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by mariane
Tue Feb 19, 2019 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1918

Re: Happy Post- Rectal Metastatic to Liver, now cured

Thank you for letting us know, Jane. I am so happy!! Congratulations!!!
by mariane
Tue Feb 19, 2019 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time for HAI pump placement and/or liver resection?
Replies: 4
Views: 798

Re: Recovery time for HAI pump placement and/or liver resection?

I have been in the hospital for 6 days because of the weekend and wait to check whether the pump is properly working. I had to stand up on the next day and walk a few laps on the corridor. The forum friends recommended me the laps. Walking kept me strong and active. I had 4 surgeries in less than a ...
by mariane
Tue Feb 19, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cimetidine help!
Replies: 2
Views: 661

Re: Cimetidine help!

Hi! I have been taking Cimetidine for almost 5 years I take 2x200 mg twice a day. I take it after I wake up and than one more dose in the evening. I call it my lucky charm. I don't know whether it is really effective but I have been NED, I have been feeling well. It doesn't hurt. It is the doses rec...
by mariane
Tue Feb 19, 2019 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfirinox - Bad tolerance
Replies: 10
Views: 1579

Re: Folfirinox - Bad tolerance

I completed 4 doses of FOLFIRINOX and got switched to FOLFOX for 3 doses, than 7 doses of FOLFIRI, 10 doses of 5FU, and 12 doses of hepatic pump chemo. I have been off chemo for 2.5 years, NED. I took Neupogen, 3-5 shots as you did with every FOLFIRINOX. My oncologist was very particular about getti...
by mariane
Fri Feb 08, 2019 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump people recurrence question
Replies: 32
Views: 3370

Re: Pump people recurrence question

I am approaching 3 years NED with the pump and I will keep it at least until 5 years after surgery. I talked to my surgeon about their statistics. He told me that they have over 50% of recurrences but they can manage most of them using the pump and surgeries. It is just safer to keep the pump. I had...
by mariane
Wed Jan 23, 2019 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy New Year- Update on mom- clean
Replies: 7
Views: 1253

Re: Happy New Year- Update on mom- clean

Congratulations!!! These are great news!!! Thank you for letting us know.
by mariane
Wed Jan 02, 2019 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. D'Angelica or Dr. Kingham
Replies: 7
Views: 1492

Re: Dr. D'Angelica or Dr. Kingham

I had extremely positive experience with Dr. D'Angelica in 2015/2016. My surgery was an open surgery and yes, I have scars. However, as 43 years old mother I don't care that much about my belly looks. Good lingerie can do the trick.;) I have had a nice day of New Year's skiing with my family. I was ...
by mariane
Tue Dec 25, 2018 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastatic Stage 4...Clear Scan
Replies: 46
Views: 14168

Re: Metastatic Stage 4...Clear Scan

Congratulations to mom for clear scans and to you for PA diploma!!!
These are fantastic news! Thank you!!!!
by mariane
Sat Dec 22, 2018 12:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 25
Views: 5922

Re: Still NED!!!!

Congratulations!!! Wonderful news!!!
by mariane
Sat Dec 22, 2018 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling all angels for a Christmas miracle
Replies: 12
Views: 2514

Re: Calling all angels for a Christmas miracle

I am also Dr Kemeny's patient. I have been NED for over 2.5 years. I began my cancer adventure with 10+ liver mets. The largest 7.5cm. I had good response to systemic chemo. I was given maximum 2 years if I responded to chemo at diagnosis. I am still here dping good. I wish you a great consultation!
by mariane
Fri Dec 21, 2018 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Met in caudate lobe and artifactual spots
Replies: 5
Views: 1499

Re: Met in caudate lobe and artifactual spots

I had a met (around 1.5-2cm) in caudate lobe, removed in 10/2015 by dr. D'Angelica in MSKCC. Still no recurrence. Dr. D'Angelica removed 10+ mets from my liver. They were all badly located near important anatomical structures - vena cava, other blood vessels, also caudate lobe. The caudate lobe met ...
by mariane
Fri Dec 14, 2018 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: May you all have a wonderful holiday season
Replies: 7
Views: 1765

Re: May you all have a wonderful holiday season

Thank you very much!
Happy holidays to your family , especially mom.
by mariane
Wed Dec 12, 2018 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 1816

Re: Radiation on mets

Hi! I got diagnosed with 10+ unresectable mets in JUne 2015. I was devastated. Being so sick at just 40 with 6 years old twins... All the doctors I saw gave me maximum 2 years if I responded to chemo. Browsing "colon cancer survivors" I found a very few old timers success stories and 1 nam...
by mariane
Wed Dec 12, 2018 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Dr. Kemeny's patients
Replies: 4
Views: 1216

Re: Question for Dr. Kemeny's patients

Hi! I am an older Dr. Kemeny's patient and I live in Atlanta, GA. When I did chemo, I used to alternate. I had systemic chemo infusion and FUDR chemo (HAIP) in NY. 3 days later disconnecting and check up in Atlanta. 2 weeks from chemo in NY I got systemic chemo in Atlanta. This system worked very we...
by mariane
Tue Dec 04, 2018 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymphedema
Replies: 8
Views: 1378

Re: Lymphedema

Hi Lydia, We were diagnosed at approximately the same time. I remember your story from back then. If I could recommend you something, it would be genetic profiling of the tumor. Sometimes cancer mutates quickly. More mutations could mean more susceptible to chemotherapy meds. I am sure, you have gre...

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