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by kandj
Mon Jul 29, 2019 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

Wonderful news my friend! I remember seeing you in the hospital after your last surgery. So glad you are doing well.
by kandj
Fri Jun 28, 2019 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Removing small liver met?
Replies: 4
Views: 783

Re: Removing small liver met?

DH had SBRT on 4 lesions after a recurrence. That was in Dec 2017. The spots show up still on the CT and MRI (MRI is a much better view for him) but they don't have any uptake of contrast and show other post radiation changes that has led to them being declared dead. His radiation oncologist was ver...
by kandj
Sat Jun 15, 2019 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 1941

Re: Stage IV parents with young child(ren)

Our kids were 5, 7, and 10 when my husband was diagnosed stage 4 in 2015. It was such a gut punch. We found out during an ER visit and I just remember looking at the doc, then my husband who was as white as sheet, and then the doc again. I said “he is 36. We have 3 kids. This can’t be right”. I reme...
by kandj
Tue Jun 11, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone done oxiplatin twice?
Replies: 7
Views: 1078

Re: Anyone done oxiplatin twice?

DH did about 13 rounds total of it. They cut him from it when he started having trouble swallowing *neuropathy in his throat*. He had about 7 rounds before liver surgery and then another 6 a year later after a reoccurrence
by kandj
Thu May 23, 2019 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 7827

Re: Anyone pass out after abdominal cramping??? ER time

My husband and I are not comfortable with him restarting chemo until we get a clear picture of what is going on inside him, for lack of better words. For some reason, however, the portal still contains chemo appointments, and one is even prior to the scan that had been scheduled for June 6th (on th...
by kandj
Wed May 22, 2019 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 7827

Re: Anyone pass out after abdominal cramping??? ER time

I am glad your husbands blood labs look better. I bet he is feeling so much less tired. I lost a lot of blood with a hematoma when I was pregnant with my 2nd child. Would lose about a pint every 6 days in these bleeds. Went on for weeks. It was so exhausting (and terrifying). We were told that my hu...
by kandj
Wed May 01, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared with Questions
Replies: 8
Views: 1418

Re: Scared with Questions

First off, take a deep breath. And then another one. You are making giant leaps here. My first assumption would not be cancer, it would be hemorrhoids. And no, the ED would not schedule your for a Colonoscopy or scans. You are not presenting with an emergency. The ED gets you stable and either admit...
by kandj
Tue Apr 30, 2019 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mild ascites and jaundice - cancer spread to liver?
Replies: 20
Views: 3010

Re: Mild ascites and jaundice - cancer spread to liver?

FWIW, my husbands liver was riddled with tumors in just about every lobe (11+ tumors) and he had no ascites. His bilirubin was slightly up, I think like a 1.5 but all his other liver function numbers were elevated (he was stage 4 at diagnosis, so nothing to previously compare to). If you are still c...
by kandj
Mon Apr 29, 2019 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1647

Re: OFF TOPIC: Specialists in silos, patient suffering as result

If this person is on Medicaid the. They would most likely qualify for a social worker as well. I would contact the local hospital they frequent the most and speak to someone in patient advocacy and inquire about a social worker for adult care.
by kandj
Mon Apr 29, 2019 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo pushed back twice, so I'm doing another half.
Replies: 13
Views: 1164

Re: Chemo pushed back twice, so I'm doing another half.

You are amazing. I hope you danced at the finish line. Susan I looked at my finish line photos...I looked...intense. :lol: I ran intervals for most of the race, since I haven't done anything resembling training in quite some time. But as soon as I turned the corner and saw the finish line, i picked...
by kandj
Mon Apr 29, 2019 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41246

Re: My CRC with liver mets journey

It makes me teary thinking about it. They have good hearts and are growing up to be such good kids. Sounds like a reflection of their home life. I am sorry you have been feeling so shitty. I don’t know if this will help, but I found DH always seemed to feel better post chemo if he got a bag or two ...
by kandj
Wed Apr 24, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1789

Re: Stage IV, what happens after surgery?

DH had chemo before and after his liver resection. 6 months of adjuvent after the liver resection. He then had more chemo when he had a recurrence. He had radiation done, and then more chemo. And now he had a lung met removed. Chemo before and after that surgery too. Honestly, if I were you I would...
by kandj
Wed Apr 24, 2019 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does your Medtronic pump TICK?
Replies: 7
Views: 861

Re: Does your Medtronic pump TICK?

Ok, this might not make you laugh, but you saying something about the alarms made me think of when a smoke detector in the house is low on batteries and it gives that annoying beep, which always seems to happen at 2am. I just imagine the alarm going off at 2 am like a smoke detector! Did they say if...
by kandj
Wed Apr 24, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1789

Re: Stage IV, what happens after surgery?

DH had chemo before and after his liver resection. 6 months of adjuvent after the liver resection. He then had more chemo when he had a recurrence. He had radiation done, and then more chemo. And now he had a lung met removed. Chemo before and after that surgery too. Honestly, if I were you I would ...
by kandj
Wed Apr 24, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41246

Re: My CRC with liver mets journey

I've been able to keep working too. Before my surgery I was working more than full-time and traveling almost every week. Now that I'm back my bosses are trying to keep my schedule a little more manageable, which I appreciate. But it makes me feel lazy. If I'm at home, I want to be in bed! And I fee...

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