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by CM35
Tue Apr 07, 2015 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for a HIPEC surgeon
Replies: 9
Views: 2737

Re: Looking for a HIPEC surgeon

Cherie, I was able to get opinions over the phone from two doctors regarding HIPEC. Dr Labow at Mt. Sinai in NYC, and a surgeon at UC San Diego. Dr Labow was julieyw's surgeon, and Rhealiza's. His office requested medical records, he reviewed my scans and his PA talked to me, she answered many quest...
by CM35
Tue Apr 07, 2015 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Don't understand blood work
Replies: 13
Views: 1452

Re: Don't understand blood work

I believe that having a virus can make your white cells, neutrophils, etc higher. Your immune system is working on whatever bug you have. Your values are barely above normal. I think in people with leukemia, those numbers would many, many times the normal value. I am not a medical person, so definit...
by CM35
Tue Apr 07, 2015 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Grade 3 Hand Foot - MSK today
Replies: 15
Views: 1400

Re: Grade 3 Hand Foot - MSK today

Julie, my CEA at MSK is consistently 3-4 TIMES higher compared to local. I asked both dr k and my local onc what gives. Dr k just said "I'm not worried about your CEA." Local onc mentioned the difference in labs and methods, but admitted in his experience that it usually isn't this big of ...
by CM35
Mon Apr 06, 2015 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celeste - How are you and Pete?
Replies: 17
Views: 2355

Re: Celeste - How are you and Pete?

Celeste, I am sorry you are at this point. Praying for your family as you make decisions, and choose your next steps. I can't imagine. I am also praying that Pete's blockage resolves so you can all be comfortable, and at home. Words seem inadequate, but know I am thinking of you.
by CM35
Fri Apr 03, 2015 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celeste - How are you and Pete?
Replies: 17
Views: 2355

Re: Celeste - How are you and Pete?

Thank you for asking, Celeste. I am OK. Mostly, I feel like I am in no place to complain. I am dealing with ongoing peritoneal mets in my pelvis. I had one removed in December, just to have another one pop up about a month ago. I have been enjoying folfox and panitumumab, which I would not describe ...
by CM35
Wed Apr 01, 2015 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan results clear
Replies: 18
Views: 1364

Re: Scan results clear

That is wonderful, so happy for you both!
by CM35
Wed Apr 01, 2015 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSKCC question
Replies: 8
Views: 862

Re: MSKCC question

Do you wear any sort of support over your pump? I am a girl, so this probably wouldn't work for you, but I wear spanx to kind of hold it in, keeps it from jiggling around. I have found if I wear loose clothing and am active, it feels kind of sore by the end of the day (if I don't wear any support ov...
by CM35
Wed Apr 01, 2015 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Wardrobe Disparities
Replies: 20
Views: 2551

Re: CT Wardrobe Disparities

Have you ever had a scan at MSKs Breast Center? That place is pretty classy... I have been to the 55th st place a couple times and walked right past it twice. And yes, I love how you have to go ask for your clothes back at 53rd st. Maximin humiliation indeed! At my local facility it's much more low ...
by CM35
Wed Apr 01, 2015 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda-Xeloda-Xeloda!
Replies: 16
Views: 1784

Re: Xeloda-Xeloda-Xeloda!

Julie, I hope you called dr k. I was on xeloda, and had a nasty incident with blisters all over the bottoms of my feet. I was told to stop the xeloda for a few days and stay off my feet. Worked wonders! I hope he's feeling better.

Colleen
by CM35
Wed Apr 01, 2015 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just one more CEA question
Replies: 57
Views: 7386

Re: Just one more CEA question

Sorry Kenny. I had 2 PETs on avastin and my mets were more than happy to light up. If you truly aren't comfortable just waiting until your next CT, I would suggest taking a more emphatic approach with your onc. Like I believe Pete's julie describes it: pushy nice. I have found that approach also wor...
by CM35
Tue Mar 31, 2015 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: you can only resection with 1 liver met
Replies: 15
Views: 2153

Re: you can only resection with 1 liver met

Please, get a 2nd opinion from an aggressive hepatobiliary surgeon, preferably at a major cancer center. I had a liver resection over a year ago, and I had 7 tumors in my right lobe of my liver. My liver has been clear for over a year. (Knock on wood.). Real estate is the key to resectibilty. I also...
by CM35
Tue Mar 31, 2015 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celeste - How are you and Pete?
Replies: 17
Views: 2355

Re: Celeste - How are you and Pete?

Celeste,I am glad to see an update on you and Pete. I so enjoyed meeting him last summer at MSK. I am only sorry things have been difficult for you both. It's a long road. I pray that this trial he is on turns things around. (If you aren't pray-ears, then positive juju and thoughts your way.). Hopin...
by CM35
Sun Mar 29, 2015 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ovarian cyst, extreme gas, clean scan, only diarrhea...idk
Replies: 4
Views: 1059

Re: ovarian cyst, extreme gas, clean scan, only diarrhea..

I am not a medial professional, but I believe that ovarian cysts are actually more common in post-menopausal women than pre-menopause. They can also cause a great deal of pain. A friend of mine in college had one, it was awful. Ended up having the ovary removed and solved the problem. It sounds like...
by CM35
Wed Mar 25, 2015 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wow..What your Oncologist is really thinking
Replies: 28
Views: 3185

Re: Wow..What your Oncologist is really thinking

Ugh. I am pretty sure "routine surveillance" accounts for the difference between me sitting here alive and well, versus being 6 feet under. Considering my cancer has been asymptomatic thus far. I really hope Chang was playing devils advocate here. I would like to think we live in a world w...
by CM35
Wed Mar 25, 2015 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just one more CEA question
Replies: 57
Views: 7386

Re: Just one more CEA question

Mine went from 2.7 to 7.3 in 3 weeks. CT the next day showed one new tumor (peritoneum) just under 2cm. CEA is very sensitive for me and has been spot on so far. My other recurrence it went from 4.3 to 51 in 4 weeks. CT the next day had a new 4 cm peritoneal tumor. I hope your appointment with your ...

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