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by mariane
Mon Jul 29, 2019 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 3598

Re: Stage 4, over 4 years since diagnosis, still NED

kandj wrote:Wonderful news my friend! I remember seeing you in the hospital after your last surgery. So glad you are doing well.

Thank you! All the best for you and Joe! Time flies...
by mariane
Mon Jul 29, 2019 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 3598

Re: Stage 4, over 4 years since diagnosis, still NED

stu wrote:Fantastic news . How time flies ! I can hardly believe it’s been four years .
So good to hear you are having fun with your family .
Stu

Thank you!
All the best for mum and you! I will never forget your kind words during my multiple surgeries and chemo. We visited Scotland this summer. So beautiful!
by mariane
Mon Jul 29, 2019 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 7
Views: 1323

Re: Liver met near artery and bile duct

However, HAI= chemo. I am sorry. I skimmed.
by mariane
Mon Jul 29, 2019 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 7
Views: 1323

Re: Liver met near artery and bile duct

HAI pump. My larger tumors were all badly located. 1 abuting vena cava. After shrinking they got all removed. Good luck!
by mariane
Mon Jul 29, 2019 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 12
Views: 2433

Re: Stage IV (with liver cyst) - 6 yrs NED

I am so happy that you are NED. I hope the cyst will stop growing. Liver cysts are quite common and look different than tumors on scans. MRI may show more details in case of doubt. Good luck!
by mariane
Mon Jul 29, 2019 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 64
Views: 25059

Re: Need Support - Told today I'm on Palliative Care

Good luck! I signed palliative care papers 4 years ago. My twins were 6 and I was 40. I am still here, doing good. I wish you best of luck!
by mariane
Mon Jul 29, 2019 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 3547

Re: Staging and treatment options.

I would look at the pathology and genetics of the tumor. Type of cells? Mutations? They can help to predict how aggressive the tumor was. I had stage 4 cancer and agressive chemo saved my life.
Good luck!
by mariane
Mon Jul 29, 2019 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 3598

Stage 4, over 4 years since diagnosis, still NED

Hi! I wanted to share the good news I received today. In June 2015 my whole little world collapsed , since I got diagnosed with inoperable stage 4 cancer. I was given zero chance to make it. I found CptMac post on one of the cancer forum which mentioned hepatic pump. This post made me seek Dr. Kemen...
by mariane
Mon Jul 29, 2019 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 8 year cancerversary today AND clean scan
Replies: 17
Views: 3190

Re: Stage IV 8 year cancerversary today AND clean scan

Thank you very much Lisa!!! Congratulations to your mom!!! Wonderful news!!! Is she still on every 4 months check up schedule?
by mariane
Mon Jul 29, 2019 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It was 15 years ago today
Replies: 13
Views: 2204

Re: It was 15 years ago today

Thank you Cptmac!! Congratulations!! Your post on different cancer forum captured my attention and made me to seek HAI pump treatment. I cannot thank you enough!
by mariane
Mon Mar 11, 2019 10:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 2853

Re: HAI pump criteria

My husband tried to make an appointment for me with Dr. Kemeny back in 2015. The first nurse refused him because I didn't have all the necessary scans. I had only abdominal and pelvis scans and resonance, no chest. I was recovering from the colon surgery in the hospital in Europe at that time. My hu...
by mariane
Fri Feb 22, 2019 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfirinox - Bad tolerance
Replies: 10
Views: 1583

Re: Folfirinox - Bad tolerance

Thank you, Paola! Hugs!
One more thing, hopefully useful. I received Atropin with Irinotecan and it really helped with diarrhea. Honestly with Atropin I had more like constipation. I am in general very sensitive to meds.

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