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by juliej
Thu Jan 09, 2020 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COMING OUT!!!!!
Replies: 6
Views: 908

Re: COMING OUT!!!!!

Mrned82 wrote:remember always
NO EXPIRATION DATE !!!!!!

I love this line!

You are right, Daniele. No one truly knows our expiration date. You keep traveling, dancing, and enjoying your life to the fullest!

Thanks for the wonderful post!
Juliej
by juliej
Thu Jan 09, 2020 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 704

Re: Muscle joint soreness - but not as a result of chemo?

No chemo right now, no. Tomorrow I’m going in for labs and an iron infusion. I’ll ask them to pull B12 - that’s one I haven’t been checking. And I know someone mentioned one other thing, was it D3 maybe? I know last labs, my magnesium and iron were below normal range. Potassium was super low side o...
by juliej
Wed Jan 08, 2020 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 704

Re: Muscle joint soreness - but not as a result of chemo?

You're not on chemo right now, correct? My first guess would be a magnesium/potassium deficiency. That played hell with my joints and muscles during treatment. The potassium infusions helped but not enough on a day-to-day basis. Finally, I started eating a banana (I hate bananas) every day and that ...
by juliej
Wed Jan 08, 2020 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1652
Views: 370545

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Second try and I was able to get my heartrate up to 135 on the second time out. I only did 3 miles at a moderate pace but I think that heartrate gains are doable. The thing is the balance. I got in 4 miles running today and 3 miles cycling and both felt great. I do want to increase speed and distan...
by juliej
Mon Jan 06, 2020 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2578

Re: 7 Year cancerversary

Hi Julie I just logged back on and noticed you are a competitive runner. What sort of running do you do? What do you focus on? What sort of training plans do you use? Do you have a running coach, or do it yourself? Garmin, Suunto? I have lots of questions. Run solo, groups? 2019 was not a good year...
by juliej
Mon Jan 06, 2020 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Belly band?
Replies: 2
Views: 460

Re: Belly band?

There are several possibilities - belly bands, abdominal binders, and compression sports clothing. Belly bands are available in Target or any store with a pregnancy section. They provide medium support to the abdominal area. Even though these are made for women, they will easily fit a man (think of ...
by juliej
Fri Jan 03, 2020 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Toast to 2020!
Replies: 10
Views: 800

A Toast to 2020!

In August of 2010, on a perfect summer day, I was told I was dying. I didn't really believe it at first. I was healthy, fit, young, with no history of cancer in my family. Then they showed me the images. There were tumors everywhere. How could someone who looked so well on the outside be so sick on ...
by juliej
Mon Dec 30, 2019 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020
Replies: 276
Views: 119752

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

CRguy wrote:Sorry gotta go now
back into the workshop to get the theremin retuned to scream LOUD and Proud
for the World Junior Hockey Championships :mrgreen:

And.....

CANADA BEATS GERMANY 4-1 !!!!!!

Bring on the screamin' theremin! :D :D :D :D

Now on to the Czechs!!!

JJ
by juliej
Thu Dec 26, 2019 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can chemo increase ALT & AST
Replies: 6
Views: 664

Re: Can chemo increase ALT & AST

Remember is really poison going into you system and after a while, your liver starts to talk to you. Me: Here's some nice Folfox for you. Yum! My liver: @#$%&*!!! Me: I know, but the doctors say it's gooood for you. It'll make you well! Really! (fingers crossed behind back) My liver: That [expl...
by juliej
Thu Dec 26, 2019 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 3465

Re: After HAI

Did any of you with the pump ever experience some liver pain while getting your pump chemo? DH has been struggling a little with that and a 2 week long stint of morning sickness while the chemo works through his liver. He refuses to take anything and has tried a bunch of other tricks that don't see...
by juliej
Tue Dec 24, 2019 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED and other news from Mayo
Replies: 9
Views: 920

Re: Still NED and other news from Mayo

Gravelyguy wrote:Got a great early Christmas present yesterday. All scans and CEA look great!

And what an ABSOLUTELY GREAT Christmas present! :D :D :D

The road was long and hard, but you made it! Keep chalking up those milestones!

Juliej
by juliej
Tue Dec 24, 2019 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 3465

Re: After HAI

Luckily the fluid came back as.... fluid. No bacteria just regular old fluid so good news. They're still having trouble finding the owning to the pump for access because he's still tender and still a little swollen I can't wait for that to be fully healed and maybe that will go smoother Fantastic n...
by juliej
Tue Dec 24, 2019 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP REMOVED
Replies: 5
Views: 806

Re: HAI PUMP REMOVED

I'm due for my HAI pump removal too!!! :D :D :D They said it's just outpatient surgery (no overnight stay in the hospital). I believe they said it would take about an hour. The incision will be glued, not stapled. They leave a piece of the catheter in place (the tip that's in your artery) because th...
by juliej
Tue Dec 24, 2019 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bile duct leak
Replies: 7
Views: 867

Re: Bile duct leak

Thank you so much for sharing this. I think it helps to know that this kind of thing can happen and I’m not some oddball who is now at the edge of liver failure! Like you, I’ve been up and down but lately have been consistent or down; this morning I think I was only about 25, after a few days of 30...
by juliej
Thu Dec 19, 2019 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2578

Re: 7 Year cancerversary

Sunny afternoon near where I live. It was about 2 PM and that is not cloud cover but smoke. https://imgur.com/sbjbkp3 This one was from my friends place and it kind of shows how bad it has been recently. https://imgur.com/HOb5OUU Ugh. I felt my lungs constrict just looking at those photos!!! When w...

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