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by AngelaN
Sat Jun 25, 2016 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Break with Existing Met in Lung
Replies: 18
Views: 2538

Re: Chemo Break with Existing Met in Lung

A 5mm met is pretty small. Look at the ruler. Miniscule. Colon Cancer typically grows pretty slowly. In 3 months, there are still the same options as right now. If it completely freaks you - talk to your onc about SBRT or ablation. My husband chased every met for a while. And he kept getting them, a...
by AngelaN
Sun May 22, 2016 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 719764

Re: Wives of husbands with Stage IV Colon Freaking Cancer

JS wife- thanks for talking me off the ledge. at 3 am when I am awake worrying, it seems so crazy that my husband even has cancer - And then every am the reality hits. Again. But I know we are more than this. Cancer does not define us, it's just part of the journey.
by AngelaN
Sun May 22, 2016 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 719764

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hey everyone Been a long time. Welcome to the new members. This is a place to vent and ask questions and get a lot of support. Completely freaking out here. We had a really rough fall and winter - finished FOLFIRI + Avastin (had a total of 32 chemo treatments). Had SBRT for lung met, then ablation o...
by AngelaN
Sat Apr 23, 2016 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregiver fatigue - How do you keep it together?
Replies: 16
Views: 2070

Re: Caregiver fatigue - How do you keep it together?

Thank you to everyone. I think you are all right. It's time for a support group or counseling or something. I haven't been this sad since the weekend he was diagnosed. I am not sure why I feel overwhelmed now of all times. We've been at this a while, we know how to fight cancer together. Just a bad ...
by AngelaN
Sat Apr 23, 2016 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregiver fatigue - How do you keep it together?
Replies: 16
Views: 2070

Caregiver fatigue - How do you keep it together?

My husband continues to have new mets. One at a time, and he has been in continuous whack a mole treatment planning since last July. RFA x 3 (then a boatload of complications), new lung met, new liver met and now 1 maybe two more lung mets. He is now enrolled in a clinical trial for KRAS + patients ...
by AngelaN
Sun Jan 31, 2016 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disability
Replies: 4
Views: 999

Disability

Hey all, Looking for some ideas on what to do next. My DH has been in treatment for Stage 4 for over 2 years. Finally in Aug when he was about to start treatment for lung mets with a plan for SBRT then 3 ablations he went on short term disability. Then he had a few complications - ended up in the ho...
by AngelaN
Fri Jan 08, 2016 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2nd year caregiver jitters-CAREGIVERS ONLY
Replies: 15
Views: 2936

Re: 2nd year caregiver jitters-CAREGIVERS ONLY

We had our two year cancerversary in Nov. We thought after 30 rounds of chemo, 2 surgeries, 2 ablations and 1 SBRT he would be NED. Then a month later, my DH has a new liver met. NOT SEEN ON CT DONE A MONTH BEFORE. WTF????? At some point you have to get caregiver fatigue. How much more can you take,...
by AngelaN
Sat Jan 02, 2016 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Withering away without help
Replies: 48
Views: 11472

Re: Withering away without help

You should also be tested for celiac disease. Could explain a lot of your symptoms including the skin changes.
by AngelaN
Wed Dec 16, 2015 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New met in 3 weeks???
Replies: 7
Views: 1678

New met in 3 weeks???

DH has had a bit of a rough Nov. Had RFA of lung met, ended up in the hospital for 4d with a fever, then a week later a pneumothorax (collapsed lung) and had a chest tube. All going well and he has a PET/CT on Monday. Today our oncologist tells us he has a new liver met - 1cm seen on PET. NOT SEEN O...
by AngelaN
Sun Nov 29, 2015 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help to understand PET scan
Replies: 10
Views: 1667

Re: Help to understand PET scan

I don't see anything here that says you have any mets in your liver. The liver is an organ that is highly metabolic so they are commenting on the glucose uptake in the liver as a baseline. There is nothing in that report that makes me think you have any liver mets.
by AngelaN
Sun Nov 29, 2015 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 looking for ideas
Replies: 5
Views: 1300

Re: Stage 4 looking for ideas

Sorry - not KRAS wild, KRAS mutant +
It's been a long week
by AngelaN
Sun Nov 29, 2015 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 looking for ideas
Replies: 5
Views: 1300

Re: Stage 4 looking for ideas

Sorry - not KRAS wild, KRAS mutant +
It's been a long week
by AngelaN
Thu Nov 26, 2015 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 looking for ideas
Replies: 5
Views: 1300

Stage 4 looking for ideas

My DH is Stage 4, diagnosed two years ago. He has had surgical removal or RFA for every met he has (along with FOLFOX+Av, FOLFIRI + Av, and 5FU+ Av over the two years). He now has no obvious disease (we think - there may be a liver met - f/u scan in a month). He is KRAS wild, MSI stable (waiting for...
by AngelaN
Thu Nov 26, 2015 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help to understand PET scan
Replies: 10
Views: 1667

Re: Help to understand PET scan

Hi - I can help - I am a physician - Important thing to remember that SUV - or uptake of the glucose does NOT mean cancer. It needs to be compared to CTs and your known tumors to give a big picture. So I want to say very clearly that this is NOT meant to be a definitive reading - but just to help gi...
by AngelaN
Sat Nov 14, 2015 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregivers
Replies: 25
Views: 2958

Re: Caregivers

As we speak I have just spent my 4th night in the hospital with my DH. He is depressed and discouraged. Just had RFA for his last 3 mets that we can find and then he gets readmitted. I slept two nights in a chair, the second night in a folding chair in the ED. The third night I slept on the floor. T...

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