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by CM35
Mon May 25, 2015 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 9+ years. Now 5 years NED
Replies: 18
Views: 2062

Re: Stage IV 9+ years. Now 5 years NED

Very inspiring, thank you for sharing! :)
by CM35
Mon May 25, 2015 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kellie
Replies: 10
Views: 1780

Re: Kellie

So very sad... :(
by CM35
Sat May 02, 2015 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSKCC
Replies: 12
Views: 1532

Re: MSKCC

I also live in MN, and traveled to MSK for surgery, and I also have an HAI pump, so I traveled monthly for that while I was having that treatment. I had never been to NYC prior to going to MSK, and I was not comfortable staying far from the hospital or clinic. There are a lot of posters who are from...
by CM35
Fri May 01, 2015 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No Surgery
Replies: 7
Views: 1347

Re: No Surgery

jalusa wrote:Did insurance cover the pump?


I have the HAI pump. My insurance considers MSK to be in-network so everything was covered as in network. I live in MN and have BCBS of MN for insurance. The pump, surgery, all of it was covered.
by CM35
Thu Apr 30, 2015 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ugh, back at the big house - fluid collection
Replies: 23
Views: 2732

Re: ugh, back at the big house - fluid collection

Yuck, I am so sorry! I hope they get your pain relieved and out of the big house ASAP. I didn't have an infection, but my liver leaked ascites for more than 2 months after my resection. Since I didn't have a fever I was not readmitted, but they monitored the fluid to make sure it was decreasing. The...
by CM35
Thu Apr 30, 2015 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No Surgery
Replies: 7
Views: 1347

Re: No Surgery

The doctors at Mayo did not feel I was a good candidate for surgery. The doctors at MSK in New York felt differently. There is nothing to be lost by getting another opinion. If you can swing it, I highly recommend MSK, they are willing to take on the more complicated liver resections. Best wishes.
by CM35
Tue Apr 21, 2015 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: news - about what I expected
Replies: 49
Views: 4002

Voxx, I know you place a high value on QOL, but did your doctor suggest adding the vectibix or Erbitux to the Folfiri, rather than just trying monotherapy? I was on Folfox alone, and was having growth, we added the vectibix and my one tumor is not visible on scan after only 3 treatments. Vectibix si...
by CM35
Thu Apr 16, 2015 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver resection at Sloan - updates
Replies: 19
Views: 2453

Re: Liver resection at Sloan - updates

Wonderful news! Rest up, you definitely earned it! Thanks for sharing... Take care!
by CM35
Tue Apr 14, 2015 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I Admit I Am Jealous and Angry And Missing Belle (NW Girl)
Replies: 7
Views: 1915

Re: I Admit I Am Jealous and Angry And Missing Belle (NW Girl)

Julie, you know I follow your blog, and I have deep respect for the way you acknowledge the dark side of stage IV cancer. I feel the same jealousy, and strongly dislike the feeling, yet that doesn't mean it doesn't exist. I am preparing for my 3rd surgery, supposedly "curative intent," but...
by CM35
Tue Apr 14, 2015 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment stopped
Replies: 25
Views: 2766

Re: Treatment stopped

So sorry to hear this... Hoping for as many good days for your family as possible... Take care...
by CM35
Tue Apr 14, 2015 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back again: 12mm lymph node in pelvis, options? (update)
Replies: 11
Views: 2137

Re: It's back again: 12mm lymph node in pelvis, what are the options?

I had a pelvic tumor show up in November. There was some disagreement between onc/surgeon/radiologist as to whether it was peritoneal met or a node. Because it was isolated, it was surgically removed. It was a peritoneal met. There are a lot of nodes in the pelvic region, so I suppose there is room ...
by CM35
Thu Apr 09, 2015 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I feel like I am in the Twilight Zone....HIPEC
Replies: 20
Views: 2145

Re: I feel like I am in the Twilight Zone....HIPEC

Hi, I got your pm! I believe it stays in the outbox until the recipient logs in and reads the message... :) And yes, search "cimetidine," in the search box. There is a lot of study data on it that shows it can help prevent new metastasis if taken prior to and after surgery. I will add a di...
by CM35
Thu Apr 09, 2015 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I feel like I am in the Twilight Zone....HIPEC
Replies: 20
Views: 2145

Re: I feel like I am in the Twilight Zone....HIPEC

It sounds like you have as much of a handle on understanding this stuff as is really possible. It seems like for all of the different areas of metastasis, peritoneal spread is the least understood, and the hardest to control. I am kind of in the same boat as you. I have had peritoneal involvement si...
by CM35
Wed Apr 08, 2015 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things we look forward to
Replies: 25
Views: 2208

Re: Things we look forward to

My oldest daughter starts kindergarten in the fall. That's the big milestone in my mind. When I was diagnosed, it didn't seem likely I would see either of my girls start school. Now, I am pretty confident I will see that day. I do kind of think in terms of small milestones. When each one passes, I f...
by CM35
Wed Apr 08, 2015 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Resection tomorrow at MSKCC
Replies: 18
Views: 1975

Re: Liver Resection tomorrow at MSKCC

That is incredible, awesome news!!! I am so happy for you! Dr D resected my supposedly unresectable liver 14 months ago and it remains clear to this day... You are in the BEST hands, I am pulling for you!

Colleen

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