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by StupidAssCancer
Mon Mar 03, 2014 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help! ileostomy reversed Dr now wants Perm Colostomy
Replies: 52
Views: 7504

Please help! ileostomy reversed Dr now wants Perm Colostomy

So I'm in between that rock and a hard spot decision. I had anal cancer, diagnosed one year ago. I had a ileostomy with a jpouch created for 10 months while i went through chemo and radiation. I was recently reversed on Jan 15th. I've been having major complications with my reversal and today met wi...
by StupidAssCancer
Tue Feb 11, 2014 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Surgery 3 weeks out- Struggling- please help
Replies: 19
Views: 3099

Re: Reversal Surgery 3 weeks out- Struggling- please help

Yes, every bit of info shared here has been great! For me the major turning point was getting on the lomotil. Not neccisarily to control diarrhea at all but to control and take away the spasm, urgency, and rectal cramping I was having. This took it right away and instantly I felt like I could do thi...
by StupidAssCancer
Mon Feb 10, 2014 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Surgery 3 weeks out- Struggling- please help
Replies: 19
Views: 3099

Re: Reversal Surgery 3 weeks out- Struggling- please help

Three days ago I had a fellow colorrectal cancer mate message me. She told me about lomotil. Said the urgency and rush toget to the pot would simply go away if I took it. I had some here that I never used with my bag as I liked my Consistency runny so I never used it. I took the Lomotil two days ago...
by StupidAssCancer
Sat Feb 08, 2014 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Surgery 3 weeks out- Struggling- please help
Replies: 19
Views: 3099

Re: Reversal Surgery 3 weeks out- Struggling- please help

Yes I learned day 7 tomatoes cooked are a no no, hell no for me!
I'm hoping the burning/ acidic does eventually to away!
I don't want to go around screaming " Fire in the hole" the rest of my life!
xo,
Alys
by StupidAssCancer
Sat Feb 08, 2014 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Surgery 3 weeks out- Struggling- please help
Replies: 19
Views: 3099

Re: Reversal Surgery 3 weeks out- Struggling- please help

Everyone thank you for taking the time to write me and give me suggestions! I know this topic has been covered before however I felt like I had some specific questions and I'm happy now that I dared to post them. What is the butt burn from is it that the stool is very acidic? If so does anyone know ...
by StupidAssCancer
Fri Feb 07, 2014 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Surgery 3 weeks out- Struggling- please help
Replies: 19
Views: 3099

Reversal Surgery 3 weeks out- Struggling- please help

I had my ileostomy reversed Jan 15th. I am stage 3c and my original surgery created a Jpouch. I had my surgery 25 days ago and am still really struggling. Using the toilet 3 x an hour with urgency, however at night I am able to sleep without interuption. I'm taking benefiber, lomotil, and probiotics...
by StupidAssCancer
Sun Jan 05, 2014 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal-Is there anything I can do to prepare?
Replies: 19
Views: 4002

Re: Ileostomy Reversal-Is there anything I can do to prepare

Has anyone tried doing warm water enimas prior to reversal surgery to help tone and strengthen muscles?
:? Curios about this?
xo, Alys
by StupidAssCancer
Fri Jan 03, 2014 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal-Is there anything I can do to prepare?
Replies: 19
Views: 4002

Re: Ileostomy Reversal-Is there anything I can do to prepare

Ok great advise! Ill go tomorrow and get both the ointment and the adult diapers! I never ever thought I'd say those words!
by StupidAssCancer
Fri Jan 03, 2014 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal-Is there anything I can do to prepare?
Replies: 19
Views: 4002

Re: Ileostomy Reversal-Is there anything I can do to prepare

Thank you to all who posted comments. I have found them all very helpful. I have started my Keagle's and also read the attached link pamphlet of rectal exercises. OneEyeddog, I just finished spending the past hour on your blog. Laughed my ass off so entertained by your experiences and ability to sha...
by StupidAssCancer
Fri Jan 03, 2014 2:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal-Is there anything I can do to prepare?
Replies: 19
Views: 4002

Ileostomy Reversal-Is there anything I can do to prepare?

Hi, Thank you for your comments! I am having my ileostomy take down on the 15th of this month which is a little over 2 weeks away. I'm wondering is there anything I can do prior to the surgery take down to help prepare my body, rectum, etc for this? I have read a lot of the comments here on the foru...
by StupidAssCancer
Wed Nov 27, 2013 11:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain in leg after radiation, worried about a clot
Replies: 4
Views: 812

Pain in leg after radiation, worried about a clot

I just finished my 28 sessions of radiation 7 days ago. 5 days ago both legs and feet started to hurt I assumed from the inflamation. Now today the back of my right leg is killing. Behind my knee to be exact. Has anyone heard radiation can cause blood clots? Any experience out there with this? Thank...
by StupidAssCancer
Wed Nov 20, 2013 11:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Radiation- How long does this pain last?
Replies: 19
Views: 3664

Re: Rectal Radiation- How long does this pain last?

Thank you for your message! What does it mean that your bladder fell not the void of your rectum?
I've noticed the past 4 days when going pee it totally feels different than it ever has before. Curious...
Alys
by StupidAssCancer
Wed Nov 20, 2013 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peeing Blood- Just completed my Radiation
Replies: 3
Views: 730

Re: Peeing Blood- Just completed my Radiation

Thank you for the congrats! Your treatments will be over soon as well! Thank goodness! My heart goes out to you. I can't imagine what you are going through with a new little one just arriving. Stay in touch
xo
by StupidAssCancer
Wed Nov 20, 2013 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peeing Blood- Just completed my Radiation
Replies: 3
Views: 730

Peeing Blood- Just completed my Radiation

I just completed my 28 rounds of post surgical radiation for my rectal cancer yesterday and last night I started to pee blood. As you may very ell know if you have ever had a urinary tract infection this feels like you are peeing glass shards! OUCH! I went and had my urine tested and it came back wi...
by StupidAssCancer
Wed Nov 20, 2013 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Radiation- How long does this pain last?
Replies: 19
Views: 3664

Re: Rectal Radiation- How long does this pain last?

Thank you for all your replies and tips. I truly appreciate them all!
The pain is still there and quite extreme. Last night I started bleeding pee. Im going to do a separate post in regards to this to see if anyone has any tips or info on this.
Thank you!
xo,
Alys

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