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by meatie
Tue Sep 20, 2016 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stereotactic Radiation Timeline
Replies: 5
Views: 1704

Re: Stereotactic Radiation Timeline

KElizabeth wrote:I don't have any answers for you bit I'm interested to know . Here's a bump back up to the active list.


So, stereotactic radiation is a rarely done procedure?
by meatie
Sun Sep 18, 2016 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stereotactic Radiation Timeline
Replies: 5
Views: 1704

Stereotactic Radiation Timeline

Based on google searches, it seems for stereotactic radiation, some 3D mapping/visualization is done before the actual zapping is done. So, there will be some delay between the date of the first visit with radiation oncologist and the day of the first session of radiation therapy. For those who had ...
by meatie
Sat Sep 17, 2016 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation + Chemo at Same time
Replies: 2
Views: 1009

Radiation + Chemo at Same time

Is it necessary to stop chemo for several weeks before undergoing stereotactic radiation? It looks like my mom will be getting stereotactic radiation therapy. The onc seems to be leaning toward holding off on chemo until radiation get started. But the busy scheduling of the radiation doctor is such ...
by meatie
Thu Sep 08, 2016 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf + Avastin
Replies: 9
Views: 4561

Re: Lonsurf + Avastin

Meatie, My oncologist has mentioned it, but at the time i was already on folfox. He did not seem optimistic about it and stated it is not a drug for a cure, just that it might buy me some more time - a month or two. Now that I've reacted to oxaliplatin, we need to have a discussion on next options....
by meatie
Thu Sep 08, 2016 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf + Avastin
Replies: 9
Views: 4561

Re: Lonsurf + Avastin

@GrouseMan + Midlifemom

According to your signatures, Lonsurf was not tried. Did your oncologist ever suggest lonsurf?
by meatie
Wed Sep 07, 2016 10:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf + Avastin
Replies: 9
Views: 4561

Lonsurf + Avastin

At the most recent dr's appointment, the onc suggested that my mother will be getting avastin plus a different chemo drug, which was not specified but I assumed to be stivarga. It turned out the new combo will be avastin + LONSURF. I did some searches on google, but found very little on lonsurf. Any...
by meatie
Mon Sep 05, 2016 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: stopping CT scans
Replies: 16
Views: 2721

Re: stopping CT scans

I have been doing fairly well except for progressing neuropathy. If more cancer is found, I doubt I will have more chemotherapy or other treatments. My oncologist wants me to have another CT scan with IV contrast. I am considering not having another scan. Do any others on this site have thoughts on...
by meatie
Wed Aug 31, 2016 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga, Folfox, Folfiri
Replies: 4
Views: 1360

Re: Stivarga, Folfox, Folfiri

I've had 12 FOLFOX treatments, 22 cycles (months) of Stivarga and haven't had Folfiri. For me, in order from worst to easiest: Stivarga at 4 pills/day for 3 weeks felt horrible, but very different to FOLFOX. The fatigue was off the charts and I had mouth sores, sore hands and feet, nose sores and s...
by meatie
Wed Aug 31, 2016 12:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga, Folfox, Folfiri
Replies: 4
Views: 1360

Stivarga, Folfox, Folfiri

For those who had stivarga, folfox, and folfiri, how would you rank them in terms of side effects? Which is the worst? stivarga or the fol-brothers?
by meatie
Mon Aug 29, 2016 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga + Avastin
Replies: 6
Views: 1579

Re: Stivarga + Avastin

So, no one had the stivarga+avastin combination?
by meatie
Sat Aug 27, 2016 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga + Avastin
Replies: 6
Views: 1579

Stivarga + Avastin

We had a chat with our regular onc who returned from vacation. The ideas of radiation and surgery were tossed around, but deemed unsuitable, because of the proximity of the para-aortic lymph node to the heart. Onc suggested that my mother take a month off and then start stivarga (aaaaaaaaaaaaaah!!!)...
by meatie
Mon Aug 22, 2016 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reuse Folfox?
Replies: 6
Views: 1473

Re: Reuse Folfox?

@midlifemom My mom had folfox for 8 rounds. Then for round 9 to 12, oxaliplatin was dropped, as she had an allergic reaction on round 9. It has been over a year since her last treatment with the full folfox. So, maybe the toxicity from oxaliplatin has cleared up enough that my mom could withstand an...
by meatie
Sun Aug 21, 2016 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reuse Folfox?
Replies: 6
Views: 1473

Re: Reuse Folfox?

@midlifemom

Did your onc say that folfox is more effective than folfiri? Some articles on the web seem to say so.
by meatie
Sun Aug 21, 2016 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reuse Folfox?
Replies: 6
Views: 1473

Reuse Folfox?

Has any one , after using folfox first-line and then using folfiri, reused folfox? The web seems to have some anecdotes of this possibility.

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