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by Pyro
Mon Jul 01, 2019 7:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 51429

Re: My CRC with liver mets journey

Yes and yes! Much insight from both of you. And yes we will get through it together. My husband had a stunner line this morning in the shower: “You guys have it easy. If you don’t want to deal with cancer, all you have to do is fire me.” This sucks, we don’t need added stress on top of this damn di...
by Pyro
Mon Jul 01, 2019 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 4204

Re: Bucket List

What a weekend! Lunch at Dukes in Malibu, Arthur Js and Fishbar in Manhattan beach and a few speed limits broken. Most incredible car I’ve ever driven. A bit nerve racking driving around a $350,000 car, but worth it. To answer a previous question, I was a US Air Force Lt Col and F-16 fighter pilot. ...
by Pyro
Fri Jun 28, 2019 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 4204

Re: Bucket List

AmyG wrote:I'm not a car girl, but I can total appreciate 660hp flying down the road! I can't get over that pricetag though! :shock:


I’m a little nervous about driving a $300K car around, but I used to fly a $40 million dollar plane around by myself, should be fun!
by Pyro
Fri Jun 28, 2019 6:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 4204

Bucket List

Well folks, it’s time to start working on bucket list items. The vectibux has me looking like the walking dead and chemo is getting harder and harder o recover from so I’m throwing some caution to the wind. I was given a timeframe in months if I don’t do chemo, a year or two if I do. Obviously I’ve ...
by Pyro
Tue Jun 25, 2019 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3564

Re: Questions, questions, too many questions.

Pyro you've given me hope and insight in the past but that response have me a pit of despair I hadn't felt for awhile. I sincerely apologize if what I said hurt you, that was not my intent. Most people, especially doctors, beat around the bush rather than say something concrete, it’s just something...
by Pyro
Tue Jun 25, 2019 5:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3564

Re: Questions, questions, too many questions.

Ok so maybe I quoted Jim Carey aka The Riddler from a cheesier version of Batman. Fact remains: how long have some of you waited for surgery? DH hates talking to the oncologist because she continues to say we are just "keeping cancer at bay" "keeping things stable" her outlook u...
by Pyro
Sat Jun 22, 2019 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 4797

Re: Currently in the ER...woo.

AmyG wrote:Ergo, my ass is broke yall. :lol: No clue if they are going to investigate further or send my broke ass home.


Cancer can go eat a bag of dicks. :twisted:


This sums up my entire cancer experience
by Pyro
Thu Jun 20, 2019 3:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 640
Views: 98390

Re: If you want prayer stop in here!

I wasn’t around to see what happened but my simple request was deleted. I could use some, thank you.
by Pyro
Wed Jun 19, 2019 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX
Replies: 7
Views: 1009

Re: FOLFOX

I’m not going to sugar coat it, it’s terrible, probably the worst I’ve done. Eat when you can, sleep as much as possible, keep warm water on hand. The Oxi works very well but there is a price to pay for it, and remember the side effects are also cumulative, it just gets worse. You can do it, just te...
by Pyro
Mon Jun 17, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 51429

Re: My CRC with liver mets journey

The Oxi is terrible, worst chemo I’ve ever tried. It works though and I’m guessing you could go back on it.
by Pyro
Mon Jun 17, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Knicked ureter
Replies: 8
Views: 908

Re: Knicked ureter

That’s a very good point of view to have, I wish more people had it. Practicing Medicine
by Pyro
Sun Jun 16, 2019 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 2315

Re: Stage IV parents with young child(ren)

Hi, this is my first post here, but I have been reading for a while. I've been stage IV all along, but we were chasing cure. In March we moved to confirmed incurable. I have a four-year-old son and the sadness and despair about leaving him motherless is nearly all-consuming. I haven't been able to ...
by Pyro
Sun Jun 16, 2019 7:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 13
Views: 1399

Re: Things I should know about Avastin

AmyG wrote:Bloody nose and increased blood pressure here! My BP isn't high enough to treat with meds, but it's a noticeable difference from normal.


I had to go on a second blood pressure medication due to Avastin. It was my only side effects, I did it twice for a total of about 24 times.
by Pyro
Sun Jun 16, 2019 7:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 51429

Re: My CRC with liver mets journey

I’ve been here a couple of times, cannot recommend it enough, it’s on the NE side of the island: Taormina https://en.m.wikipedia.org/wiki/Taormina I was wrong, we only made it as far as Cefalu last trip. We did spend our last day in Taormina this time; it was beautiful! We had a lovely lunch overlo...
by Pyro
Thu Jun 13, 2019 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on attending a funeral?
Replies: 10
Views: 1083

Re: Thoughts on attending a funeral?

Most of our funerals are big parties, fighter pilots throw a kegger and burn a piano, we have done it since WWII, google it. Just a different perspective. Burning the piano, eh? My old man was in the RAF - what an interesting insight in why he hated paying for my piano lessons. Hah. Who knew!?? :P ...

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