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by plastikos
Mon Oct 09, 2017 3:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 16217

Re: GOOD NEWS ON BEANSMAMA

Good to hear. Especially the part about the tumors being dead. Anything is possible!
by plastikos
Tue Oct 03, 2017 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 3618

Re: DK37 Experimental Immunotherapy Treatment Update

Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible a...
by plastikos
Mon Oct 02, 2017 6:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 years NED, stage 4
Replies: 26
Views: 2977

Re: 7 years NED, stage 4

Inspiring story. Especially for Stage 4s like me. Thank you.
by plastikos
Fri Sep 29, 2017 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here undergo SIRT?
Replies: 8
Views: 1122

Re: Anyone here undergo SIRT?

Underwent SIRT yesterday. It was a bit more painful than I expected. Had to be sedated. Fine today except for some mild crampy back pain. Hope they nuked everything. Hope to get back on Pembro soon. It’s just that nobody is quite sure when to start it again.
by plastikos
Wed Sep 27, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Too many tumors to count... newbie here
Replies: 15
Views: 2177

Re: Too many tumors to count... newbie here

Echoing what others have said. Don’t know where you live but get yourself to the nearest major cancer center for an opinion. Do not stick with a team of doctors who tell you it’s “hopeless” and there’s nothing they can do. Theres is always hope. If they can get a sample of tumor I would suggest havi...
by plastikos
Sat Sep 23, 2017 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here undergo SIRT?
Replies: 8
Views: 1122

Re: Anyone here undergo SIRT?

Has anyone else tried SIRT while on immunotherapy with a PD1 inhibitor?
by plastikos
Thu Sep 21, 2017 4:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here undergo SIRT?
Replies: 8
Views: 1122

Anyone here undergo SIRT?

Hi all. I am about to undergo SIRT with Y90 next week for some tumors that seem stable on immunotherapy. Of course I prefer them to be non-existent thus the SIRT. The initial mapping showed disease is confined to segment VIII and the plan is to nuke it via the right hepatic artery. I stopped Pembro ...
by plastikos
Thu Sep 21, 2017 4:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 3618

Re: DK37 Experimental Immunotherapy Treatment Update

Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible ab...
by plastikos
Thu Sep 21, 2017 4:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Chemo Lifers? Incurable Stage 4
Replies: 17
Views: 3046

Re: Any Chemo Lifers? Incurable Stage 4

Hi. Not technically a chemo lifer yet but I am stage 4. Currently on Pembrolizumab every 3 weeks but I am scheduled to undergo SIRT with Y90 spheres next week for some tumors in the liver that have responded partially to Pembro but aren't going away. Everything else outside the liver has gone. Docto...
by plastikos
Sat Sep 09, 2017 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New scan on Keytruda. Need opinion.
Replies: 3
Views: 1855

New scan on Keytruda. Need opinion.

Hi all. Asking for some input. I have been on Keytruda exclusively since early this year and things have been going well. Extrahepatic lesions (supraclavicular, paraaortic) have gone. Liver lesions have shrunk and are PET negative. I have been gaining weight and am asymptomatic save for extreme dry ...
by plastikos
Thu Sep 07, 2017 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda and dry mouth
Replies: 5
Views: 1316

Re: Keytruda and dry mouth

Thank you for the replies.
by plastikos
Wed Sep 06, 2017 4:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda and dry mouth
Replies: 5
Views: 1316

Keytruda and dry mouth

Anyone here on Keytruda experience extreme dryness of the mouth? Is this common? I just noticed it after my last dose. Eating anything dry (chips, biscuits, bread) is a task.
by plastikos
Tue Aug 08, 2017 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver metastasis and bile duct involvement
Replies: 2
Views: 755

Re: Liver metastasis and bile duct involvement

I was just told I need a bile duct stent placed due to blockage. I was told it may be from outside pressure from a tumor or a tumor in the bile duct. Has anyone experienced this? Did bile duct involvement complicate things? Any info would be appreciated. Hi. I experienced this. I had a stent placed...
by plastikos
Tue Aug 08, 2017 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice for next step
Replies: 6
Views: 2981

Re: Need advice for next step

Thanks Lee. I am happy with the improvement on Keytruda as well. Would just feel better having those f*ckers nuked is all. Hoping that SIRT plus immuno might be a lethal combo for the cancer. I understand and hear your frustration. Can you get some opinion in your area or are you planning to go out...

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