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by kandj
Tue Apr 23, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on supplements with some history
Replies: 39
Views: 3187

Re: Update on supplements with some history

. In short, my husband was given the green light to stay on a "multi-vitamin," vitamin D at 5000 iu, magnesium (after I repeatedly reminded the nurse that he is deficient without supplementation), and green tea. Everything else was stricken. No discussion. ... Her mind is simply closed of...
by kandj
Wed Apr 03, 2019 12:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time after liver resection
Replies: 15
Views: 1211

Re: Recovery time after liver resection

DH's wasn't bad all the time either. It was pain at night, when he would lay down. Went on for about a week like that. Even flew home like that. He spiked a fever a few days later and the rest is history. It probably is residual fluid irritating nerves for you. Just make sure to call if it gets wors...
by kandj
Wed Apr 03, 2019 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time after liver resection
Replies: 15
Views: 1211

Re: Recovery time after liver resection

Still have some abdominal and residual shoulder pain, which is annoying but manageable. Keep an eye on that. Referred shoulder pain can be due to fluid in the abdomen or other issues. If it is not getting better, ask for imaging. DH had shoulder pain pop up about 2 weeks post liver resection and bl...
by kandj
Tue Apr 02, 2019 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slowly rising CEA..
Replies: 5
Views: 776

Re: Slowly rising CEA..

My DH's CEA was less then .5 at diagnosis. Peaked to 10.5 during treatment. His goes up during treatment for some reason. I assume it is inflammation related.
by kandj
Tue Apr 02, 2019 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery or not? And Doctors in MD Anderson
Replies: 17
Views: 1687

Re: Surgery or not? And Doctors in MD Anderson

Hi Dan. First off, I am so sorry you and your wife are in this boat. Especially after having a baby! We are in Texas, fairly close to MDA, and we were not given much hope by the surgeon that we saw at MDA. we sought a second opinion at MSKCC and DH has been fighting this beast for 3.5 yrs. Is your w...
by kandj
Wed Mar 27, 2019 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 2105

Re: Thinking of you AmyG

Can you pump and freeze some of your milk now? I understand he is a newborn requiring feeding every few hours, but is it possible to to pump some right after feeding and freeze that? Yup! Trying to build up a freezer stash in the next few weeks. I nursed all my babies at least a year, some a little...
by kandj
Tue Mar 26, 2019 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump leak into lymph nodes
Replies: 10
Views: 1173

Re: Hai pump leak into lymph nodes

I would trust Dr. K on that. She has seen thousands of these pumps (well, more the old ones, but hundreds of the new ones as well) and is pretty good at eyeballing things. And she will watch your husbands numbers. This is the reason she only wants the chemo done in NYC, because she controls it. I pr...
by kandj
Sun Mar 17, 2019 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery ALT and AST off the charts
Replies: 23
Views: 1448

Re: Post surgery ALT and AST off the charts

And I would caution you on reading too much. I too am a researcher by nature (and profession) so I know how hard it can be not to. But you are just setting yourself up for more stress. My best advice is to trust the amazing doctors available to us and keep your eyes on your husband for any changes. ...
by kandj
Sun Mar 17, 2019 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery ALT and AST off the charts
Replies: 23
Views: 1448

Re: Post surgery ALT and AST off the charts

kandj, I read what you wrote on another thread "He also had right sided pain and referred shoulder pain following his liver resection. He brushed it off as pain from nerves that were cut and from his arm being held up during surgery. Turned out he had a liver abscess. They are 100% fatal if th...
by kandj
Sun Mar 10, 2019 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery ALT and AST off the charts
Replies: 23
Views: 1448

Re: Post surgery ALT and AST off the charts

What did his shoulder have to do with anything? It is called referred pain and it can be caused by a whole host of things in the body. It is not uncommon to ha e shoulder pain (in my husband’s case, right sided shoulder) when there is something wrong with the liver, gallbladder, kidneys, internal b...
by kandj
Sat Mar 09, 2019 1:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long did folfiri work
Replies: 5
Views: 609

Re: How long did folfiri work

My husband had 50+rounds of either folfox/folfiri/plain 5fu/lecuovorin (pretty sure I spelled that wrong). He only switched to Xeloda because hes dealing with a lung met and they respond better to that I guess. All the changes in the above were not because he didn't respond or the cancer got smarter...
by kandj
Sat Mar 09, 2019 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CAT Scan Question
Replies: 5
Views: 597

Re: CAT Scan Question

My Dh has had 2 nodules. One has always been there, never grown and is ground glass opacity. The other was just noted as a nodule, popped up after being off chemo for a few months, and it did grow Shrank after going back on chemo, then came back after another break. He had it removed in November. It...
by kandj
Sat Mar 09, 2019 1:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 2389

Re: Just can't let it go

I don’t know, I’m sorry. I just feel uneasy...maybe from doing so much research online. May I suggest you stop doing research? Several doctors (your Doc, the pathologist, etc) who have spent their life doing this and have done more real research than you, not just doctor google, are telling you tha...
by kandj
Sat Mar 09, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery ALT and AST off the charts
Replies: 23
Views: 1448

Re: Post surgery ALT and AST off the charts

Very normal after ablation. The way one of the fellows explained it to me is that the ALT and AST response is pretty immediate. They jump high to an acute trauma (like say, someone going into the liver and burning tissue out). The Alk Phos is a little slower to rise, but do not be surprised to see i...
by kandj
Tue Mar 05, 2019 11:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Mets to liver and lungs
Replies: 6
Views: 620

Re: CRC Mets to liver and lungs

My DH was diagnosed at 36 with stage 4 CRC with mets to the liver. So many they couldn't count them all. We sought out a second opinion from Memorial Sloan Kettering in NYC after MD Anderson gave us little hope for a cure or even longer term survival. We live 30 mins from Houston, so MD Anderson see...

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