Search found 3089 matches

Go to advanced search

by juliej
Thu Dec 19, 2019 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1652
Views: 370553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Wow! Your fitness level is amazing! If you make it into the upper 40's you'll be in the top 1%! You can blame those Soul Cycle people for the popularity of spinning classes, even though they aren't the same thing. Soul Cycle classes are held in a candlelit room. I don't need candles to get fit. :D W...
by juliej
Thu Dec 19, 2019 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1652
Views: 370553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Lately, it has been generally lower than it has been several months ago with the same exertion levels. It was up in the 180s this past summer and it's mostly been in the 160s with an occasional trip into the 170s. It is likely that I am getting more efficient or stronger. It definitely sounds like ...
by juliej
Thu Dec 19, 2019 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV With Liver Mets
Replies: 9
Views: 900

Re: Stage IV With Liver Mets

I agree with FightCRC: Dr. Skye Mayo at OHSU in Portland, Oregon, Dr. Yuman Fong at City of Hope in Duarte, California, and (THE world-wide expert on HAI treatment), Dr. Nancy Kemeny at MSKCC in New York City. There are several of us here with HAI pumps, so feel free to ask questions. I, personally,...
by juliej
Thu Dec 19, 2019 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 3465

Re: After HAI

He thinks this happened because he pushed himself to hard physically to get better quicker from surgery. Example: BEFORE surgery he would walk on the treadmill (during crappy weather) at 1-2 mph AFTER surgery he pushed himself up to 4-5 mph Whoa! That's a big change! Tell him he needs to go sloooow...
by juliej
Thu Dec 19, 2019 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bile duct leak
Replies: 7
Views: 867

Re: Bile duct leak

My instinct weeks ago was, "just get these drains out of me and I'll stop leaking." But of course the surgeon did not agree with my "instinct!" Meantime I have been praying for spontaneous healing so I don't have to worry about this any more!! Gina, I completely empathize with y...
by juliej
Mon Dec 16, 2019 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1652
Views: 370553

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've been reading up on VO2Max - an interesting study used a group, average age 61 with VO2Max 18 or lower. 55% mortality rate after two years. The mortality rate above 18 was 11%. I did some checking and basically 18 or lower is 1% of the population. VO2Max is well correlated with longevity. The q...
by juliej
Mon Dec 16, 2019 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2580

Re: 7 Year cancerversary

Kiwi, you've always been such a big source of inspiration to me and others on the board. Congrats on living every day to its fullest and celebrating 7 years! You are a badass!!! Cheers to many, many more! :D :D :D I still exercise, more into marathons now but we are coming on to our summer and it ha...
by juliej
Fri Dec 13, 2019 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 45
Views: 6008

Re: Please help, input needed

Ulendon wrote:Currently sitting in the parking lot drinking a grand Chai latte to fill up my bladder.

That's an excellent way to fill your bladder! I love Chai lattes. :D

Be calm, take a deep breath, you can do this!

Juliej
by juliej
Wed Dec 11, 2019 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 3465

Re: After HAI

So its an infection and currently waiting for some of the fluid around the pump to be extracted for testing Sending good thoughts that it's something minor! I'm with Gina - wearing any kind of supportive garment (running tights, etc.) helps it feel more secure. I'm thin too but mine often felt like...
by juliej
Wed Dec 11, 2019 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1314

Re: Memorial Sloan Kettering Hotel Option Question

Helmsley Medical Tower is about $283 a night, which isn't cheap but it's a real apartment with a kitchen, which means you can save money by eating breakfast, etc. there. They aren't for the general public - just for medical patients going to NY Presbyterian or MSK. The staff is wonderfully supportiv...
by juliej
Tue Nov 12, 2019 1:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI on a personal level
Replies: 4
Views: 576

Re: HAI on a personal level

DH is less than a week away from surgery numero uno! Colon resection and HAI yay! This is a personal question that just dawned on. Sex AND HAI, weird? Doable? Top, bottom? Lol forgive me please just plain curiosity! I've always thought it's weird that oncologists never discuss sex or anything relat...
by juliej
Wed Oct 09, 2019 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1454

Re: How long does MSK take to get approval to install HAI pump?

I'm told that the combination of Medtronic pump and Codman catheter is off-label and therefore needs FDA approval. Want to confirm or deny that. The clinical trial says this: This study is being done to answer the following question: Is the combination of the Medtronic pump and the Codman catheter ...
by juliej
Wed Oct 09, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any prepping and scoping buddies out there ?
Replies: 25
Views: 1944

Re: Any prepping and scoping buddies out there ?

Today colonoscopy : with my CRC surgeon, sedation, IV fluids sent 1 small "benign" polyp to the lab and I will do follow up with family doc once his report is there next week. So happy to hear this! "Benign" is the key word. Congratulations! :D :D :D Should probably go and work ...
by juliej
Mon Oct 07, 2019 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 50638

Re: My CRC with liver mets journey

We will go in on Tues and surgery will be Wednesday the 16th. We will need to have a nice dinner that Tuesday night! Maybe Scarpetta or Bar Masa. Open to recommendations!! I’m just so happy I didn’t have to get more Vectibix today! That was my very first thought - you get a much needed Vectibix bre...
by juliej
Mon Oct 07, 2019 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 50638

Re: My CRC with liver mets journey

I’m at MSK today. Had a scan yesterday and was all set to do chemo today. Successfully talked Dr Kemeny into a Vectibix reduction, but then I had my consult with Dr Kingham. He wants me to come in for surgery NEXT WEEK! Holy cow but I’ll take it!! Next week??? Holy cow indeed, but this is excellent...

Go to advanced search



cron