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by LeonW
Wed Jun 17, 2015 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update! Lobectomy tomorrow
Replies: 19
Views: 2058

Re: Update!!! Lobectomy tomorrow

Ajane wrote: update as of 6/16/15: . . . 2) treat aggressively with 8 rounds of chemo: Xeloda, Oxi, and Avastin. . . . Hope I can make it through all 8!


I hope you will enjoy the chemo-free (third) weeks, the coming half year.
Best wishes

Leon
by LeonW
Wed Jun 17, 2015 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA levels
Replies: 13
Views: 2366

Re: CEA levels

My onco says if they can shrink the liver tumors enough, surgery can be done. I've just read a lot of bad things about liver resection. Chemo doesn't work all the time unfortunately, but I my case all went well. My tumors reacted well to chemo (CAPOX) from round2 when Avastin was added. Half a year...
by LeonW
Tue Jun 16, 2015 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET SCAN
Replies: 18
Views: 2941

Re: PET SCAN

Hi Cherie Besides this 'image numbering' confusion, you may expect your specialist to explain what's significant in terms that humans can understand. No reason to talk about 'not significantly hyper metabolic' spots without explaining it. The PET scan you had, measures metabolism, the process by whi...
by LeonW
Fri Jun 12, 2015 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood Test - Liver Function
Replies: 6
Views: 2192

Re: Blood Test - Liver Function

Thanks all. I just needed to get the values in perspective. Until I see my team again in October, I'll disregard the alarms /will only start worrying when they shoot up into the ranges that Nik mentions. Heck, I lost 75% of my liver. Can imagine that the remaining part keeps objecting :lol: I'll let...
by LeonW
Fri Jun 12, 2015 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm new and concerned I may have Colon Cancer. Can you help?
Replies: 112
Views: 10701

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Hi Lydia, No need to worry. I've had several scopes done and believe there is little to it. As Nick says, it isn't too bad. I'll do it anytime, if believed necessary. That people are worried about it, may be a left over of the old days when colonoscopies were performed without sedation! Professor Da...
by LeonW
Fri Jun 12, 2015 6:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood Test - Liver Function
Replies: 6
Views: 2192

Blood Test - Liver Function

Hi Guys, Have been lurking for a while. Thanks for sharing your experiences and the many heads up. I hope I can ever repay you all. Am recovering well from IVa treatment / busy regaining ordinary life. Last Op was some 20 months ago. Scans are clear and CEA consistently low (around 1.3). April colon...
by LeonW
Thu Jun 04, 2015 3:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When Does the Survival Clock Start?
Replies: 18
Views: 2220

Re: When Does the Survival Clock Start?

I'm pretty sure it starts counting at time of diagnosis . . .
by LeonW
Sun May 24, 2015 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weaning of Dexametasone
Replies: 5
Views: 1187

Re: Weaning of Dexametasone

Hi Frenchie, I'm no expert on this, neither do I have any personal experience with this type of treatment. A quick google search learned that our national society of pharmacists advises against suddenly stopping the intake. They say that: If you have been using Dexametasone for three consecutive wee...
by LeonW
Sun May 24, 2015 4:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Claw Hand Effect Xeloda - Advice?
Replies: 12
Views: 1595

Re: Claw Hand Effect Xeloda - Advice?

Had the claw hands as well; occasionally for a few minutes. This together with most of the other effects. Weirdest was not able to see moving objects during the first hour or so on the way back home after a full day of chemo. Saw individual stills at 1 second intervals, rather than smooth movements....
by LeonW
Mon May 18, 2015 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: female hormones and chemo
Replies: 21
Views: 1961

Re: female hormones and chemo

. . . and
How are you doing yourself Annemiek.
Glad to see you back here. Survived your week of disaster?
Hope you're a little better now.
by LeonW
Thu May 14, 2015 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To Sell or Donate a Question? Views Please
Replies: 16
Views: 2017

Re: To Sell or Donate a Question? Views Please

Sharon Brent wrote:I feel good, and think I made a good choice, with your Help :D


Congrats, good choice
by LeonW
Tue May 12, 2015 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What they say when you tell 'm
Replies: 54
Views: 6806

Re: What they say when you tell 'm

On a lighter side: When I was diagnosed, I had just found someone far away (South Africa) who volunteered to receive a package for me and keep it until our next visit to his country. This without ever having met the guy. We came into touch via an internet site for traveling unbeaten tracks in Southe...
by LeonW
Sat May 09, 2015 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How do they diagnose mets?
Replies: 7
Views: 1206

Re: How do they diagnose mets?

Mets need lots of blood and light up quickly after the IV agent is injected just prior to the scan.
(That's the explanation I got, when discussing scan results that showed a few cycts / no mets).

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