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by kandj
Sat Mar 09, 2019 1:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 2923

Re: Just can't let it go

I don’t know, I’m sorry. I just feel uneasy...maybe from doing so much research online. May I suggest you stop doing research? Several doctors (your Doc, the pathologist, etc) who have spent their life doing this and have done more real research than you, not just doctor google, are telling you tha...
by kandj
Sat Mar 09, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery ALT and AST off the charts
Replies: 23
Views: 1780

Re: Post surgery ALT and AST off the charts

Very normal after ablation. The way one of the fellows explained it to me is that the ALT and AST response is pretty immediate. They jump high to an acute trauma (like say, someone going into the liver and burning tissue out). The Alk Phos is a little slower to rise, but do not be surprised to see i...
by kandj
Tue Mar 05, 2019 11:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Mets to liver and lungs
Replies: 6
Views: 748

Re: CRC Mets to liver and lungs

My DH was diagnosed at 36 with stage 4 CRC with mets to the liver. So many they couldn't count them all. We sought out a second opinion from Memorial Sloan Kettering in NYC after MD Anderson gave us little hope for a cure or even longer term survival. We live 30 mins from Houston, so MD Anderson see...
by kandj
Mon Jan 14, 2019 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 1593

Re: Radiation on mets

DH has SRBT done in December 2017 on 4 liver Mets. He has been a year free of Mets to the liver since then and just had a good scan. So yes, it can be done. I think 4-5 is the max they like to treat though. So it might. Red to be used with other treatments.
by kandj
Mon Jan 14, 2019 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5490

Re: MSK patients with HAI pump - prep for Dr K meeting

The Helmsleybis great when you are staying more than a few days. They have full kitchens so you don’t have to eat out. The Marriott at 53rd is cheapest in the winter. Ask to get blood work done on Sunday when you have scans (assuming you are having Monday appointments). MAkes Monday mornings easier....
by kandj
Fri Jan 04, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long on Xeloda?
Replies: 2
Views: 886

How long on Xeloda?

DH had a small met removed from lung at the end of November. He was supposed to have an ablation done but they couldn't see the met clear enough so they did a wedge resection instead the next day. I am happier about that, to be honest, as I know it was cut out and done with. Recovery has been very g...
by kandj
Wed Oct 31, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approach to treatment - any advice appreciated!
Replies: 7
Views: 711

Re: Approach to treatment - any advice appreciated!

Well, I think your first step is to talk to a surgeon locally and see if your mets are resectable. We live down the road from what is frequently ranked the best cancer center in the US and they were not able to help my husband at all. So we sought a second opinion from MSKCC and DH is a patient of D...
by kandj
Thu Oct 04, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for lung met
Replies: 2
Views: 708

RFA for lung met

DH had a little nodule that had grown last July when they also found 4 more liver mets. Dr. K was less concerned about the nodule so the focus was on the liver Mets. He had 3 weeks of radiation on the lung Mets and several months of chemo (August 2017- May of 2018). The lung nodule disappeared after...
by kandj
Wed Oct 03, 2018 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Such a blow!
Replies: 9
Views: 2105

Re: Such a blow!

Have you had DNA testing done for Lynch or other cancer genes? You have either had an incredibly bad run of luck or something else is going on to have 3 cancers and a recurrence (but not a disease spread). I would want testing done ASAP and look into immunotherapy drugs.
by kandj
Tue Aug 14, 2018 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 17
Views: 9721

Re: Brain metastasis

I am so sorry. I hope they can put forward a treatment plan for him. This is just not fair.
by kandj
Tue Jun 12, 2018 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 1594

Re: Stage 4 support?

My husband is stage 4, coming up on 3 years in August. He had the HAI pump a few months after diagnosis followed by a massive liver resection and ablation in May of 2016. Had a recurrence in July of 17 and Radiation on 4 mets in Dec '17. He is currently on a 2 month chemo break to wait and see what ...
by kandj
Tue May 15, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shoulder Pain
Replies: 4
Views: 1355

Re: Shoulder Pain

DH had referred right shoulder pain for about a week before he spiked a temp. It was about 3 weeks after his liver resection. Turned out to be a 7-8cm pyogenic liver abscess. Not great news for him, but we got him in quick enough that they got antibiotics on board and drained it. He had no issues fr...
by kandj
Fri May 11, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 1590

Re: New to forum - CEA trending up while on adjuvant chemo

DH had a CEA of <.5 when diagnosed and he was riddled with cancer. It got as high as 10 during chemo (both systemic and via an HAI pump). It did trend up a little (still WNL) during his reoccurrence. Right now it is up a little, but I think that is due to inflammation due to a bacterial infection he...
by kandj
Tue May 08, 2018 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 6698

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am so sorry! This diagnosis of nothing, just living your normal life to stage 4 cancer is so shocking and scary. We live near MD Anderson but did not get very good answers and responses from them regarding the extent of DH's cancer. We sought out a specialist at Memorial Sloan Kettering in NYC and...
by kandj
Tue May 08, 2018 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mystery Sepsis?
Replies: 5
Views: 1149

Re: Mystery Sepsis?

...and after over 4 days the culture finally showed anaerobic, gram stain negative rods.... Anyone have mystery sepsis? Yes, I had a mystery sepsis that was eventually identified as Pseudomonas aeruginosa . Originally, they treated me with the standard one-week course of antibiotics designed for gr...

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