is sound and helpful. No doubt your emotions are up and down like a roller coast...
by Soccermom2boys
Fri Jun 10, 2016 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling Stuck
Replies: 4
Views: 846

Re: Feeling Stuck

CLD--everything you wrote is completely on target emotionally given what your husband and your family has been through the past year and a half. I too always have that thought in my mind with regard to "what if it comes back", but I do my best to try to keep moving forward as well and embr...
by Soccermom2boys
Fri Jun 10, 2016 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sucky Cancer Birthday
Replies: 13
Views: 1440

Re: Sucky Cancer Birthday

Loved this post Writergirl as I just had a birthday two weeks ago and didn't quite know what to make of it myself. I can so relate to the "what would you like for your birthday" question--my 14 year old asked the same and of course the mind goes straight to "the ability to be cancer f...
by Soccermom2boys
Fri Jun 10, 2016 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: An Original Member
Replies: 51
Views: 6763

Re: An Original Member

Hey-I don't mean to go off topic (sorry-not a long term member and while I do not know Kenny, based on this thread I think I would absolutely enjoy his voice on here!), but Nik, it was your last post about the roller coaster emotions that got me. I can 100% relate and that is why I come to Colon Tal...
by Soccermom2boys
Fri Jun 10, 2016 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Colon Cancer on the ROAD TO RECOVERY
Replies: 13
Views: 2592

Re: Stage IV Colon Cancer on the ROAD TO RECOVERY

Hi JesseJ-- I also don't want to advocate the no chemo route just because I truly feel cancer is something you don't fool around with, but at the end of the day that is a decision for your mom to make. What really caught my eye in your post was the tail end regarding help for a permanent colostomy. ...
by Soccermom2boys
Fri May 06, 2016 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My personal gratitude for Colon Talk--you ALL are the best!
Replies: 13
Views: 2120

My personal gratitude for Colon Talk--you ALL are the best!

I met with a genetic counselor today as my rectal cancer diagnosis came out of no where in my family health history plus my earlier age onset. At any rate, as I was sitting there and discussing with her what I knew, it really hit me how much I have learned and how basically I owe it all to my daily ...
by Soccermom2boys
Mon Apr 04, 2016 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leg Swelling After Sutgery
Replies: 8
Views: 1783

Re: Leg Swelling After Sutgery

Hey there--I can sort of relate. Let me tell you my story and then you can perhaps think it over and see if any of it applies to you. Literally one month after my APR surgery I felt almost like a muscle pull in my left groin area. I like to walk so I didn't attribute it to anything major, just norma...
by Soccermom2boys
Sun Apr 03, 2016 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant
Replies: 11
Views: 1435

Re: Rant

Wow--your rant definitely struck a chord with me, I hear ya! I am made to feel like I am hurting other people's feelings by being honest with them on how much I do or don't want to share--like what the hell, I am the one going to sleep at night with cancer and all of the emotional and physical traum...
by Soccermom2boys
Tue Mar 29, 2016 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified
Replies: 21
Views: 7293

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

At the end of the day, it's those little things that no one but those of us going through it can answer. They just can't know and then they can get you worked up that something is wrong because they just don't have first hand knowledge to say it's a normal feeling. I agree, in some ways would be int...
by Soccermom2boys
Tue Mar 29, 2016 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Your list. Help needed.
Replies: 41
Views: 5298

Re: Your list. Help needed.

You made me laugh, Beans Mama--the oddball suggestions we get to "cure" our cancer. It is tough when it comes from someone so close also. I am so in agreement about the whole "strong" comments--like we signed up for this shit?! I am not brave either--I was dealt a crappy blow and...
by Soccermom2boys
Mon Mar 28, 2016 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go . . .1st FOLFOX infusion
Replies: 11
Views: 1375

Re: Here we go . . .1st FOLFOX infusion

Wow--you got a lunch also?! How nice. Well, you did it, you got that first one under your belt, it is no longer the unknown. Hope the rest of your week goes smoothly.

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