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by Pyro
Fri Sep 20, 2019 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1652
Views: 374057

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Done in about 30 minutes this morning. I also got a good night's sleep. So about four good days in a row. It's actually pretty amazing when you're so used to waking up three to four times in the middle of the night. I am still undecided about the Miralax. I was originally planning to use it just to...
by Pyro
Mon Sep 16, 2019 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 144
Views: 22722

Re: Take me away to that special place - Picture Thread

Prescott last weekend, felt nice to get out of the 100 degree temps and into the mountains (mile above sea level). Had a family of Javelina’s stroll through the backyard. These aren’t pigs, they have more in common with Rodents, look it up! https://i.ibb.co/dDXKGQn/E1-CDAFA2-6-FF5-403-B-A2-B1-C75433...
by Pyro
Sun Sep 15, 2019 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 27
Views: 5175

Screw Cancer, Hospice is Here

The subject sums it up, when you stop chemo there isn’t many places to go plus you get all sorts of at home attention. I had problems breathing on a trip to Prescott we took, wanted some help and signing up for hospice got the help I needed that day. I met my nurse, Mary, the one who will be here ev...
by Pyro
Thu Sep 05, 2019 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Itchy Skin
Replies: 7
Views: 883

Re: Itchy Skin

Thanks for the reply’s guys, the oncologist went with antibiotics. The itch has been tamed for meow but I still look like I’m on erbitux with all the skin peeling. And yes, still have a head of very thick hair. http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=62684&start=90 This w...
by Pyro
Tue Sep 03, 2019 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver has been chopped!!
Replies: 44
Views: 3985

Re: Liver has been chopped!!

AmyG wrote:
NHMike wrote:That's a lot longer than mine!


THAT'S WHAT SHE SAID!!!


Ha!
by Pyro
Tue Sep 03, 2019 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Itchy Skin
Replies: 7
Views: 883

Itchy Skin

All right fam, I have a new one that doesn’t involve chemo or radiation. My skin looks like hell, peeling off and itchy, mostly confined to my head. It’s never ending, haven’t changed medication except I’m not taking chemo or vectibux. I’ve read if cancer blocks the bile duct in the liver this could...
by Pyro
Mon Sep 02, 2019 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bladder retention after major surgery
Replies: 9
Views: 1014

Re: Bladder retention after major surgery

So I had major surgery (12 hours) done on 8/20 and my bladder is slow to wake up. They took Foley catheter out Thursday. I am peeing but just a little at a time. Any advice or how long did this last for anyone else that experienced it?? I’m worried I’m going to have permanent issues! Could it be op...
by Pyro
Mon Sep 02, 2019 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had my surgery...ended up with colostomy bag
Replies: 6
Views: 1117

Re: Had my surgery...ended up with colostomy bag

Had my surgery here at md Anderson in Houston on Tuesday. Lower anterior resection, vaginal reconstruction and hysterectomy. My surgeon explained to me I needed to be mentally prepared to have either permanent colostomy or temporary illeostomy. She wouldn’t know until she got in there. Apparently w...
by Pyro
Fri Aug 30, 2019 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I don't have much longer.
Replies: 11
Views: 1901

Re: I don't have much longer.

Got back from a surgery last week. Took a bit of time to recover. Results came in - not looking good. My kids are young (son and daughter just started grade seven) and my wife is scared to death, but who could blame her? Hoping to spend as much time as possible with my family. The doctor says aroun...
by Pyro
Fri Aug 30, 2019 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried about chemo port
Replies: 24
Views: 2065

Re: Worried about chemo port

Worry about the immediate battle, the port is making that easier. Sometimes the treatment for this awful disease is worse than the disease itself.
by Pyro
Thu Aug 29, 2019 7:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand Foot Syndrome
Replies: 32
Views: 2349

Re: Hand Foot Syndrome

I’ve been on those drugs for years but never developed H&F thankfully but Keep the super glue handy if you ever go on erbitux or vectibux. The oncologist can fiddle with your dose if it gets worse, remember to show them.
by Pyro
Tue Aug 27, 2019 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 640
Views: 98411

Re: If you want prayer stop in here!

BS

Thanks for the recommendation! I’ve read things like “Final Gifts” and “Being Mortal” (highly recommend, by Atul Gawande). I will look into the one you mentioned. Sounds Ike you’ve been through the ringer, that’s a lot of heartache you’ve had in your life, cancer sucks.
by Pyro
Mon Aug 26, 2019 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 640
Views: 98411

Re: If you want prayer stop in here!

Hi Pryo , You remind me of someone from my youth . He always seemed talented , musically, intellectually but his sense of humour was what set him apart . He became a thoracic surgeon and to broaden his training he left our shores for a bit and went to one of your finest hospitals . It was there tha...
by Pyro
Sun Aug 25, 2019 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 640
Views: 98411

Re: If you want prayer stop in here!

Did you have bad reaction from keytruda when you tried the monotherapy? You withstanded alot with other chemo agents ... i wouldnt think reactions will be any worse than say cetuximab which but significant time for many and is manageable Just spinning this as gunning for you to beat this awful thin...
by Pyro
Fri Aug 23, 2019 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 640
Views: 98411

Re: If you want prayer stop in here!

Not with this..... All-grade treatment-related adverse events (TRAEs) were seen in 100% of patients. The rate of grade ≥3 TRAEs seen overall was 40%. The most common grade ≥3 TRAEs were rash in 12%, proteinuria in 12%, palmar-plantar erythrodysesthesia in 10%, and liver dysfunction in 6%.

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