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by LeonW
Fri Sep 01, 2017 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA during chemo
Replies: 16
Views: 4343

Re: CEA during chemo

Achilles Torn wrote: Some papers show a CEA rise at the start of Chemo followed by a drop is a good prognostic factor.

I had the same trend and docs said the same thing: rise and drop is good. They added that this showed that for me CEA is a good indicator and they keep following it closely
by LeonW
Tue Aug 29, 2017 4:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 13991

Re: Husband broke down last night

. . . surgeon 'prescribed' chewing gum already when hubby was in hospital recovering from surgery. I wonder if many others get that advice? . . . During recovery from the colon job, hospital staff (nurses) suggested and provided chewing gum to get colon going. It did ultimately, but took 12 days. U...
by LeonW
Fri Aug 25, 2017 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 13991

Re: Husband broke down last night

[quote="mpbser"So glad he is sleeping at home now. Finally, some good rest.[/quote]
Sad to hear
Wish both of you recovery. Hope you can take it easy / can rest for a while.
L
by LeonW
Fri Aug 25, 2017 5:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 9753

Re: Xeloda VS 5-FU

. . . I personally prefer taking capecitabine because you are less attached to the clinic and you feel less like a cancer patient . . . Yep. I've no pump experience so cannot compare, but me too - I liked (yes, really) the three week cycle: a well-marked start (=infusion day), then one week patient...
by LeonW
Thu Aug 24, 2017 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 13991

Re: Husband broke down last night

mpbser wrote:Leon, The liver plan was aborted but the colectomy happened.


Thanks for confirming. Am happy that it seems to have helped getting his pain under control. Let us know what your docs come up with next.
Take care / greetings to DH
L
by LeonW
Thu Aug 24, 2017 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Juicing
Replies: 5
Views: 1465

Re: Juicing

. . . i would like to continue this and be permanently part of her lifestyle . . . I understand that you're concerned and you wish the best for your mom - looking for the certainty we all need during/after the ordeal. But what works for one, is not necessarily a solution for everyone: not all find ...
by LeonW
Wed Aug 23, 2017 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 13991

Re: Husband broke down last night

liver surgeon could not do the "chip" of the left lobe and the RFA of the right lobe that was planned for today. He called me to tell me this just as the colorectal surgeon was getting started on the colon resection . . . Are you saying that the colon resection was also cancelled, that yo...
by LeonW
Mon Aug 21, 2017 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 13991

Re: Husband broke down last night

I don't think there are absolutes for anything, anyone Oxi sucks no doubt [ but ] bitch, complain, get drunk and yell at God. And then go get that oxi infusion. x2 Yeah, me too discovered that the chemo effects got worse when the Oxi was added, but it killed off all my liver mets. On hindsight, the...
by LeonW
Tue Aug 15, 2017 5:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ct scan as good as pet scan?
Replies: 11
Views: 2291

Re: Ct scan as good as pet scan?

During my whole history of cancer I've never had a PET scan. [ . . ] they said it used when they have something they see that is questionable on a high resolution CT scan and want to determine what it is. Same here, and note that over here insurance companies don't have any say; decisions are entir...
by LeonW
Mon Aug 14, 2017 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain Management
Replies: 7
Views: 1736

Re: Pain Management

What is good for managing the pain while waiting for chemo and surgery Don't hesitate and immediately ask your docs for something better. These days there is no reason trying to tolerate intolerable pain. I'm much like your husband and don't like to take anything either. But the game he's in, is di...
by LeonW
Mon Aug 14, 2017 9:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy - progression - tipping point?
Replies: 14
Views: 2872

Re: Neuropathy - progression - tipping point?

Thanks, Mike for the educating comments, but also for the link to the NCBI article. I found it particularly interesting because of the explanation of the internal workings of Capecitabine and $-FU, and the reports on other side effects besides neuropathy. Non-US clubbers should also be aware that so...
by LeonW
Sat Aug 12, 2017 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan said, "colon consistent with cancer"
Replies: 16
Views: 3694

Re: CT Scan said, "colon consistent with cancer"

Kenneth, I am pretty sure that what ever is causing the discomfort did not pop up over night. Don't bet on it. Cancer mostly grows slowly, without any signs. I didn't have any issues when my cancer was discovered. Fortunately mentioned a little blood in stool when seeing my PCP, who sent me off to f...
by LeonW
Fri Aug 11, 2017 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess a new side effect has shown up
Replies: 16
Views: 3255

Re: Guess a new side effect has shown up

I'm hesitant to drive at all during chemo weeks. I feel like my brain slows down a bit on that week and I don't react as fast. I've driven before but went very slow lol. Same here, except that I NEVER drove during chemo. Worst were the infusion days and 3-4 days after. Besides dizziness and some tw...
by LeonW
Sat Aug 05, 2017 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband recently diagnosed w Rectal Cancer
Replies: 15
Views: 3323

Re: Husband recently diagnosed w Colon Cancer

. . . after eating breakfast and dinner, time exactly 25 min. than take your Xeloda. I didn't time it, but took the pills shortly after after meals. I guess 15-25 minutes after and no need for nausea medication throughout any of the cycles. It could well have been the filled stomach; if not it must...
by LeonW
Wed Aug 02, 2017 7:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 298357

Re: The Grim Reaper took another swipe at me !!

Ho Dianna, thanks for checking in. Have been thinking of you and Frenchie . . . I do/can not believe in afterlife; and for me afterlife comms is unthinkable, but confess that I found solace in talking to my long deceased dad when days were difficult after the liver job back in 2013 :oops: :oops:. Si...

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