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by stu
Tue Feb 12, 2019 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 1896

Re: Bad News

Sorry just reread your first line . This is in preparation for her scan . Is this her first scan ?
Stu
by stu
Tue Feb 12, 2019 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 1896

Re: Bad News

Hi , You mum had a great downward trend on chemo. Is she having a chemo break just now ? Or had a recent scan ? Your mum’s tumours clearly give off a lot of protein but I would rely more on the scan information . My own mum became very confused as her electrolytes were knocked off with chemo . Parti...
by stu
Tue Feb 12, 2019 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Canadians and Immunotherapy
Replies: 4
Views: 367

Re: Canadians and Immunotherapy

Good on you . I have been raising it here too . We are behind in Bowel cancer but keeping up in other primaries. So annoying . Then I noticed a trial for Immuotherapy for MMS patients which I assume is the High Tumour Mutation Burden . Not only that but it’s my city so I am off and running putting t...
by stu
Mon Feb 11, 2019 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 15
Views: 971

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

Hi ,
My mum had uptake on a 7 mm lung met with a PET scan . Removed by VATs and confirmed to be a met .
Hope you get answers soon .
Stu
by stu
Mon Feb 11, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4028

Re: CEA Levels

My mum’s has popped up too ! Such a pain but she scanned well just six weeks before so not going to react just yet plus they have plateaued with a .3 drop which I guess is not much but we will take it none the less . I am thinking it’s a gastric issue or inflammatory. If not we are on to it before i...
by stu
Mon Feb 11, 2019 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfirinox - Bad tolerance
Replies: 10
Views: 809

Re: Folfirinox - Bad tolerance

Hi , It is a tough treatment for some people . I think it would be reasonable to say we dragged my mum through chemo . She would be in the subgroup of patients that had a bad reaction . Frequently took three of us to get her from the car to bed following and infusion. All sort of thoughts were flyin...
by stu
Mon Feb 11, 2019 3:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T but I completed my half marathon!
Replies: 20
Views: 784

Re: O/T but I completed my half marathon!

What I love about you is your ability to stay totally engaged to your life . That is pretty unique around here . It normally takes time to draw boundaries round cancer. Not with you I think you had it done before leaving the surgeons room . I was telling your story to a friend who has stage 4 lung c...
by stu
Sun Feb 10, 2019 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T but I completed my half marathon!
Replies: 20
Views: 784

Re: O/T but I completed my half marathon!

You make me laugh . Well done you . Absolutely fantastic .
Stu
by stu
Sun Feb 10, 2019 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new to the forum i'm worried about my mom high cea
Replies: 14
Views: 1016

Re: new to the forum i'm worried about my mom high cea

Sounds like a good plan .
Does your mum have access to PET scans ?
They are sometimes very reassuring in such circumstances.
Hoping it goes down for all of them .
Stu
by stu
Sun Feb 10, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stopping Folfox early?!
Replies: 7
Views: 410

Re: Stopping Folfox early?!

Hi ,
That sounds really rough . Have you spoken to your team yet ? My mum had a dose reduction which made her side effects much more manageable. She only ever did six at a time .
Take care,
Stu
by stu
Sun Feb 10, 2019 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3c NED
Replies: 6
Views: 474

Re: Stage 3c NED

Delighted to hear your mum is doing so well . Interesting about the vitamin D !! Might look into those lamps .
Stu
by stu
Sat Feb 09, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Mets told. Inoperable. Need advice on options
Replies: 2
Views: 410

Re: Lung Mets told. Inoperable. Need advice on options

Hi Donna, We are in the UK . You will need to check out with your oncologist if they can access funding for treatment not available in the UK if you wish to look into Laser treatment in Germany . It used to be done in London but to date I have not heard of anyone taking over . Correct me if this is ...
by stu
Fri Feb 08, 2019 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3/4 Colon Cancer
Replies: 7
Views: 633

Re: Stage 3/4 Colon Cancer

Hi ,
Your mum is young . Great to hear she was operable and all the very best to her going forward .
Stu
by stu
Thu Feb 07, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom is now NED but it was a tough fight to get there!
Replies: 3
Views: 555

Re: Mom is now NED but it was a tough fight to get there!

Send her our love . She has had a tough old time .
Stu
by stu
Wed Feb 06, 2019 2:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new to the forum i'm worried about my mom high cea
Replies: 14
Views: 1016

Re: new to the forum i'm worried about my mom high cea

Hi ,
How is your mum’s CEA now ? Interestingly my mum’s CEA went up to 5.5 in Nov from 4 and dropped to 5.2 . She was scanned six weeks before and the scan was good .
Take care ,
Stu

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