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by muskokamike
Sun Feb 26, 2017 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spike in CEA marker after chemo
Replies: 7
Views: 2021

Re: Spike in CEA marker after chemo

Deborah What was your baseline CEA level at dx? What is the normal range for your lab? If normal is 0-4 like my lab and your CEA has gone from .06 - 1.8 (3X) that is still within normal range and onc's are concerned over the trend after several tests. If your CEA has jumped from 3-9(3X) they may do ...
by muskokamike
Thu Feb 23, 2017 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Going for It
Replies: 27
Views: 4767

Re: Going for It

"Live your life like it's going to be a long one, because it just might, and then you'll be glad you did."
by muskokamike
Fri Jan 13, 2017 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just out of curiosity
Replies: 5
Views: 1072

Re: Just out of curiosity

In Ontario you can donate blood after 5 years from your last chemo and you are NED. It was 2 years but it was changed to 5 last year. I had an appointment a few months ago to donate because I was told it was the 2 year time frame when I arrived they said sorry come back in three. All the info is on ...
by muskokamike
Thu Jan 12, 2017 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 53
Views: 8829

Re: Just Diagnosed

Welcome to the group that no one wants to be part of. You are exactly where I was just over three years ago but you are much younger. There are many here who will post that were your age and younger and will have many more suggestions regarding additional genetic test. Yes, it looks you have caught ...
by muskokamike
Thu Jan 12, 2017 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 53
Views: 8829

Re: Just Diagnosed

delete double post
by muskokamike
Thu Jan 12, 2017 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy after ULAR
Replies: 7
Views: 1292

Re: Colonoscopy after ULAR

Mine was a year after surgery.(Feb 15) It was clear and next one in three years (Feb 18). If they found something it would of been a year. I am good with that schedule.
by muskokamike
Fri Jan 06, 2017 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Visible on MRI or Abdominal CT (with barium)?
Replies: 8
Views: 2111

Re: Colon Visible on MRI or Abdominal CT (with barium)?

Welcome to the club no one wants to be part of. You will get a wealth of info here from people who have lived exactly what you are going through. If you lurk here long enough you will see many in their 30's 40's with colon cancer. The difference from early stage and late stage is timing. Based on wh...
by muskokamike
Fri Jan 06, 2017 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: There are people here who need urgent psych help,
Replies: 31
Views: 6702

Re: There are people here who need urgent psych help,

Here is what might solve the problem that this board seems to be having lately. A 3 post a day max and you can't save them, if you don't use 'em you lose 'em. You log in you read the topics you want and you can reply or you can start a new topic but you can only hit that submit button 3X per day max...
by muskokamike
Sat Dec 31, 2016 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To all, old and new
Replies: 27
Views: 5111

Re: To all, old and new

This is a cancer chat board/forum so put your big boy/girl pants on.
If you want sugar coating, head down the cereal aisle.
by muskokamike
Sat Dec 24, 2016 11:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin and neuropathy
Replies: 13
Views: 3224

Re: Oxaliplatin and neuropathy

Hindsight is 20/20. I was in a similar situation back when I had surgery and was told I had a complete response. Chemo was an option and my onc recommended that I do the FOLFOX because my tumor was a T3 even though I had no tumor after pathology. She explained the potential side effects in detail bu...
by muskokamike
Sat Dec 17, 2016 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a stupid test
Replies: 23
Views: 6362

CEA is a stupid test

My oncologist yesterday told me that CEA was a stupid test for ME. When I was dx my CEA was at it's lowest and too many of her patients like me whose CEA is not a good marker become fixated over the test. She said many things cause CEA to rise and when levels go up consistently like doubling from te...
by muskokamike
Mon Dec 05, 2016 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A bag or a box
Replies: 6
Views: 1805

A bag or a box

When I was dx three years ago a work colleague that I had dealings with was also dx with the exact same cancer. We saw each other weekly during the summers since he was in the marine business. I had my surgeries and was doing well but he refused surgery due to the fact his doctor told him he most li...
by muskokamike
Tue Nov 29, 2016 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 year cancerversary
Replies: 20
Views: 2260

Re: 3 year cancerversary

Hi Jay We were both dx around the same time. I have always read your post and happy that you are doing well. I guess in NZ they only scan for three years after surgery. I have been told I will have a minimum of 5 yearly scans. Interesting how NZ and Ontario Canada are different in protocol for monit...
by muskokamike
Fri Nov 11, 2016 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger Update
Replies: 41
Views: 5140

Re: BrownBagger Update

Eric,

I have always read and enjoyed your post. Thanx for the update and chin up.
by muskokamike
Sun Nov 06, 2016 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Canadian young adults selling home after losing job
Replies: 8
Views: 1832

Re: Any Canadian young adults selling home after losing job

Hi Steph I actually do not know who covered it but am pretty sure it was Homecare. I was getting ready for my 2nd Folfox chemo treatment after having an ultrasound on my arm at RVH in Barrie back in April 2014. Just before the treatment was to start they told me I needed to go down to the pharmacy i...

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