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by muskokamike
Sat Mar 31, 2018 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally figured out why I got Colon Cancer
Replies: 5
Views: 1827

Finally figured out why I got Colon Cancer

So how does a guy who does not smoke, maybe drinks one beer a year, who cycles over a thousand miles a summer and plays hockey in the winter get diagnosed with colorectal cancer? How does a guy with absolutely no family history of cancer get to hear those three dreaded words “you have cancer”? Well ...
by muskokamike
Thu Mar 29, 2018 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pressuer
Replies: 7
Views: 1439

Re: Rectal pressuer

Double post...DELETED
by muskokamike
Thu Mar 29, 2018 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pressuer
Replies: 7
Views: 1439

Re: Rectal pressuer

"My understanding is that this is a Colorectal Cancer board and it doesn't seem like you had cancer. If I'm wrong, then I'm sure that someone will correct me." You are wrong. A person that comes here for any colon related issues should be given the courtesy of a response and a redirect to ...
by muskokamike
Mon Mar 26, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member seeking support
Replies: 19
Views: 6730

Re: New member seeking support

Trevor Your journey is just beginning. You have come to the right place, I learned more here than from anywhere else. Take a deep breath and take one day at a time. There will be bad days and hopefully more good days. My number one advice is stay away from Dr Google. I had myself dead and buried fiv...
by muskokamike
Wed Mar 07, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can't believe it's been 4 years
Replies: 7
Views: 1599

Re: Can't believe it's been 4 years

Thanx everyone for the replies. It is with mixed feelings that I post my good news story because I know for many warriors the journey just continues to get harder. When I was starting out it was stories like mine that I would search for and read over and over. I hope that some here can find their ow...
by muskokamike
Sat Mar 03, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 colon Cancer, CEA levels, CT scans
Replies: 13
Views: 2659

Re: Stage 1 colon Cancer, CEA levels, CT scans

If you look at my signature you can see my ongoing levels. They fluctuate but always in the normal range 0-4. You will see a level of 1.4 and then a increase to 2.9. This was in the span of 15 months. My onc bumped up the scan and it was good. She was just being cautious but was not to overly concer...
by muskokamike
Wed Feb 28, 2018 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can't believe it's been 4 years
Replies: 7
Views: 1599

Can't believe it's been 4 years

Four years ago today I was two days post op from LAR open surgery. My gut looked like the zipper of my hockey bag, I had a temp ileostomy that just kept filling with nasty green stuff. I had not eaten for three days and would go another five without food. Jello is not food. In three days I would be ...
by muskokamike
Sat Feb 10, 2018 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOBT
Replies: 6
Views: 1353

Re: FOBT

My 2 cents I had a negative FOBT and a year later was found to have a tennis ball size tumor which my surgeon said would of been there when I did the FOBT. My surgeon told me that he could send 100 patients with actual colon cancer to do the FOBT and 40 would test positive. The test is not very accu...
by muskokamike
Fri Jan 19, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 3523

Re: Tumor gone, cea level of 1

Yes You are stage III which means you have node involvement. Do yourself a favour have the surgery and do the mop up chemo and put that final nail in the cancer coffin. I wanted to be able to say I did everything possible in case I had a recurrence there would be no 'what if's' I also had no tumor a...
by muskokamike
Thu Nov 16, 2017 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many diagnosed have family with history?
Replies: 7
Views: 1285

Re: How many diagnosed have family with history?

You are due for a scope now. Do not put it off. I have been told by doctors that they will usually start scopes on sons and daughters of CRC parents 10 years prior to when parent was dx. I was dx at 53 and my daughter has been told they will start at 40 with her. I would prefer earlier for her to ge...
by muskokamike
Wed Nov 15, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 7384

Re: Tom marsilje

Tom always had 'the eye of the tiger' in his battle. I always read his blog and know that he literally helped thousands battle cancer. He will be missed and my condolences to his wife and two daughters.
As a CRC advocate he will be hard to replace.
RIP Tom :cry:
by muskokamike
Sat Nov 04, 2017 10:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long after colon resection did you feel back to normal?
Replies: 13
Views: 3402

Re: How long after colon resection did you feel back to normal?

NZJay wrote:Nearly 4 years out and I have not returned to how I was before cancer/surgery. But my 'new normal' is quite tolerable.


Exactly the same for me also.
by muskokamike
Wed Oct 25, 2017 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo?
Replies: 36
Views: 6975

Re: More chemo?

Put that final nail in the cancer coffin.
If you ever did get a recurrence there will be no what if's.
I did and would do it again.

Congrats
by muskokamike
Sat Aug 12, 2017 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 274802

Re: The Grim Reaper took another swipe at me !!

Bryan Murray was a lifelong hockey guy. Always a class act and since his dx became a real advocate for getting colonoscopies.


http://www.cbc.ca/sports/hockey/nhl/bry ... -1.4245187
by muskokamike
Wed Aug 09, 2017 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA update
Replies: 6
Views: 1799

Re: CEA update

Hey Jay Great news about CEA. I know the feeling with the fluctuating numbers. I had bloodwork yesterday for my six month check next week. My onc always says CEA is just a number and it is the trend she cares about. Told me I spend too much energy fixating on the number. She says that she will tell ...

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