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by macpudd
Sun Jul 17, 2016 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 12
Views: 1579

Re: New here

Hi Stewsbetty, Sorry for the reason you find yourself here, I am almost twelve months out from chemo, and still have difficulty sleeping seven or eight hours continously, hence it is 2am here in Ireland as I type this, have had a few drinks (first since Xmas 2015) but am still wide awake. Like you I...
by macpudd
Sun Jul 17, 2016 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: funny "shat myself" story!
Replies: 6
Views: 976

Re: funny "shat myself" story!

Rob in PA wrote:So it's been almost 9 years since diagnosis and 1.5 years since last recurrence ....butt just when I let my guard down a little tiny bit.....I go and shit myself in my neighborhood bar!

Cheers all!
Rob

Bet you've got the thousand yard stare :D I am a bit drunk :)
by macpudd
Sun Jul 17, 2016 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help from friends afar.
Replies: 7
Views: 1086

Re: Help from friends afar.

Sometimes I find a friend from afar is a bit like this forum, because my friend is not in daily contact with the rest of my support network I feel I can tell him things that I would not say to those physically closest to me cause it might upset them, this might be a bit unfair to my friend but he ha...
by macpudd
Fri Jun 17, 2016 6:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guilt over not being super woman right now
Replies: 8
Views: 1404

Re: Guilt over not being super woman right now

Hi Lacik, Wow you have had an action packed 9 months, I am tired just from reading all the things you've gone through never mind actually being the one living them. A cancer diagnosis, surgery, chemo, surgery more chemo, selling a business, new work status, no wonder you're not feeling like superwom...
by macpudd
Mon Jun 13, 2016 5:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This was a good day
Replies: 10
Views: 1627

Re: This was a good day

Hi Mike,
Good to hear your having good times on your bike, I did not get out much on mine while on chemo, but making up for it now. As you say its great to have something to take your mind away from thinking constantly about our health.
Regards
Macpudd
by macpudd
Sat Jun 11, 2016 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is this a normal side-effect of chemo?
Replies: 14
Views: 1866

Re: Is this a normal side-effect of chemo?

If either of you are on Dexamethasone it could be affecting your mental state, I had to come of it because it literally left me suicidal, check it out with your onc.

Regards
Macpudd
by macpudd
Tue Jun 07, 2016 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - Family Issue
Replies: 22
Views: 2646

Re: O/T - Family Issue

I feel so sorry for you and your DH and children, this is the last thing you need at this time in your life, when they should be doing everything to support you. I hope you can turn to your friends and DH family for the support you need. Unfortunately sometimes you have to cut people out of your lif...
by macpudd
Thu Jun 02, 2016 2:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy worse after using power tools and motorcycle
Replies: 5
Views: 1079

Re: Neuropathy worse after using power tools and motorcycle

Thanks for the replies guys, pre diagnosis I would have been aware of tingling after using some power tools, but this would stop minutes after using the tools and was never painful, since chemo its gone to a whole new level. It was complications from my surgery that kept me off the bike rather than ...
by macpudd
Wed Jun 01, 2016 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy worse after using power tools and motorcycle
Replies: 5
Views: 1079

Re: Neuropathy worse after using power tools and motorcycle

I have some lingering neuropathy in my feet which hasn't affected me as far as I can tell from doing various things. I was having issues with my hands at one point which affected how I could write and type. I'm typing fine now but writing is a bit of a challenge along with any thing which requires ...
by macpudd
Wed Jun 01, 2016 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy worse after using power tools and motorcycle
Replies: 5
Views: 1079

Neuropathy worse after using power tools and motorcycle

Hi Folks, finished twelve cycles of Folfox last August, and have very slight tingling in my hands and feet, which does not really affect me normally though I am aware of it. In the last couple of months my energy levels have come back up to the point where I am now doing most of the things I could d...
by macpudd
Thu Apr 28, 2016 3:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning the end of my journey
Replies: 30
Views: 5181

Re: Beginning the end of my journey

So sorry to hear your news, I hope you find emotional peace, prayers and thoughts with you and your family.
Regards
Macpudd
by macpudd
Fri Apr 15, 2016 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Energy nosedive
Replies: 10
Views: 1179

Re: Energy nosedive

Mine was usually day of or after disco. I figured it was more of the steroid crash, it was really bad but got better after a few days, although I had fatigue throughout. I had bad fatigue for yrs tho prior to dx. Still do, but not as bad as when I was on chemo. Actually I felt the best on my first ...
by macpudd
Tue Apr 05, 2016 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph negative but one marked as 'i+'
Replies: 18
Views: 3319

Re: Lymph negative but one marked as 'i+'

As regards radiation it was not applicable in my case. The start of my chemo was delayed as I had abdominal abcesses, and I remember the onc saying that the most effective window for starting chemo was within 8 weeks of surgery but that it tapers off and is not a sudden drop in effectiveness if star...
by macpudd
Mon Apr 04, 2016 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph negative but one marked as 'i+'
Replies: 18
Views: 3319

Re: Lymph negative but one marked as 'i+'

Hi Squak, As regards chemo, as I understand it in my case, I was advised to have chemo because my tumour was t4b and was in contact with the peritoneum, my pathology report said there was strong evidence of peritoneal involvement, also the surgeon and onc said that there might be more of those isola...
by macpudd
Sun Apr 03, 2016 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph negative but one marked as 'i+'
Replies: 18
Views: 3319

Re: Lymph negative but one marked as 'i+'

Hey Macpudd - thank you, and yes, it does sound very similar. I see from your signature that you had a CEA of 1.6 pre-OP - I was at 1.3 pre-OP, still waiting for a post-OP reading, so maybe that is a further similarity. Hi Squak, yes our CEA does seem similar, my surgeon said it would proabably not...

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