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by CM35
Sun Sep 06, 2015 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE advice needed - I'm in the hospital with ovarian cyst
Replies: 42
Views: 5374

Re: advice needed - I'm in the hospital with ovarian cyst

(((Lara,))) I am sorry you are going through this! Ugh! I had an ovarian met at diagnosis... And I assure you, not one medical person who saw my scan or ultrasound suggested it was a cyst! They know what they are looking at when they see it. I am 100% sure this will end up being a boring old, ordina...
by CM35
Fri Sep 04, 2015 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC
Replies: 4
Views: 1629

Re: HIPEC

I had HIPEC in May. It was not the silver bullet for me, but likely has little to do with the competence and skill of my surgeon, but rather the fact that my cancer SUCKS. I have had a recurrence, but not in the peritoneum as far as we know. I posted in more detail in the thread bitchslapped referen...
by CM35
Tue Sep 01, 2015 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have RFA on lung at MDA?
Replies: 12
Views: 1858

Re: Anyone have RFA on lung at MDA?

Do you have a local, non MDA oncologist that you see? Could he/she possibly refer you to a good, local interventional radiologist? I would tread lightly, using that option, and keep your onc at MDA fully apprised of what you are up to... Make sure he is on board... I have consulted with MSK but get ...
by CM35
Fri Aug 28, 2015 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Subcutaneous metastasis
Replies: 2
Views: 1026

Re: Subcutaneous metastasis

I have subcutaneous mets, they have always been involved with the same scar. The first one was removed during my HIPEC surgery. Two more promptly grew back, in the same scar. My surgeon removed them during my ileostomy reversal in July. More mets have replaced them. I am now headed back to oncology,...
by CM35
Sat Aug 22, 2015 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC (ers) - Compare Stories
Replies: 12
Views: 2897

Re: HIPEC (ers) - Compare Stories

I had HIPEC on 5/14/2015. I had minimal peritoneal disease and had a complete resection of my cancer. I had an aggressive procedure - in addition to the heated intra operative chemo, I received IV 5fu during surgery. Then, the 3 days immediately following surgery, I had intraperitoneal 5fu treatment...
by CM35
Tue Aug 18, 2015 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Day 8 on Vectibix (panitumumab)
Replies: 7
Views: 1347

Re: Day 8 on Vectibix (panitumumab)

I had 3 rounds of FOLFOX+panitumumab. It wasn't pleasant. I found that the side effects kind of waxed and waned regardless of where I was in the cycle. I had the itchy rash, plus I got oral thrush (this may be the cause of your sore mouth-check with your doctor. I was given magic mouthwash and nysta...
by CM35
Tue Aug 18, 2015 12:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mixed feelings about this update...
Replies: 45
Views: 4614

Re: mixed feelings about this update...

I'm glad you posted this, it's good to see that things can go well. I am happy for you... A little jealous, yes, but to see someone succeed at "whack a mole" is encouraging, indeed. Enjoy your good health and good fortune!
by CM35
Sun Aug 16, 2015 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Night before chemo. Thinking of giving up...
Replies: 26
Views: 3783

Re: Night before chemo. Thinking of giving up...

I have done 18 rounds of FOLFOX. With full-dose oxaliplatin for every round. I have zero neuropathy. I did have the cold sensitivity while I was on it, but it resolved within a few days each round. It went away completely a few weeks after stopping. All chemo sucks, but I wouldn't say I enjoyed any ...
by CM35
Mon Aug 10, 2015 11:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: People Do...
Replies: 20
Views: 3261

Re: People Do...

Thank you for sharing your update. I needed that today. I needed to hear that anything is still possible if I keep persevering, staying the course. I am so happy for you, and your continued good health!

Colleen
by CM35
Sat Aug 08, 2015 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 53rd St. Gang
Replies: 27
Views: 3522

Re: 53rd St. Gang

Anyone going to be at 53rd St next week? I'll likely be there all day Wednesday (the 12th) and I would love to chat with someone to pass the time! 8) 8) 8)

Colleen
by CM35
Thu Jul 30, 2015 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for those with HAI pump...
Replies: 4
Views: 808

Re: Question for those with HAI pump...

The surgeon who placed my pump was Dr. DeMatteo. I have had 4 surgeries since it was placed, including hipec, so I am starting to wonder if that has played a role. Maybe it's been jostled around and messed with enough times that it's not where it's supposed to be. I have been careful to wear support...
by CM35
Thu Jul 30, 2015 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on Hipec progress
Replies: 21
Views: 3093

Re: Update on Hipec progress

That's terrific! Good luck with HIPEC, I am very happy this is happening for you!
by CM35
Wed Jul 29, 2015 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for those with HAI pump...
Replies: 4
Views: 808

Question for those with HAI pump...

I had an HAI pump placed in 02/2014 at mskcc. It was used post-resection as adjuvant therapy and my liver has been clear since surgery (yay!). I have been keeping it maintained, as my little insurance policy should something show up in my liver in the future. However, I have been having some issues ...
by CM35
Sun Jul 26, 2015 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Midwest U.S. We have HIPEC!
Replies: 2
Views: 725

Re: Midwest U.S. We have HIPEC!

I think you can get it at Fargo too. Yes, this is where I had my HIPEC surgery. There is also a HIPEC surgeon in Omaha, I believe. It's great that there are options for many of us, where we don't have to travel so far. There is a big difference even between driving a few hours versus flying a few h...
by CM35
Mon Jul 13, 2015 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tell me about your loop ileostomy
Replies: 7
Views: 853

Re: Tell me about your loop ileostomy

I have a loop ileostomy, and it's the only one I've had, so I don't have any basis for comparison. I use a 1.25" convex wafer, it seems to have a better seal. I haven't 'pooped out my butt' since maybe a week or 10 days post op. I do pass mucus rarely, but I've not found it to be a big issue. I...

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