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by StupidAssCancer
Thu Oct 03, 2013 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 30 day Adjuvent Radiation for Rectal Cancer- QUESTIONS!
Replies: 6
Views: 1178

30 day Adjuvent Radiation for Rectal Cancer- QUESTIONS!

My doctor has ordered me to have 30 sessions of radiation . This is adjuvant therapy. I have already had my surgery -Iliostomy with J pouch and have completed three months of chemotherapy already. I was allergic to the Xeloda so I will be doing this with no radiation stimulator/chemo. Has anyone don...
by StupidAssCancer
Thu Oct 03, 2013 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda Extremely Allergic-

My oncogist was very apprehensive to agree to give me the DPD test. He said "It's not part of the standard of care" I'm sooo sick of that answer! Oh but dieing is?! So finally he agreed however from what I've read you need three vials and he only took 1 so who knows if he has even requeste...
by StupidAssCancer
Mon Sep 30, 2013 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda Extremely Allergic-

Micheal, In my case that could be a life or death, most likely death situation. A DPD deficiency is stage 4+ toxic which is lethal. With My symptoms and deficiency if given another dose it could immediately result in death. Here is some great conversation and education about this- http://www.dpd-def...
by StupidAssCancer
Mon Sep 30, 2013 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda Extremely Allergic-

great suggestions! I will report back tomorrow
Alys
by StupidAssCancer
Mon Sep 30, 2013 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda Extremely Allergic-

Thank you for posting these links. Yes last night I actually visited everyone of them. I was up all night researching. How frustrating it is that the patient has to research instead of the oncologist. I have not found in all of my reading anything that tells me what the next steps could possibly be....
by StupidAssCancer
Mon Sep 30, 2013 1:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda- DPD deficiency- Life Threatening!

Exactly!!! Argh so frustrating! I've been up all night reading articles about this. It is a blessing I am even alive right now! With the symptoms and reactions I have had to the 5 FU and xeloda from what I have read most people have died. I realize it is only 3-5% of the population that this happens...
by StupidAssCancer
Mon Sep 30, 2013 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda Extremely Allergic-

Bev, Thank you for the info! I have been super frustrated as last week when the Xoloda symptoms came on my Oncologist was unavailable and his PA let me know he felt my symptoms were due to anxiety! He was not happy when I did my research and found the DPD Information. I requested to be tested for th...
by StupidAssCancer
Sun Sep 29, 2013 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

Re: 5-FU & Xeloda Extremely Allergic-

I really know how to spell! My iPhone was not kind auto-correcting me!
Any help u can give is very graciously appreciated!
xoxo,
Alys
by StupidAssCancer
Sun Sep 29, 2013 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 5770

5-FU & Xeloda Extremely Allergic-

I was diagnosed with stage 3c Corectal cancer in March 2013- Syrgery to remove Timors in April with a Jpouch Temp Illiostomy. IV Chemo treatments started in May- 3 months of 5-Fu along with Oxi- the same cocktail everyone else is given. The third treatment so week 5 I developed extreme stomach pain ...

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