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by JJ2212
Sun Aug 21, 2016 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR Wound Healing
Replies: 3
Views: 911

Re: APR Wound Healing

I had my APR on December 18th 2014, and I still have some drainage to this day. Ditto for me, and my surgery was Aug 30th 2013, soon to be 3 years ago. The continued drainaged is caused by chemo, Stivarga in my case, as it inhibits wound healing. I had no idea when going into surgery that I could h...
by JJ2212
Sun Jul 31, 2016 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RIP beautiful Cherie :(
Replies: 40
Views: 6118

Re: RIP beautiful Cherie :(

I'm so sad to hear the news. Sending love to Cherie's family and friends.

F*ck cancer.

Janie
by JJ2212
Fri Jul 01, 2016 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: AUGH - what next? Stivarga, is it worth it?
Replies: 15
Views: 2949

Re: AUGH - what next? Stivarga, is it worth it?

Sorry your mom is going through this. Deciding on the next steps is never easy... Stivarga has been working for me for 19 months and counting. Unfortunately, like any other treatment, it's far from a sure thing for everyone but it is possible to get more than 2 months progression free. I second the ...
by JJ2212
Thu Jun 23, 2016 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR TOMORROW FISTULA REPAIR - SO SCARED
Replies: 12
Views: 1327

Re: APR TOMORROW FISTULA REPAIR - SO SCARED

I'll be thinking of you tomorrow Marianne. I had an APR almost 3 years ago. I was also very scared, thinking I might die and I didn't want to deal with the fact that I would have a permanent colostomy when I woke up from surgery. My nerves were so raw that I was crying in the hallway waiting to be b...
by JJ2212
Thu Jun 09, 2016 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga questions
Replies: 9
Views: 1877

Re: Stivarga questions

For the side effects, do you have them all the time? I felt like my first round I was pretty good except for a couple days. For me, fatigue starts right away and gets progressively worse until midway through my off week. Most of the other side effects start showing up at around day 10, in varying d...
by JJ2212
Wed Jun 08, 2016 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga questions
Replies: 9
Views: 1877

Re: Stivarga questions

Today I found out my cancer has returned from a surgery in 11/13 then 6mt round of folfox. They found an infected lymph node and I've been asked to participate in a study where they switch the order of medicines by using stivarga 1st. My doctor feels I could go either way. Stivarga or Folfiri. I th...
by JJ2212
Mon Jun 06, 2016 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga questions
Replies: 9
Views: 1877

Re: Stivarga questions

I'm sure you know that, as with any other chemo, not everone responds the same to Stivarga. But I can give you my point of view as someone who responds well to it. 4 pills per day was too toxic for me. I lasted one cycle on that dosage and my onc chose to reduce me to 3 pills per day for the next 2 ...
by JJ2212
Tue May 03, 2016 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upset.... I need help from anyone who was diagnosed with Rectal Cancer!
Replies: 12
Views: 2019

Re: Upset.... I need help from anyone who was diagnosed with Rectal Cancer!

I am getting so upset because I see that other people have responded so good to surgery with no complications and here my poor fiance still dealing with stupid uncomfortable pain Not everyone recovers from this type surgery in the same way or in the same timeframe. It's major surgery and even the b...
by JJ2212
Wed Apr 27, 2016 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning the end of my journey
Replies: 30
Views: 4576

Re: Beginning the end of my journey

It's hard to find the right words to say, but know that my thoughts are with you. Sending positive vibes your way. Take care.

Janie
by JJ2212
Tue Apr 12, 2016 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Tuesday-Updated with results
Replies: 21
Views: 2503

Re: CT Scan Tuesday

JudeD59 wrote:At least it wasn't until you got home, right?


Nope. It started right there on the scan table, but luckily I have a colostomy. :lol:
by JJ2212
Tue Apr 12, 2016 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Tuesday-Updated with results
Replies: 21
Views: 2503

Re: CT Scan Tuesday

Good luck with your CT scan Judy :-) I just got back from the hospital for own my ct scan and the digestive issues have already started. The contrast drink and/or the iodine empty me out better than any colonoscopy prep i've ever done :shock:. Such fun. I hope your results are good and that you can ...
by JJ2212
Fri Apr 01, 2016 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on Port Placement
Replies: 44
Views: 4492

Re: Question on Port Placement

I was only offered local anaesthesia when I got my port in. I didn't enjoy it much but have been through worse.

I'm impressed that you've done all that chemo without ever having a port. Crazy!
by JJ2212
Mon Mar 28, 2016 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What people say
Replies: 8
Views: 1076

Re: What people say

You are definitely not crazy. A lot of people suck at being silent when they don't know what to say. Or they think that being encouraging and positive is always what you need. I usually just nod, smile and change the subject if I think the person just won't "get" it. I'll explain more if i...
by JJ2212
Mon Mar 28, 2016 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MIA for to long
Replies: 8
Views: 1350

Re: MIA for to long

Welcome back Tammy!

Sorry that chemo is kicking your butt hard. I wish I had the perfect words of encouragement for you, but I don't.

Take care,

Janie
by JJ2212
Mon Mar 28, 2016 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Diagnosis- stage 1 rectal cancer
Replies: 8
Views: 1450

Re: New Diagnosis- stage 1 rectal cancer

I 100% agree with Jaynee. I suspect a lot of stage 1 folks move on fairly quickly after their treatments. A lot don't want to stick around in a cancer support group once they are cancer-free. My greatest wish for you is that you get the support that you need from the group now and move on quickly li...

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