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by jhocno197
Wed May 17, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am SOOOOOOO Pissed!
Replies: 10
Views: 2558

Re: I am SOOOOOOO Pissed!

Oh my goodness, I would be so freaking pissed, too!!!!
by jhocno197
Tue May 16, 2017 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage
Replies: 89
Views: 19734

Re: Blockage

I am sorry she is having such a rough time today. Hopefully tomorrow will be better.

Swearing at the damn colon is ok. :)
by jhocno197
Tue May 16, 2017 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My forum family
Replies: 48
Views: 9995

Re: My forum family

I know there are no helpful words, but I am so very sorry.
by jhocno197
Tue May 16, 2017 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage
Replies: 89
Views: 19734

Re: Blockage

Thank you for the update. So glad to hear she has already gotten so much relief!
by jhocno197
Sat May 13, 2017 4:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 11
Views: 2907

Re: Mets and CEA

Yes, you can have a very low CEA & have mets. Unfortunately.
by jhocno197
Sat May 13, 2017 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf experience
Replies: 1
Views: 1510

Re: Lonsurf experience

Side effects: fatigue, nausea, low blood counts - sometimes extremely, dangerously low. Lonsurf is a stabilizer, not really a shrinker of tumors, but there are several people who have been successful with it for a year +. Just please, please, please have blood counts checked regularly. Not just at d...
by jhocno197
Sat May 13, 2017 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf
Replies: 15
Views: 8428

Re: Lonsurf

I think Lonsurf is reacting with other drugs causing trouble, nausea is the most likely side effect. Thanks for the blood count info If one reads the lonsurf 'drug facts' sheet, the manufacturer advises a blood test immediately after the second two-week 'on' cycle. (Day 15) Not sure who reads those...
by jhocno197
Sat May 13, 2017 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage
Replies: 89
Views: 19734

Re: Blockage

:(

I wish I had some good words to say, but I don't. This sucks and I am sorry. I hope the colostomy surgery goes well & she gets some relief & is able to put some weight back on.
by jhocno197
Wed May 10, 2017 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf
Replies: 15
Views: 8428

Re: Lonsurf

Anyone taking Lonsurf, make sure they are checking your blood counts very regularly!
by jhocno197
Mon May 01, 2017 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Input - Pain in colon & fever
Replies: 6
Views: 1565

Re: Need Input - Pain in colon & fever

My husband was instructed to go to ER with fever of 100.4.

However in this situation I would go to ER or at the least call the doctor - could be perforated colon.
by jhocno197
Sun Apr 23, 2017 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm new here
Replies: 13
Views: 2075

Re: I'm new here

I'm going to disagree with the others & say demand a colonoscopy. It may very well not be cancer, but you want to be absolutely certain.



Bright red blood just means it's from lower in the intestinal track, black means further up.
by jhocno197
Fri Apr 21, 2017 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New supporter here- Mom with Stage IV
Replies: 22
Views: 5140

Re: New supporter here- Mom with Stage IV

Thank you. It has been awful.

My littles like Wild Kratts and Octonauts, so I make myself feel better about it by remembering they are learning - my three-year-old knows so much about animals now!!

Please let us know how the oncologist visit goes.

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