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by CM35
Mon Jul 06, 2015 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dollars for Docs Website
Replies: 18
Views: 2082

Re: Dollars for Docs Website

I have never felt either of my oncologists were in this business for the money. This list certainly reinforces that perception...
by CM35
Thu Jul 02, 2015 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy results- help to interpret!
Replies: 17
Views: 2108

Re: Biopsy results- help to interpret!

Have you talked to your doctor at all about your biopsy results, or were they released to you before any discussion? I am not a pathologist or medical professional at all, so I would not be a reliable source as far as interpreting this report. As you have the report already, I would contact your doc...
by CM35
Thu Jul 02, 2015 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: WALK FOR DR KEMENY RESEARCH
Replies: 2
Views: 715

Re: WALK FOR DR KEMENY RESEARCH

I would love to participate if it becomes possible... I will have to look into it as the time approaches, maybe I will have to take a "girls weekend" trip to NYC with one of my daughters... :D I also wanted to BUMP this so others might see it! :wink:
by CM35
Thu Jul 02, 2015 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hernia
Replies: 9
Views: 1177

Re: hernia

I have had multiple incisional hernias (6) that developed along my midline incision scar (which extends from my breast bone to my c-section scar.). I looked pregnant, which wasn't really a look I was going for. :roll: The hernias were easily palpable, I could feel the holes in my abdominal wall just...
by CM35
Wed Jul 01, 2015 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: slowly increasing cea - what comes next?
Replies: 4
Views: 1053

Re: slowly increasing cea - what comes next?

When NED and on chemo, my CEA kind of bounces around in about the same range you are showing... Neither dr k., nor my local onc, thought it was any cause for concern as I was having clean scans. Both doctors said that chemo can affect the reliability of CEA, and when it is fluctuating by such small ...
by CM35
Wed Jul 01, 2015 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, 6 years in the clear
Replies: 20
Views: 2396

Re: Stage IV, 6 years in the clear

Amy, your story is such a beacon of hope, and I am so happy to see this update... I hope you continue posting this same update for many years to come, and that we are all around to read it... Thank you for sharing, and you have a very beautiful family!

Colleen
by CM35
Fri Jun 26, 2015 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal narrowing - yep I said it!!
Replies: 11
Views: 2400

Re: Vaginal narrowing - yep I said it!!

Funny how when you are going through chemo, surgery, recovery, more chemo, side effects, etc. and on and on...that the LAST thing on your mind is stretching out your VAGINA! :roll: It really would be lovely if our medical professionals would let us in on this info before it's a problem!
by CM35
Fri Jun 26, 2015 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I think its back
Replies: 13
Views: 1927

Re: I think its back

What treatment given, would depend on what is growing and where, I would think. IF something is growing, explore all your options once you have that info. Like another said, things besides cancer can cause CEA to fluctuate. Hopefully that is the case here.
by CM35
Fri Jun 26, 2015 10:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery
Replies: 36
Views: 4495

Re: Surgery

Glad to see your update, and that you managed to break out of the hospital. Sorry about the pump study, I found it to be less than enjoyable and wouldn't be thrilled to repeat it! For your sake, I hope whatever issue it has resolves itself. Onion smell aside, I hope you are able to enjoy the city wh...
by CM35
Fri Jun 26, 2015 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI and the IRI
Replies: 14
Views: 1038

Re: FOLFIRI and the IRI

I think every individual experiences side effects and handles them differently. My only advice to you would be to ask yourself this question: if you drop the irinotecan and your cancer recurs, will you still be ok with your decision or would you be kicking yourself? For me personally, I always try t...
by CM35
Sun Jun 21, 2015 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery
Replies: 36
Views: 4495

Re: Surgery

Glad to see things are going well thus far... Keep walking, and soon enough you should be walking out the door! Take care!
by CM35
Sun Jun 21, 2015 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: respond asap, please
Replies: 9
Views: 1969

Re: respond asap, please

I had crs+hipec 5 weeks ago. Mskcc does not offer hipec, Bev is correct. I consulted with 2 other "big name" surgeons before ultimately opting to go with my local surgeon. I consulted with Dr Labow at Mt Sinai in New York City. There are several posters here who have been treated by him, a...
by CM35
Fri Jun 19, 2015 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver directed therapies?
Replies: 11
Views: 1814

Re: Liver directed therapies?

I have to join the chorus of Kemeny/MSKCC recommendations. I went to her, have an HAI pump, had a liver resection, and my liver has been clear for 16 months. She was willing to help me, when others were not. Getting the liver to a surgical resection is the gold standard for treating liver mets. No o...
by CM35
Mon Jun 01, 2015 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: just sad
Replies: 50
Views: 7861

Re: just sad

Celeste, I am so sorry... I feel like I don't have any words. You are in my thoughts...
by CM35
Mon Jun 01, 2015 12:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To HIPEC or NOT TO HIPEC.
Replies: 20
Views: 2643

Re: To HIPEC or NOT TO HIPEC.

Cherie, I had HIPEC on the 14th, just over 2 weeks ago. It was easily the hardest surgery I have been through, but after the first few days, things turned the corner and I am doing reasonably well. Pain management was an issue for a couple days, but is very, very well controlled now. I am having mor...

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